Chronic Pain members - Welcome, please introduce yourself

Hello oldkarl sorry for all your pains but I hope you will find some comfort on this sight

Hi, Edieguinn! I, too, have severe scoliosis, spinal stenosis and I also have rheumatoid arthritis throughout my system. I have a LOT of pain and I do suggest for you to take pain meds as they really help to relax the muscles around the problematic areas. I also suggest "Structural Body Integration" or "Rolfing" as a method of massage therapy and pressure point work -- please do an internet search to find a practitioner in your area who is well trained in this process. My Mayo MRI actually showed somewhat of an improvement on my two 30 degree curves after I did the process!!! I am still hurting a LOT but not as much as I did before, so it is worth it! Best wishes! VickieKay

Hello Old Karl, thank you for sharing more about yourself with other members on Connect. Here is a list of existing discussions regarding some of the ailments you listed that you may find helpful:

- AL amyloidosis http://mayocl.in/2dOVhlz
- Persistent headache http://mayocl.in/2dNTLL6
- Thyroid cancer http://mayocl.in/2cWBk64
- Spinal stenosis http://mayocl.in/2dNExX0
- Ankylosing spondilitis http://mayocl.in/2dvmQk2

Each discussion may offer insight on some similar symptoms you are experiencing, as well as connect you with other members who have experiences similar to yours.

Thanks much for the discussion board info. Actually, right now the biggest problem I have is the lousy Mayo software which blocks me from signing in. I can get on about one time each week.

Hello everyone. I am a 50 year old email with several chronic pain issues. RSD in foot/leg , Degenerative disc disease in my back, and trigeminal neuralgia in my face. I have had RSD since 1998. I am on Disability (after quite a struggle). I thought I would check in here and check out the topics and make some new friends hopefully.

Thank you for your suggestion. I'll give it a try.<br><br>

Kelly I need some serious help....on 10/3/2013 my 17 year old son found me in my bed face down un responsive he called 911 needless to say I was in very bsad shape .my family doctor had over prescribed me so many pain pills they put me on life support for a week..i was taking for back pain 360 10mg tablets of methadone ive never done herion and was taking this drug for over a year along with 180 30 mg oxycodone imm rel tablets 3 10 mg valium a day along with high blood pressure meds .they told my family my chances were not good my liver failed my kidneys failed septic shock nesdi among many other symptoms along with that came a NDE NEAR DEATH EXPERIENCE it had a profound impact on me and my family .I
have all my hospital records and my blood work came back negative on methadone oxycodone thc but positive for benzo did the narcon they administered have any affect on my blood test ...despertley seeking some explanation or advise my attorney is freaking out because I totally overdosed on methadone the doctors even told my family...please help''''''...BOBBY H

The doctor who prescribed this is one of the reasons is one of the reasons other doctors won't prescribe a safe and proper dose of medication for those who need it. I am so sorry this has happened to you. On top of your very bad pain in your back you will have to deal with this. I hope you get some good help.

Hi, I'm Kathy V.
I have had multiple spinal fusions, starting with one for scoliosis as a teenager in 1969. I had a laminectomy in 1990, and in 2006 and 2007 I had two major spinal surgeries with anterior and posterior placement of screws and plates at L4 through S1. Since then, I have suffered with chronic regional pain syndrome in my right foot and leg. Even though I am on multiple medications, the pain is constant and severe.
I'm hoping that by taking part in this group that I might find some suggestions for relieving this neurologic pain.

Hi @kathyv Nice to make your e-acquaintance here. I am sorry to read of all your spinal problems. I am Scott and my wife had six spinal surgeries prior to her fight with brain cancer. She had surgeries similar to what you describe. Laminectomy, two fusions, and then also the posterior/anterior major with rods, screws, etc. With her the screws began to push through so she had to then have it all removed. Long process and loads of chronic pain as a result.

She went through a lot of pain, pain clinics, PT, OT, etc. Little helped for her pain other than MS Contin. Later she did find that gabapentin helped with her very difficult leg pain. She also found an air mattress bed was a significant help.

Wishing you the best!