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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

foxylady | @foxylady | Oct 6, 2016

Hello, I am Fran Clark, my name is misspelled in my e mail address my error. left out the r. I have renal carcinoma, tumor went to spine L2, L3 and now they are completely destroyed. from there, I have bone cancer, about 10 fractures (small) cancer broke clavicle, humerius
tail bone, and now 2 lymph nodes show cancer in my abdomen( I don't know what next will be. Little pissed off right now (sorry for the language).

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6 replies
edieguinn | @edieguinn | Oct 6, 2016
In reply to @foxylady "Hello, I am Fran Clark, my name is misspelled in my e mail address my error...." + (show)
@foxylady

Hello, I am Fran Clark, my name is misspelled in my e mail address my error. left out the r. I have renal carcinoma, tumor went to spine L2, L3 and now they are completely destroyed. from there, I have bone cancer, about 10 fractures (small) cancer broke clavicle, humerius
tail bone, and now 2 lymph nodes show cancer in my abdomen( I don't know what next will be. Little pissed off right now (sorry for the language).

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If I were you I'd be using much stronger language! There's no right or wrong way for you to think. I retired 2 years ago. Planned on spending more time with my grandchildren and then my back went south. I'm pissed too. This was not my plan nor is your situation yours. Just stay positive as much as possible. Staying down makes it worse. I speak from experience.

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foxylady | @foxylady | Oct 6, 2016

Hello, I am Fran Clark and I have pain all the time. Not much can help nerve pain, plus pain from the different cancers I have. Looking forward to share my story and read yours (maybe yours can help me) you never know. Thank you and God Bless

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Oct 6, 2016
In reply to @66693777 "Kelly I need some serious help....on 10/3/2013 my 17 year old son found me in my..." + (show)
@66693777

Kelly I need some serious help....on 10/3/2013 my 17 year old son found me in my bed face down un responsive he called 911 needless to say I was in very bsad shape .my family doctor had over prescribed me so many pain pills they put me on life support for a week..i was taking for back pain 360 10mg tablets of methadone ive never done herion and was taking this drug for over a year along with 180 30 mg oxycodone imm rel tablets 3 10 mg valium a day along with high blood pressure meds .they told my family my chances were not good my liver failed my kidneys failed septic shock nesdi among many other symptoms along with that came a NDE NEAR DEATH EXPERIENCE it had a profound impact on me and my family .I
have all my hospital records and my blood work came back negative on methadone oxycodone thc but positive for benzo did the narcon they administered have any affect on my blood test ...despertley seeking some explanation or advise my attorney is freaking out because I totally overdosed on methadone the doctors even told my family...please help''''''...BOBBY H

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Hi Bobby H,
I can hear the distress in your message. It sounds like you need professional help. You mentioned a lawyer. But have you spoken to a doctor about your blood test results? I'm also concerned for your safety. Are you safe?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 6, 2016
In reply to @foxylady "Hello, I am Fran Clark, my name is misspelled in my e mail address my error...." + (show)
@foxylady

Hello, I am Fran Clark, my name is misspelled in my e mail address my error. left out the r. I have renal carcinoma, tumor went to spine L2, L3 and now they are completely destroyed. from there, I have bone cancer, about 10 fractures (small) cancer broke clavicle, humerius
tail bone, and now 2 lymph nodes show cancer in my abdomen( I don't know what next will be. Little pissed off right now (sorry for the language).

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Hi Fran, you can correct you email address by going to your Account Settings here: https://connect.mayoclinic.org/account.

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Mentor
Jim, Volunteer Mentor | @jimhd | Oct 6, 2016
In reply to @kathyv "Hi, I'm Kathy V. I have had multiple spinal fusions, starting with one for scoliosis as..." + (show)
@kathyv

Hi, I'm Kathy V.
I have had multiple spinal fusions, starting with one for scoliosis as a teenager in 1969. I had a laminectomy in 1990, and in 2006 and 2007 I had two major spinal surgeries with anterior and posterior placement of screws and plates at L4 through S1. Since then, I have suffered with chronic regional pain syndrome in my right foot and leg. Even though I am on multiple medications, the pain is constant and severe.
I'm hoping that by taking part in this group that I might find some suggestions for relieving this neurologic pain.

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How much MS contin did your wife take to reach a level where it helped with her pain? I was up to 90mg, and that wasn't enough to soothe the pain. That was as high as my pcp would go because of the limits set up by the hospital system he's under, and then only with the recommendation of the pain specialist.

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edieguinn | @edieguinn | Oct 6, 2016
In reply to @edieguinn "Hi. So happy to find this group. I have severe scoliosis, spinal stenosis and nerve damage..." + (show)
@edieguinn

Hi. So happy to find this group. I have severe scoliosis, spinal stenosis and nerve damage in my legs. I've tried all methods of relief. Injections. Epidural. Not a candidate for implanted spinal cord stimulator. Spine is too curved. Looking for input from others. Don't want to do pain meds if possible. I'm 64

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What meds do you take and how do you function independenly on them?

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sjd416 | @sjd416 | Oct 6, 2016
In reply to @johnnyzee3 "Hello, my name is Johnny Zee3, and I have Peripheral Neuropathy, brought on by an extra..." + (show)
@johnnyzee3

Hello, my name is Johnny Zee3, and I have Peripheral Neuropathy, brought on by an extra Protein in the Bloodstream. My pain is very similar what Diabetics suffer, but I am not diabetic.
This protien was tracked for years, because if the count increased, it can lead to Multiple Myeloma. I have been blessed, because the count has remained stable. I am taking Gabapentin, Oxicodone, and Bayer Back and body, and I wear FentynalPatch. My pain is stable at this time.

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You said you ordered it. Do you get a prescription for it?, or just order online from C W Botanicals?

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lauriedr | @lauriedr | Oct 6, 2016
In reply to @johnnyzee3 "Hello, my name is Johnny Zee3, and I have Peripheral Neuropathy, brought on by an extra..." + (show)
@johnnyzee3

Hello, my name is Johnny Zee3, and I have Peripheral Neuropathy, brought on by an extra Protein in the Bloodstream. My pain is very similar what Diabetics suffer, but I am not diabetic.
This protien was tracked for years, because if the count increased, it can lead to Multiple Myeloma. I have been blessed, because the count has remained stable. I am taking Gabapentin, Oxicodone, and Bayer Back and body, and I wear FentynalPatch. My pain is stable at this time.

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@sistergoldenhair, no prescription is necessary. You order it online. If it says it is out of stock, call customer service and order it by phone. It has been selling so fast that for a while they switched to phone ordering only (for the cream, not the oil you put under your tongue.)

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Reneewise50 | @reneewise50 | Oct 7, 2016
In reply to @frank1 "Hi, my name is Warren. I have dry eye disease, whose cause has yet to be..." + (show)
@frank1

Hi, my name is Warren. I have dry eye disease, whose cause has yet to be determined (after 6 years). I don't have pain in the sense of "hurt", but I do have it in the sense of irritation that is constant any time I have my eyes open. For that reason it seems I am more similar and sympathetic to people who have chronic pain than other types of disorders. People do not understand how it feels to constantly have sand in your eyes, or large foreign objects, and burning, and when one looks--there's nothing there! When I leave home or go outdoors, I find that wearing a snug-fitting pair of high-school chemistry lab goggles help keep my eyes from drying out so fast helps, but it is humiliating, and you should hear the comments some people make! I've said enough for now, but I am so glad to be part of this group. I hope I can help some of you. Thanks. Warren

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Hi Warren, I'm Renee. I also had dry eyes like yours for approximately 15 years. I heard that some of my medications could be causing this, but passed it off as allergies and getting older. I'm 66. I was on amitriptyline as one of my pain meds.. to help me sleep. I started to develop heart arrhythmia right after taking it, so I stopped. What I discovered was my eyes were not as dry! So if you are on any medications, check the side effects. Maybe they can replace with another drug.
I still use Refresh PM eye gel at night. I swear by it! I also continue to use Refresh artificial tears for day. I found the REFRESH brand works best for me. In the winter I also use a humidifier by my bed.
Sorry to hear of your eye issues. I know how bad it can get, but what I have and still use has helped tremendously! Good luck!

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