Silent Reflux or LPR

Thankyou for your kind input. I did not mean to imply that it went away during the day, it just seems to be noticeably worse in the morning and in the late afternoon and early eve. When I saw ENT he literally said this is not an ENT issue, you need to go back to GI. and he did nothing. The GI Doc said " I am ordering two tests, and if they don't show anything, then I can order a third test which is very painful, and you cannot be sedated for it, so think about it." He made me feel like I might be exagerating, and warnining me of "Punishment". Next time I saw the PA and she switched my Prilosec to Prevacid as if that might make it better. It did not. I see her again next week. All I can say is that she is much kinder than the GI Doc. But I think I need to shop around.

If you do have LPR it is an ENT issue. While waiting to find a responsive doctor, you can read the web site of ENT Dr. Jamie Koufman on LPR and acid reflux. She has good explanations and actionable advice. She had a video this past Wednesday on her FB page in which she said that LPR is a lifestyle condition, and you need to make lifestyle changes to address it. She gave a multi-step detox program in that feed. So look her up on the web and FB and see if what she says makes sense for you. You can also join the acid watchers warriors FB group; they have a ton of low-acid recipes. you can also look up the advice of Dr. Aviv, who also wrote a book on LPR, as did Koufman. Good luck!

Thankyou all so much. I did go to a YouTube channel and listen to her talk. I may order her book. Interesting that I should learn more here than at the Physicians office.What is the acid watchers FB group?

I have been learning a lot more from online discussion boards and FB pages than in doctor offices! Here is the link to the acid watchers warriors group. They follow Dr. Aviv, who also offers a low acid diet (Koufman says hers came out first). I bought Aviv's books before I read the Koufman and acid watchers FB pages; I think I could have got by without the book just by reading the free stuff online. Here is the link, which offers great recipes in its files, so you can do the low-acid, low-fat diet without spending months eating just cantaloupe: https://www.facebook.com/groups/199013402360712

After trying traditional medicines, homeopathic methods and dietary changes for the past nine months with no effect, I will be having the Bravo meter implanted via endoscopy this Friday. My new GI doctor, who is a good listener, explains that we need to know the PH of my digestive tract in order to best treat what I have felt to be silent reflux resulting in chronic sore throat. But it could be low acid, who knows. I will report back after having this device in me until early next week.

Hoping this will be helpful to others. Cindy

I have completed the four day Bravo meter test. An acid monitoring capsule is planted on the wall of the esophagus via endoscopy. Patient keeps a device within close range and presses appropriate button when feeling a symptom of reflux and also when sleeping and eating. My only symptom (sore throat) is constant so I wasn’t pressing button in the manner some people might. Still the capsule did it’s job.

I had my follow up consult with my GI doctor and she was able to show me on a graph the times and duration that I was (unknowingly) experiencing reflux. My PH level is 5-6, so slightly acidic but enough to do damage. She is prescribing famotidine twice a day, which I will do. I also plan to continue my homeopathic methods for esophageal healing referenced in my above thread. My doctor also said I need to sleep at a 45 degree incline! Purchased a wedge pillow and we’ll see if I can learn to be a back sleeper-challenging.

My out of pocket for this test was $350 with Medicare Advantage plan. I hope this is helpful. Cindy

I just found this forum. So much useful info for LPR. I was just told yesterday at Mayo in Jacksonville that I have LPR after a 3 year 9 month journey with so many drs and tests by local drs in Brevard County. I had the esophagram done yesterday and they did the camera scope down my nose and throat. Going on some meds but I’m reading that it’s not good to take the H2 blockers & PPIs longterm😲🤦‍♀️ so not sure how to proceed with that issue. Just trying to get all my symptoms under control for now. I’m always choking on thick mucus and also have developed a bad pain in my ear and it feels/sounds like I’m on an airplane in that same ear. I’m getting really bad headaches too that lasts for days. I haven’t read anyone else’s posts having those symptoms but the all started together. Mucus/choking first in Jan 2020 then bad headaches started in March 2020 then the ear issues about a year and a half ago. Before Jam 2020” never had any of these problems. Really hoping and praying for a long term solution since it can possibly lead cancer if left untreated for a long time. A sinus ENT at Mayo told me it’s LPR so now I’m hoping to get a good Gastro Dr to treat it.

I just found this forum. So much useful info for LPR. I was just told yesterday at Mayo in Jacksonville that I have LPR after a 3 year 9 month journey with so many drs and tests by local drs in Brevard County. I had the esophagram done yesterday and they did the camera scope down my nose and throat. Going on some meds but I’m reading that it’s not good to take the H2 blockers & PPIs longterm😲🤦‍♀️ so not sure how to proceed with that issue. Just trying to get all my symptoms under control for now. I’m always choking on thick mucus and also have developed a bad pain in my ear and it feels/sounds like I’m on an airplane in that same ear. I’m getting really bad headaches too that lasts for days. I haven’t read anyone else’s posts having those symptoms but the all started together. Mucus/choking first in Jan 2020 then bad headaches started in March 2020 then the ear issues about a year and a half ago. Before Jam 2020” never had any of these problems. Really hoping and praying for a long term solution since it can possibly lead cancer if left untreated for a long time. A sinus ENT at Mayo told me it’s LPR so now I’m hoping to get a good Gastro Dr to treat it.

Get breath test for SIBO…I was told I had LPR, ended up having SIBO…..it is a simple breath test to make sure what you have. Treatments are quite different however.

I have completed the four day Bravo meter test. An acid monitoring capsule is planted on the wall of the esophagus via endoscopy. Patient keeps a device within close range and presses appropriate button when feeling a symptom of reflux and also when sleeping and eating. My only symptom (sore throat) is constant so I wasn’t pressing button in the manner some people might. Still the capsule did it’s job.

I had my follow up consult with my GI doctor and she was able to show me on a graph the times and duration that I was (unknowingly) experiencing reflux. My PH level is 5-6, so slightly acidic but enough to do damage. She is prescribing famotidine twice a day, which I will do. I also plan to continue my homeopathic methods for esophageal healing referenced in my above thread. My doctor also said I need to sleep at a 45 degree incline! Purchased a wedge pillow and we’ll see if I can learn to be a back sleeper-challenging.

My out of pocket for this test was $350 with Medicare Advantage plan. I hope this is helpful. Cindy