Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@wbert93

I was doing physical therapy, but could not continue as was leaving half crippled and really not doing much. I am replying from the grocery store. Which i have made it half way though before back is giving me pain in hips and knees. Walking funny and I am sure making werid faces, people probably wondering what the heck is wrong. I am usually not one to think bad thoughts about myself but this is getting so old. The pain last night was so bad I struggled through hanging and decorating for Christmas with my kids.
I think my body is becoming immune to ibrophen or the pain is that much worse. I have another epidural injection scheduled at the end of the month but work is suffering because of my lack concentration. Sometimes I think I should be stronger than this. Oh well

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I can’t do PT either,as it REALLY puts me in chronic pain for a few days after. I have everything wrong with my lower back you can name. Every day the sciatic nerve on my right side is so severe, I find it difficult to go out and do basic things. Besides that, now I have Trigeminal nerve pain due to a dental procedure. I get very depressed because I know there is no cure, and the meds I’m on make me SO dizzy. Compound that with the back issues, and I just find life gets so hard some days. I’ve tried epidural injections, but they don’t work. My osteo arthritis is so bad at one joint it’s hard to get the needle in. I’ve had 2 specialists try, and it just didn’t work for me.
I wish I could say it’s a mental thing. When you are in this much pain every day, that’s hard to accept. I still try to be as active as possible and to stay positive. My doctor recommended me to a pain psychologist. She has helped me cope somewhat .
I wish you well!

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@wbert93

I was doing physical therapy, but could not continue as was leaving half crippled and really not doing much. I am replying from the grocery store. Which i have made it half way though before back is giving me pain in hips and knees. Walking funny and I am sure making werid faces, people probably wondering what the heck is wrong. I am usually not one to think bad thoughts about myself but this is getting so old. The pain last night was so bad I struggled through hanging and decorating for Christmas with my kids.
I think my body is becoming immune to ibrophen or the pain is that much worse. I have another epidural injection scheduled at the end of the month but work is suffering because of my lack concentration. Sometimes I think I should be stronger than this. Oh well

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Hey…any tips from pain psychologist?

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@wbert93

I was doing physical therapy, but could not continue as was leaving half crippled and really not doing much. I am replying from the grocery store. Which i have made it half way though before back is giving me pain in hips and knees. Walking funny and I am sure making werid faces, people probably wondering what the heck is wrong. I am usually not one to think bad thoughts about myself but this is getting so old. The pain last night was so bad I struggled through hanging and decorating for Christmas with my kids.
I think my body is becoming immune to ibrophen or the pain is that much worse. I have another epidural injection scheduled at the end of the month but work is suffering because of my lack concentration. Sometimes I think I should be stronger than this. Oh well

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Attaway!

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@sutherlin

Trust me, I’m pushing as hard as I can because I want to be there for my granddaughter. I keep walking and moving and going to the gym because I refuse to give up.

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Ditto!

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@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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I like Waiting for God and Fawlty Towers

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@wbert93

I was doing physical therapy, but could not continue as was leaving half crippled and really not doing much. I am replying from the grocery store. Which i have made it half way though before back is giving me pain in hips and knees. Walking funny and I am sure making werid faces, people probably wondering what the heck is wrong. I am usually not one to think bad thoughts about myself but this is getting so old. The pain last night was so bad I struggled through hanging and decorating for Christmas with my kids.
I think my body is becoming immune to ibrophen or the pain is that much worse. I have another epidural injection scheduled at the end of the month but work is suffering because of my lack concentration. Sometimes I think I should be stronger than this. Oh well

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I get your Grandchildren thing. But i am only 46 my oldest is 18 he better not be making grandchildren. I started pain syptoms 3 years ago. Progressively worse. I can’t even imagine what it will be like when i am in my 50s, 60s or 80s as i planned to live.

Liked by Catherine39

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@wbert93

I was doing physical therapy, but could not continue as was leaving half crippled and really not doing much. I am replying from the grocery store. Which i have made it half way though before back is giving me pain in hips and knees. Walking funny and I am sure making werid faces, people probably wondering what the heck is wrong. I am usually not one to think bad thoughts about myself but this is getting so old. The pain last night was so bad I struggled through hanging and decorating for Christmas with my kids.
I think my body is becoming immune to ibrophen or the pain is that much worse. I have another epidural injection scheduled at the end of the month but work is suffering because of my lack concentration. Sometimes I think I should be stronger than this. Oh well

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I understand. My chronic severe pain started over 15 years ago as scoliosis curve worsened. Couldn’t imagine future but here I am. You have to stay positive. It’s extremely hard especially if those around you don’t get it. I’ve prayed to die in my sleep some nights.

Liked by Catherine39

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@wbert93

I was doing physical therapy, but could not continue as was leaving half crippled and really not doing much. I am replying from the grocery store. Which i have made it half way though before back is giving me pain in hips and knees. Walking funny and I am sure making werid faces, people probably wondering what the heck is wrong. I am usually not one to think bad thoughts about myself but this is getting so old. The pain last night was so bad I struggled through hanging and decorating for Christmas with my kids.
I think my body is becoming immune to ibrophen or the pain is that much worse. I have another epidural injection scheduled at the end of the month but work is suffering because of my lack concentration. Sometimes I think I should be stronger than this. Oh well

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Was going to a therapist for various things but on the day of the appointments i would get high anxiety chest pains. Making things worse. I did learn some positive thinking and breathing exercises that help but sometimes it just doesn’t work.

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@wbert93

I was doing physical therapy, but could not continue as was leaving half crippled and really not doing much. I am replying from the grocery store. Which i have made it half way though before back is giving me pain in hips and knees. Walking funny and I am sure making werid faces, people probably wondering what the heck is wrong. I am usually not one to think bad thoughts about myself but this is getting so old. The pain last night was so bad I struggled through hanging and decorating for Christmas with my kids.
I think my body is becoming immune to ibrophen or the pain is that much worse. I have another epidural injection scheduled at the end of the month but work is suffering because of my lack concentration. Sometimes I think I should be stronger than this. Oh well

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I take 800 mg ibrophen 3 times a day. I take 120 mg ER once a day for Essential Tremors which i have had since i was young also which have gotten worse with age and pain. I take 300 mg gabapentin 2 times a day for tremors also. I use muscle relaxers for sleep at night. I am still working full time. I still have one child in junior high. I am positive most days i jave learned how to hide it from my family to a point. I find that when i get “flares” my work suffers. I recently had to take a month off work to see doctors to find a semi solution. My therapist at the time said i may have to go on disability. I am too young to be on disability. And pain really doesn’t seem like a good reason.

A small history …..i had knee surgery in 2009 for meniscus tear. About 3 to 4 years ago i was getting minor back pain for what seemed no reason. Had xray went to a specialist then he seemed to be nonchalant about it recommend epidurals then. But that seemed pretty extreme for minor back pain then.

Last Christmas i fell down some stairs just 4 or 5. At my inlaws. High ankle sprain .physical therapy for 10 weeks.

Beginning in july this year pain seemed to just hit me MRI prescribed by PCP at Banner Health. Took a month of work to try to get pain under control. My wife transferred all my care to Mayo. Neurosurgery recommended no surgery at this time. Sent to pain department. Had local injection did not work. Had epidural which seemed to take edge off. [Makes me sound like a druggy] now epidural wearing off. Counting the days to next appointment. Lower spine L1 to L5 bulging with tear on L4. T 1 to T3 slight bulge.
Missing an ibrophen dose makes for a following miserable day. Like this morning when we popped out of bed to run to the store to get stuff for the Christmas Party. Missed my morning dose. Oops.
I guess i should get another the counselor.
I just got sick of apointments. And went off anti depressants because of the side effect in the romance area. Which might have not been the best decision.

Tried physical therapy for back for awhile but it was crippling me for work. There has to be a better way. Quit drinking soda.
Trying to quit chewing tobacco. Almost eat a vegetarian diet. What else do i need to quit?

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@wbert93

I was doing physical therapy, but could not continue as was leaving half crippled and really not doing much. I am replying from the grocery store. Which i have made it half way though before back is giving me pain in hips and knees. Walking funny and I am sure making werid faces, people probably wondering what the heck is wrong. I am usually not one to think bad thoughts about myself but this is getting so old. The pain last night was so bad I struggled through hanging and decorating for Christmas with my kids.
I think my body is becoming immune to ibrophen or the pain is that much worse. I have another epidural injection scheduled at the end of the month but work is suffering because of my lack concentration. Sometimes I think I should be stronger than this. Oh well

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I’ve gotten worse over the past 30 years but been able to adjust each year. I’ve had 17 surgeries on my back and neck. I’ve the longest butt crack in the world. Each surgery made the chronic pain worse.

It’s helpful to meditate. It helps to relieve stress and muscle spasms. I also have medications for pain and autonomic peripheral neuropathy and fibromyalgia. They help but don’t completely resolve the pain. Morphine is a good breakthrough pain but difficult to get these days even from a pain specialist. Copays are expensive.

Hang on, you can adjust. Be strong for your self.

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It’s important to keep moving. I admire you. Remember the most important person to be strong for is you!

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@wbert93

I was doing physical therapy, but could not continue as was leaving half crippled and really not doing much. I am replying from the grocery store. Which i have made it half way though before back is giving me pain in hips and knees. Walking funny and I am sure making werid faces, people probably wondering what the heck is wrong. I am usually not one to think bad thoughts about myself but this is getting so old. The pain last night was so bad I struggled through hanging and decorating for Christmas with my kids.
I think my body is becoming immune to ibrophen or the pain is that much worse. I have another epidural injection scheduled at the end of the month but work is suffering because of my lack concentration. Sometimes I think I should be stronger than this. Oh well

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@wbert93. I had to go on disability when I was 55, and all 5 of my siblings had to do the same, some younger than I, and for good reason. A large part of our problems are hereditary back issues. Being on Social Security Disability doesn’t mean a person is milking the system, not when you need to, and can’t physically continue to work.

I understand the side effects of antidepressants. I lost my libido two years ago, and it’s hard on our marriage, especially for my wife. It doesn’t do much for how I feel about myself. I take Bupropion because it’s not supposed to affect sex drive. There are several like it, and your doctor might help you find one that won’t stop the romance.

Liked by blindeyepug, kayelle

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Hi I am Sheila and have cauda equina. Am I in the right group?

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@sheilaocronin

Hi I am Sheila and have cauda equina. Am I in the right group?

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Hello Sheila, and welcome to Connect. Thank you for introducing yourself to the other members of the Chronic Pain group. The chronic pain group is for members who experience consistent pain on a daily basis that is caused by lots of different ailments. This group is to talk about the pain that you experience from any illness or issue and how other members cope with that pain.

You may wish to also check out the Brain & Nervous System group (https://connect.mayoclinic.org/group/brain-and-nerve-diseases/) which is what cauda equina would fall under. You may want to participate in the brief discussion that was started on cuada equina syndrome a few months back as well, http://mayocl.in/2aWudfX.

If you have any additional questions about how to become a member of a group, post a discussion, or reply to a message, please do not hesitate to send me a personal message by clicking on my name and then clicking on the blue envelope symbol and sending me a message that would be between only you and I.

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@wbert93

I was doing physical therapy, but could not continue as was leaving half crippled and really not doing much. I am replying from the grocery store. Which i have made it half way though before back is giving me pain in hips and knees. Walking funny and I am sure making werid faces, people probably wondering what the heck is wrong. I am usually not one to think bad thoughts about myself but this is getting so old. The pain last night was so bad I struggled through hanging and decorating for Christmas with my kids.
I think my body is becoming immune to ibrophen or the pain is that much worse. I have another epidural injection scheduled at the end of the month but work is suffering because of my lack concentration. Sometimes I think I should be stronger than this. Oh well

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Amen! Truer words have never been spoken. (Okay, this was a reply to someone who gave thanks for our veterans and quoted the bible “truer love hath no man then to lay down his life for another”). Sorry if anyone misunderstood or took my reply the wrong way. I am a big supporter of our veterans. They deserve the best available medical care wherever they can get it at NO cost. This is what I strongly believe.

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