Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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I have them for a long time, I don't have the COVID vaccine. Just last week had another MRI this time in my neck and find I have a partially missing SELLA that it got something to do with the Pituitary and can gives you headaches, dizziness but don't know if it can give me those inner tremors will keep looking to see if it can give this

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Why is every post so old? 2018-2019?

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@khali

I have them for a long time, I don't have the COVID vaccine. Just last week had another MRI this time in my neck and find I have a partially missing SELLA that it got something to do with the Pituitary and can gives you headaches, dizziness but don't know if it can give me those inner tremors will keep looking to see if it can give this

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I have Empty Sella that I believe is from a concussion I received on 8/5/22, and I have developed tremors. They can happen anywhere in my body, but most of the time they are in my chest, hands and neck. Extremely annoying.

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@sheeva888

I take Diazepam, Gabapentin, medical marijuana and IVIg every 5 weeks (3 days each time). Were you diagnosed with Stiff Person Syndrome?

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I started vibrating about 3 years ago. My entire body and i couldn't control it. I was dxd with SPS PERM in 2017. I'm on valium but neuro added Keppra 3 times a day. It stopped it until a few weeks ago. It pops up all over my and feline i have cellphone vibrating. . Currently my right foot and calf is vibrating enough to be felt on the outside. This episode is going on so long it burns

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@l8ydrgn

I started vibrating about 3 years ago. My entire body and i couldn't control it. I was dxd with SPS PERM in 2017. I'm on valium but neuro added Keppra 3 times a day. It stopped it until a few weeks ago. It pops up all over my and feline i have cellphone vibrating. . Currently my right foot and calf is vibrating enough to be felt on the outside. This episode is going on so long it burns

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Have you discussed any IV treatments with your doctor? If you are willing to share, who is your neurologist?

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@sheeva888

Have you discussed any IV treatments with your doctor? If you are willing to share, who is your neurologist?

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I've tried all the IV treatments and my body rejected them. So not an option.

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@l8ydrgn

I've tried all the IV treatments and my body rejected them. So not an option.

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Do you qualify for any current studies considering your body hasn’t responded to any IV treatments? Maybe stem cell?

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@sheeva888

Do you qualify for any current studies considering your body hasn’t responded to any IV treatments? Maybe stem cell?

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No because while i have a low amount of GAD65 in considered a Sero Neg which are not considered for the current testing. No one is testing the Sero Negs, which in our opinion might hold a better answer to the dias as we don't babe the same blood that they're testing

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@l8ydrgn

No because while i have a low amount of GAD65 in considered a Sero Neg which are not considered for the current testing. No one is testing the Sero Negs, which in our opinion might hold a better answer to the dias as we don't babe the same blood that they're testing

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I have “atypical” SPS as I am GAD negative. I never qualify for any studies either. It’s quite frustrating. I see Dr. Marinos Dalakas in Philadelphia. He has been studying SPS for a very long time and still conducts studies.

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@sheeva888

I have “atypical” SPS as I am GAD negative. I never qualify for any studies either. It’s quite frustrating. I see Dr. Marinos Dalakas in Philadelphia. He has been studying SPS for a very long time and still conducts studies.

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And that's my problem there's no doctors on the west coast. I am excited that a new neuro is hung who is a movement disorder specialist.

Btw you bit having any GAD65 makes you a sero neg like me there's about 25-30% of us you'd think that would be a high enuf population to study. Many of us believe that number to be much higher due to mis dx

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