Heart Rhythm Conditions – Welcome to the group
Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.
I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
Thank you so much for your response. I agree with everything you said. I am 76 now so I don't have a lot of years left in this old body. Mostly for me, it's the unknown that bothers me. I know that with having AFIB there is no cure. Best we can hope for is no ER runs or hospital stays. I was hoping for no surgeries but it has to be done so let's get on with it. I will not delay this decision like I did with the Watchman. Best of luck for all who suffer from AFIB. You are not alone and there are many of us out here that are in the same boat. Worse part is the lack of good, quality information out there.
This is the best article I have found that describes the ablation procedure. It actually tells you what to expect. If anyone is going to do an ablation, I would suggest reading this.
https://www.massgeneral.org/assets/mgh/pdf/heart-center/patientguidetopvi.pdf
That article does a good job of explaining and educating. I can see slight variations in protocol between my two ablations and what is described, but they are minor. Two that stand out are the purported duration of the procedure (which necessarily also means of the anesthetic) and the requirement to catheterize the bladder. In both of my experiences, the procedure lasted approximately 90 minutes and I was not advised that it would require my bladder to be drained while I was under. Obviously, with an IV drip running since admission, a four hour procedure would indeed require relief for the bladder.
Thank you for this group. Might get more answered than from cardiologists that have blown many off. Times have changed in our area, it’s less than a 15 min appt. Waiting on a monitor for 3 months.
Was told 5 years ago, tachycardia. Was placed on one , 30 mg of Dicyclomine. Did not work. Was pushed off to another cardio, Flecainide but it raised my Bp and pharmacist was livid, black box warning. Flipped to electrocardio, waited 8 months, saw him 8 mins told me it’s my pain med from a botched TKR 2 years ago. Not a revision candidate. Pushed to another cardio , powder puffed it and my husband who is still experiencing pain AFTER s stent out in, which was 80% blocked with soft placque to 85% hard.
Having internal shaking, weak, heart going, Bp up and Bp can drop. Being tested for low cortisol since January, yet to only have a telemed appt. Is this what our country has come to? Thought, hey maybe stress and it’s in my women’s head, but everyday meet people who have no faith at all in our medical system.
Seen 3 nuero, Gastro’s, number cardio’s. Just playing with meds. Sending letter of intent to electrocardio for his remarks. This HAS ruined my health care. Today in blood lab, frequent flyer, 3 rd time this year. No babe, sweet thing paying your salary. Place was dead!
Anyone experiencing this, palpitations, weakness, heart going shaking, crashing in afternoon till 8 pm.
If you say it’s my pain med from 2 years ago, take ONE 3/4 of the pill a day. Don’t go there. Been 5 years.
Thank the insurance companies and Government. I can understand your frustration.
Are you taking glucosamine chondroitin and plant-based collagen (hyaluronic acid)?
I have knee osteoarthritis and have no pain, only for a day or two when seasons change.
It is worth a try.
I wonder if you might be deficient in either, or both of, magnesium/potassium. Both are critical for heart function, and some of us seem to be off the marks, either high or low. It might be worth a look. If you get agreement from a cardiologist, he should want an RBC level indication, not just serum levels...in the blood. You want to know how much of it is being absorbed and used.
It pains me that you seem to get no relief or credibility from a series of specialists. My advice would be to continue to look, even to travel if you must. Sometimes teaching hospitals affiliated with universities are the best places to go.
Also, and I hate to say so, but there are times when you'll get the best diagnostics at an ER. Keep looking for a sympathetic cardiologist, but in my experience an electrophysiologist is whom you need to see to get the very best care for a heart with palpitations.
I have not tried glucosamine/chondroitin or collagen. Will give them a try and see if it helps. Thank you!
I was interested in your “8 pm”. Me, too! What do you attribute this to?
The electro cardiologist was a 6 min appt. No touch! Said it was my 3/4 or 7 mg of pain med from a bad total knee replacement which been to 3 other Ortho’s saving a revision would be disastrous. Called ins co on that visit, no pay!! Have new cardio, seeing for 3rd time tomorrow. Bp all over the place. Just had 10 min telemed from endo , hour late, my cortisol is fine. That took a year. So my faith even in the ER is not there. Hubby was in 5 times with upper stomach pain, had all testing except CT of the heart, on 5 th visit I with my fist broke the counter, got the CT. Then he went home again. Pcp calls next day, he saw the CT…..widow maker. Rushed in had open heart. Surgeon was mad as hell! Could have been dead in 4 hours. So my faith in health care is gone