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Kommerell’s Diverticulum with aberrant right subclavian artery
I have a right facing aorta with an abhorrent left subclavian artery and a kommerellis diverticulum. I have had one surgery and am looking at more. My question/query is this: does anyone with a heart condition get heart pain just from talking? The more I talk (just with friends, on the phone etc) and the louder I talk increases my pain. My surgeon is suggesting now that I might have an aorta which is attached to my breastbone and I might now need an aortapexy - symptoms being the talking issue. Anyone familiar with this? ☺
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@pinkcarmen, I had no symptoms. It was only found incidentally because of my other congenital symptoms. In fact I would not had it repaired if it hadn’t been in the way- I had a large kink in my aorta and the ARSA just happened to be where the graft would end, so they had to move it. I had no rings, or aneurysm. I was told this is why it is rare- more patients with ARSA are like me- no symptoms and never know they have it. It is also why when diagnosed it’s probably not taken too seriously or investigated properly by some drs. But you know your body and symptoms- and yours is definitely impinging on other structures- keep reaching out to other places for more opinions. Have you had a CT angiogram? Or Swallow studies, I had MRI, and CT scans to really visualize mine, they were able to say for sure no ring and no other structure involvement- so more studies may help secure your diagnosis as well. Hope this helps!
Jeane
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1 ReactionOk, so, I had surgery to repair both left & right aberrant vessels Nov 2022, TEVAR to place stents Apr 2023.... no one and I mean NO ONE said to me (or my husband) that the symptoms could or would return. Because the dysphasia is back like it never left. Had yet another barium swallow yesterday (radiologist said: oh, you're back? yes, yes I am) which showed the stump of the ARSA w/ stent (still) pressing into my esophagus. -prior to the study, I asked the surgeon about the symptoms was told: "We do often see that symptoms either never get better or reoccur after treating the aneurysm due to the changes on a muscular level from the chronic compression." Well, that would have been nice to know. Also having upper endoscopy Nov 1st so that'll be a hoot.
Anyone else run into this?