Chronic Pain members - Welcome, please introduce yourself

Hi to all! I've had CRPS in my left hand/arm for a year now. I'm interested in learning how others cope with CRPS...what treatments they've found effective for pain, insomnia, depression (due to coping with this illness and its consequences), and regaining limb function.

I'll share my experience: Last year, my pain was more bearable with a combination of nerve blocks, acupuncture, biofeedback, edema therapy, and mindfulness, and I had some functional improvement with OT & PT (including mirror therapy). I also found it useful to see a pain psychologist. I would recommend trying this type of integrated program if you have coverage. Although I was never completely without pain, it was at lower levels a lot of the time, and I felt like I was making progress. Plus, the practitioners all knew a lot about CRPS, so I could ask all my questions and get a lot of support.

Sadly, this year, my deductible is so high that I can't afford medical care or therapies. I'm only taking topamax, which takes the edge off somewhat and is thankfully cheap at Costco, but I have much more pain, stiffness, and depression than last year. I'm guessing it's because I'm not able to have any therapies. I am able to do my OT & PT exercises on my own, but have no guidance, and most of the other treatments are not "DIY".

I've tried everything to get over the insomnia, even a sleep hygiene class and sleeping pills, but no luck. The pain wakes me up even through sleeping pills. Does anyone have any advice or solutions?

Also, does anybody have experience with adaptive technology, to compensate for not being able to type with both hands? I can't type or do much of anything for long with the left hand, which affects my ability to work. I find voice recognition software glitchy and slow to use, but maybe some are better than others? I've also heard there are handwriting to text programs. Anyone have feedback on these?

Oh, and how do others explain CRPS to friends and family? I'd love to hear that.

I just keep hoping for this to go into remission...I'm sure you're all in the same place.

Thanks for reading this & please take good care of yourselves.

What is CRPS?

Hi to all! I've had CRPS in my left hand/arm for a year now. I'm interested in learning how others cope with CRPS...what treatments they've found effective for pain, insomnia, depression (due to coping with this illness and its consequences), and regaining limb function.

I'll share my experience: Last year, my pain was more bearable with a combination of nerve blocks, acupuncture, biofeedback, edema therapy, and mindfulness, and I had some functional improvement with OT & PT (including mirror therapy). I also found it useful to see a pain psychologist. I would recommend trying this type of integrated program if you have coverage. Although I was never completely without pain, it was at lower levels a lot of the time, and I felt like I was making progress. Plus, the practitioners all knew a lot about CRPS, so I could ask all my questions and get a lot of support.

Sadly, this year, my deductible is so high that I can't afford medical care or therapies. I'm only taking topamax, which takes the edge off somewhat and is thankfully cheap at Costco, but I have much more pain, stiffness, and depression than last year. I'm guessing it's because I'm not able to have any therapies. I am able to do my OT & PT exercises on my own, but have no guidance, and most of the other treatments are not "DIY".

I've tried everything to get over the insomnia, even a sleep hygiene class and sleeping pills, but no luck. The pain wakes me up even through sleeping pills. Does anyone have any advice or solutions?

Also, does anybody have experience with adaptive technology, to compensate for not being able to type with both hands? I can't type or do much of anything for long with the left hand, which affects my ability to work. I find voice recognition software glitchy and slow to use, but maybe some are better than others? I've also heard there are handwriting to text programs. Anyone have feedback on these?

Oh, and how do others explain CRPS to friends and family? I'd love to hear that.

I just keep hoping for this to go into remission...I'm sure you're all in the same place.

Thanks for reading this & please take good care of yourselves.

Hi I am Pat3316 and I am glad to be part of this group. I have been dealing with serious back pain for nearly a year. I look forward to reading others wh have similar problem and what they have found helpful.

Hi all, I'm 4 months into medical marijuana use for unremitting osteoarthritis pain not relieved by the usual anti-inflammatory meds. So far I've had mixed results. I believe the the health care industry needs to learn more about the formulation of this product. The measure of pain mitigation is related to the combination of THC and CNB and amount used. It comes in different forms. In N.Y.doctors have to be certified to prescribe it. The 4 hour course is available online. My best relief is achieved by using 2 1T/1C capsules at bedtime and 20T/1C tincture drops at least twice a day plus 600 mgs of ibuprofen as needed. If I have to do anything that requires extreme mental acuity, I refrain from using it. It does make me a bit foggy. The benefits are not worth the cost but it until Big Pharma comes up with something more effective, this is it. I also have PT twice a week for balance and pain.