MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Yes! Speak up and advocate for yourself. I’ll be cheering you on from the sidelines.
You’ve got this.
Patty

Thank you so much for your response. I will seek a second opinion. I also forgot to mention that my nephrologist was very concerned. He even told me that he thought there was cancer somewhere and told me to talk to my oncologist and I did. The response was the same from my oncologist. It could be something totally different. But whatever it is, it needs to go. I'm miserable! I'll talk with my PCP and ask for a new referral. I feel encouraged now to advocate for myself.
Again, thank you!!!

I was a medical social worker for the last 15 years of my career, and I find it offensive that your oncologist hematologist only allows you 10 minutes. You need to find a similarly trained physician who will spend the time with you to assure you about what is going on with your blood work. That’s not right. You’re very generous to think of the other patients but you need to be thinking about you and what you need.
Is there a support group in your home community or can you find someone on this board who is from your home community? Surely someone knows a physician that has some humanistic skills in your area.
I don’t want a physician who will gaslight me, or make light of my diagnosis and risk associated in treatment but I want a physician who will spend enough time with me to answer all my questions, and who I can trust to give me a straight answer while at the same time being kind.
You might want to consider getting a second opinion from a recognized treatment facility that specializes in multiple myeloma.
The nice thing about this board is that there is a wealth of experience in dealing with treatment for MGUS… Watching and waiting… Smoldering multiple myeloma and unfortunately also multiple myeloma. It’s good to know that I have support and people I can go to if I have questions but I am absolutely insistent that I have a doctor that spends the time with me needed to educate and me.

I am in the same situation. I have one gem of a physician in my rheumatologist. BUT, limited on time. My PCP works for the healthcare system and I am free to view my chart with test results, and message questions, but, even simple questions I have had, the nurse doesn't know as much as I do. That's frightening. MY PCP spends his allotted 15 minutes and does not answer messages if he can help it. I have watched my blood work go up and down over the past six or nine months and even I could tell something wasn't quite right. So, a few weeks ago, I had a bad fall. It had to be bad or I would never have gone to the ER. But, it was and I did. Nothing broken, thank goodness. Bad bruising on internal organs. I have been in a lot of pain already with rheumatoid arthritis and was trying to get back up on my feet with my good doctor's help. That being the case, I did not pay attention to my CAT scans that were done in the ER until two weeks ago. Imagine my surprise when the radiologist was thorough enough to mention both my Dextacardia and Scoliosis, congenital AND a new problem. As with @pmm, I worked in the Health Insurance industry as a Business Analyst for forty years and I have a good medical vocabulary. And knowledge. So, according to the radiologist's report, I have a build-up of Hemosiderosis. It is, if I understand it a build-up of iron. I am not sure which part of my upper body he meant, BUT both my PCP my rheumatologist, AND my gastroenterologist were told, by ME, that I had fallen and that they needed to read what he wrote. My PCP was not happy. My rheumatologist was shocked and told me to have my PCP or a hematologist do certain blood tests. Which irritated my PCP even more. Just let me say this, if you don't fight for yourself, the next time they don't go over your reports, or don't review your labs or radiology even from another doctor, you could find yourself in the worst-case scenario. I think doctors are pushed to limit their time with us. Well, that is too bad. I don't mind if I am going for a maintenance visit. Tell your doctor you want to understand your lab results better for your own edification and can the nurse call you with them. And the internet is a good place to start. But forums here are a good place to get support. They don't like us using Facebook but guess who helped me the most with RA? Take care and ASK anything you want to know.

in reply to @evergreen2022 I recently gave access to all of my medical records to my former rheumatologist, who is now a friend since she retired, and last Sunday we talked about her "differential diagnosis" and those items she found interesting in the review of all of my tests. Obviously, my doctors kept rerunning the same tests, getting the same results. She is a fantastic diagnostician to say the least, and her assessment was that I have something called Scleroderma Limited, which I plan to discuss with my PCP in a couple of weeks. This diagnosis makes absolute sense, as I have many of the features of this autoimmune disorder. Finally someone who knows how to interpret test results, take the time to consider what they all mean as a "whole" and come up with a diagnosis that no one had even considered previously, including a rheumatologist I saw a few months ago, and who's only question to me was whether or not I had bubbles in my urine. LOL.
I too have had to ask my PCP to run certain labs at the behest of my friend, who is still highly respected at Sutter, even though she has retired. I may have mentioned that she asked me if any of my clinicians had done a complete exam, of which I responded, "no." One time several months ago I made an appointment with my PCP regarding my ankles that swell up when I wear socks. He could have very easily reached down and checked my ankles while I was laying on the examination table, but did not. However, he sent me a message the following day that I had to come back in so that he could take a look at my ankles. Go figure.
We are all aware of how much medicine has changed for the worse, and is not expected to improve any time soon, right? I have learned to become a good advocate for myself, but sometimes it is downright exhausting. I mean, really, "come back in so I can check your ankles."
I like you, have more than a layman's understanding of medical stuff, having worked in the insurance industry for many years, and having to pour through volumes of medical records so that I could understand and evaluate a person's claim for injuries that would knock your socks off. I also lived with a critical care nurse for ten years, and that in itself was an education.
I recently took a survey for the Immunodeficiency Foundation, another very good site, and several questions addressed whether or not I had confidence in my doctors, which I do not. Sadly, one has to really learn to navigate the system, often alone and without resources.
Thank you for your great post.

@jart, I would like to bring @gingerw @justnate @loribmt and @packgb19 into this discussion to help answer your questions or even to help you to formulate questions to ask the cancer care team.

I can see that you are concerned about the treatment protocol being "only" watchful waiting. I prefer to refer to this as active surveillance. Watching waiting doesn't mean do nothing. Instead it refers to not administering treatment that could potentially do more harm than good in the early stages of a condition that may progress very slowly.

Did you discuss the blood and urine tests with the doctor yet?

Ich habe MgG lambda. Möchte aber doch etwas dagegen tun. Welche Möglichkeiten habe ich
außerhalb der wissenschaftlichen Medizin?

Ich habe MgG lambda. Möchte aber doch etwas dagegen tun. Welche Möglichkeiten habe ich
außerhalb der wissenschaftlichen Medizin?