MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

I am trying to do just that! Thanks for your thoughtful response. I just really don't do well with the "unknown". I do better when I have a plan of action.

I was diagnosed with MGUS a year ago when my internist noticed my protein was slightly high. By slightly I mean barely above range. I too was shocked and frightened. I have a slightly different thought about Dr. Google. It helped me to have something I could obsess over until I understood there were a million caveats to an article. I did like reading to become educated on terms and nuances of MGUS. I feel like I had better questions and understanding of the condition because of the effort to educate myself. I was still frustrated after my first visit with an oncologist who I knew was experienced with multiple myeloma. He recommended the wait and see approach with follow up bloodwork in 6 months. Once I thought it over I realized while I may think it is very bad in the bigger picture I was not as sick as Dr Google had led me to imagine. I decided it wouldn’t do me any good to worry until the next visit. My numbers did go up slightly but in that period of worry respite there were days I even forgot about it. I am much more comfortable with it now even though I am constantly mindful of infections etc . I do think I have more than in the past although not sure it is related. I just pay attention more and ask for earlier intervention if possible so I don’t stress my immune system worse. I would be lying if I didn’t say it was in the back of my mind as a new reality just not a dominant thought.

Hi Robin,
Yes I am exactly like you! I have no symptoms. Slight back ache, which goes with exercise. My liver and kidney function are also perfect. The reason I got tested is because we found out just before Mum died this February at 83, she had multiple MM.
I am two weeks in. Very scared, struggling to sleep and having full on panic attacks!!! I am waiting to see the haematologist- 3 weeks to go! They have suggested it could be smouldering myeloma. I’m being told from the few friends and family I have told to keep positive as it might only be MGUS. I feel like screaming is that all!! I’ve just watched my mother die and now realise why she had all these complications!!! But I suppose though 83 isn’t a bad age!
it is really good that Your haematologist says not to worry. I know that’s not much, but it is a little bit of hope. Keep doing what you’re doing if you’re healthy in every other way.
Sending a huge hug X

They ALWAYS say don't worry because it's NOT THEM!!! He also hadn't seen my follow-up bloodwork. I live my life with my glass half full all the time. 20 years ago I was dx with stage III colon cancer and I knew I would beat that, I DID. This just came out of nowhere, no connection! I'm just so disappointed and angry. It's like lightening striking twice but for no good reason. Anyway, thanks for your very kind words. I can tell you this much, staying positive and prayer are very important. God does listen ❤️

Haha yes and I’d probably say the same ish thing if it was someone else!!!!
That’s incredible you beat colon cancer. If you can beat that you can keep this at bay. You’ve inspired me! There is hope!
I am angry too, absolutely pissed off in fact!! I’ve just turned 50 and thought I was fit and healthy, i exercise and eat well. I don’t have a faith but I do believe our minds can do incredible things..
Have you had any scans, or a bone marrow biopsy yet?

No I've had none of those yet. I just had my 60th birthday and won the title of Mrs. Classic Universe. I was having a pretty epic year. I wasn't too concerned until I saw my light chain levels. I honestly think I'm just odd. I am quite anxious to hear what he has to say. I'm trying to stay positive but I honestly just have no idea what to think. Praying for the best. I have so much left to do ♡

Hi, it might be your levels aren’t too concerning yet to do them. Not that I would know.
I’ve read they do urine samples in America. Apparently here in NZ they don’t anymore.
Keep your chin up and keep everyone posted : ))

@robinrossrn @amossarah @a4alicat It's easy to do the Dr. Google thing, and read many negative statements, from many different sources, that are not always scientific or credible. And it's also very easy to "awfulize" everything. We learn to be aware, to take care of ourselves as best we can. Take each level, each appointment, each discovery, and fit it into our lives. What one person experiences, another may not. We may have other health issues, also, that play into the picture. So glad we are here as a group, to share and support each other.
Ginger

I absolutely agree with you. I could not have said it any better myself. ♡

What caring lovely words. You’ve put a smile on my face. Thank you 💜