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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

JK | @contentandwell | Apr 4, 2017
In reply to @greenjean269 "Good Afternoon, My 88 year old Mom is the one with chronic pain and some dementia...." + (show)
@greenjean269

Good Afternoon, My 88 year old Mom is the one with chronic pain and some dementia. She has arthritis and a torn rotator cuff that makes her ache. She shuffles through the house not picking up her feet - I don't know if that is due to the arthritis, lack of movement or what. She is on hydrocodone in the am and pm. She says it doesn't work. I feel so bad that sometimes she just groans when trying to move. She sleeps a lot - says it hurts less when she doesn't move but understands if she did move and exercise a bit it would help. Rock and a hard place. We go in in a week to re-assess pain meds and I would like her to see a pain specialist or pain clinic. We lost our favorite Gerontologist who understood the dementia and was so wonderful.
Wow. How's that for a first post?!

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@greenjean269, Hi. It must be very difficult to be the caretaker for your mother. I hope the reassessment will help her.

Just curious, at what age generally do people go to a gerontologist/geriatric doctor?

JK

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Apr 4, 2017
In reply to @pat3316 "Hi I am Pat3316 and I am glad to be part of this group. I have..." + (show)
@pat3316

Hi I am Pat3316 and I am glad to be part of this group. I have been dealing with serious back pain for nearly a year. I look forward to reading others wh have similar problem and what they have found helpful.

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I second @daybyday's welcome. @pat3316, would you mind sharing a bit more about your back pain? We have a few discussions taking place on Connect regarding back pain and I would love to share the most relevant ones with you. What caused your back pain? What kind of pain are you dealing with?

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Apr 4, 2017
In reply to @greenjean269 "Good Afternoon, My 88 year old Mom is the one with chronic pain and some dementia...." + (show)
@greenjean269

Good Afternoon, My 88 year old Mom is the one with chronic pain and some dementia. She has arthritis and a torn rotator cuff that makes her ache. She shuffles through the house not picking up her feet - I don't know if that is due to the arthritis, lack of movement or what. She is on hydrocodone in the am and pm. She says it doesn't work. I feel so bad that sometimes she just groans when trying to move. She sleeps a lot - says it hurts less when she doesn't move but understands if she did move and exercise a bit it would help. Rock and a hard place. We go in in a week to re-assess pain meds and I would like her to see a pain specialist or pain clinic. We lost our favorite Gerontologist who understood the dementia and was so wonderful.
Wow. How's that for a first post?!

Jump to this post

I would like to add my welcome to @contentandwell's. It sounds like you are dealing with a lot yourself, thank you for sharing your situation with the other members of the Chronic Pain group.

Here are a few conversations taking place on Connect that I think would be worth your time to explore and share with the other members who are experiencing things similar to yourself:

- Caring for someone with dementia/alzheimers, http://mayocl.in/2ccA0jO.
- Falling with Chronic Pain, http://mayocl.in/2oFTY9a (this discussion is about using a walker and living with arthritis, among other things)

We have many members talking about shoulder pain but they are spread across Connect. I would be happy to help you start a new conversation specifically around shoulder injuries so that we could bring members to one location if that is something that interests you. I hope to see more posts from you in the future and I hope these discussions help get you started.

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Apr 4, 2017
In reply to @donna2078 "hi . ive just been told I have superior mesenteric artery syndrome. plus I suffer with..." + (show)
@donna2078

hi . ive just been told I have superior mesenteric artery syndrome. plus I suffer with abdominal pain daily... so glad I found this site , as ive been told its a rare disorder and a little scared by it all , as im normally fit and healthy

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Hello @donna2078, welcome to Connect. Thank you for sharing your rare diagnosis with the Chronic Pain group, we are glad you found this site too! I think there is another member that would be happy to meet you. I think you may want to check out the following discussion:

- Superior mesenteric artery syndrome (SMA Syndrome), http://mayocl.in/2oG5FNj

In that discussion you will find some members talking about the rare disorder you are now facing. I look forward to seeing more posts from you @donna2078.

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goodtime376 | @goodtime376 | Apr 4, 2017
In reply to @goodtime376 "Hi all, I'm 4 months into medical marijuana use for unremitting osteoarthritis pain not relieved by..." + (show)
@goodtime376

Hi all, I'm 4 months into medical marijuana use for unremitting osteoarthritis pain not relieved by the usual anti-inflammatory meds. So far I've had mixed results. I believe the the health care industry needs to learn more about the formulation of this product. The measure of pain mitigation is related to the combination of THC and CNB and amount used. It comes in different forms. In N.Y.doctors have to be certified to prescribe it. The 4 hour course is available online. My best relief is achieved by using 2 1T/1C capsules at bedtime and 20T/1C tincture drops at least twice a day plus 600 mgs of ibuprofen as needed. If I have to do anything that requires extreme mental acuity, I refrain from using it. It does make me a bit foggy. The benefits are not worth the cost but it until Big Pharma comes up with something more effective, this is it. I also have PT twice a week for balance and pain.

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Hi day, tell your friend to try it. Some folks have had better results than me. I think this med needs a little fine tuning. hope it costs less where you are.

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akasha92 | @akasha92 | Apr 5, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hi Pablo! I'm new here and to your well-rounded vintage, must seem an eager pup. I had to reply as I, myself, have posed this question to both my neurologist and an incredible primary care physician.
You see, my condition is Multiple Sclerosis. I was treated with a monthly infusion called Tysabri for nearly five years. It lowered my immune system to the point of non-existence. It also called for me to remain out of direct sunlight and My neurologist was of the antiquated school of thought that elevating my core body temperature by a mere 3° would cause my already feeble immune system to flare up, causing further disability.
I, was instructed, however, to move and exercise. Living in Kansas, with extreme swings in weather patters in any given day, let alone week, I posed this question . What I was told is that this distraction or "mind control" as you put it, can indeed be dangerous for it is just that...a distraction, while the body is still engaged in activity. It is the reason why people listen to music and watch television while on the treadmill. To make the time "fly" by distracting a different part of the brain. It is also why a pot of water will never boil when we watch it. It is not because the time is moving at any different rate of speed, but because we are engaged in a pleasant activity.
When our bodies become fragile, we have to take extra good care of them. We have to use sunscreen, drink lots of water, and even use an ice vest during hot humid weather.
I do hope this helps.

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coolrufus | @coolrufus | Apr 9, 2017

Father of 3, almost done with doctorate, have joint and spine chronic pain for 20 years. Looking for answers as to why my body responded to an injury with fever, swollen lymph nodes, and whole body pain 24 hours a day. Thanks

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daybyday | @daybyday | Apr 9, 2017
In reply to @goodtime376 "Hi all, I'm 4 months into medical marijuana use for unremitting osteoarthritis pain not relieved by..." + (show)
@goodtime376

Hi all, I'm 4 months into medical marijuana use for unremitting osteoarthritis pain not relieved by the usual anti-inflammatory meds. So far I've had mixed results. I believe the the health care industry needs to learn more about the formulation of this product. The measure of pain mitigation is related to the combination of THC and CNB and amount used. It comes in different forms. In N.Y.doctors have to be certified to prescribe it. The 4 hour course is available online. My best relief is achieved by using 2 1T/1C capsules at bedtime and 20T/1C tincture drops at least twice a day plus 600 mgs of ibuprofen as needed. If I have to do anything that requires extreme mental acuity, I refrain from using it. It does make me a bit foggy. The benefits are not worth the cost but it until Big Pharma comes up with something more effective, this is it. I also have PT twice a week for balance and pain.

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I think she will, goodtime, because nothing else is doing the trick. There just aren't enough good options for chronic pain relief. Re: cost, not sure, she's in CA.

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goodtime376 | @goodtime376 | Apr 9, 2017

I would like to join the sub group for OA. I am rapidly going downhill with this. I get some relief from medical marijuana and 600mgs of Ibuprofen every 8 hrs or so. I take prilosec to counteract the discomfort from the Ibuprofen. No matter,pain or less pain I'm still very restricted in my activities and constantly fatigued. This has become a nightmare.

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1 reply
JK | @contentandwell | Apr 9, 2017

@coolrufus That really does sound like a strange outcome from an injury. I hope whatever doctor you are seeing will be able to help find the cause and do something to alleviate the pain.
JK

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