Encephalomalacia, anyone?

Yes, I had brain surgery and I have encephalomalacia in the cerebellum and it spread to the left side of the brain.

My daughter had brain surgery and encephalomalacia appeared on her cerebellum right after surgery. A year later it has spread to the left side of her brain.

I had an MRI dec 22,2022 and it showed encephalomalacia. any one else experience symptoms . how are you dealing with your situation? this was possibly caused by a few TIAs (mini strokes. I have problems with balance, walking, dizzy, drowsy. having vision problems.

hi precious23, what are your symptoms with encephalomalacia. how are you feeling.

Hello, hopefully you still check in on this site. I am having all the symptoms you had, and my mri said encephalomalacia, they said due to a traumatic brain injury(which I have never had) Having a hard time getting my neurologist to diagnose me. Wondering if you were able to get a diagnosis?

Hello,

I have been having migraines since about April that last 3-4 days, chronic fatigue, memory problems that shouldn’t be there because I’m only 30. I had a closed brain fracture at the age of 4 years old, over 26 years ago. On a recent MRI that I had I was diagnosed with encephalomalacia in the frontal lobe of brain that spreaded bilaterally. Anyone know why this progresses? What makes it stop? Comparing it to the MRI from 2018 it was very minimal volume loss. Now it’s progressed to this diagnosis. Any have any similar symptoms? Please anything would help. Thank you

Hello @ahsngsvg and welcome to Mayo Clinic Connect. You will notice I have moved your post into an existing discussion on the same topic, which you can now find here:
- Encephalomalacia, anyone?: https://connect.mayoclinic.org/discussion/encephalomalacia-anyone/

I want to connect you with members in this discussion so you can share. Members @tadams1129 @robertkerman @precious23 and @truetaz may be able to rejoin and share more.

Have you had any known mini-strokes or stroke symptoms recently or over the years?

Hi, I had a craniotomy in 2013. Recent MRI showed encephalmalacia/gliosis. Dr in hospital told me it's serious and to talk to my neurologist. Neurologist said it's nothing more than scarring and not a big deal. Not sure what to believe.

Hi Krista,
Can’t answer your question but know how frustrating it is to have different people tell u different things. I had my neurologist at first visit say…can’t tell you for sure what brain mri means. The second visit he said don’t worry about it,after saying he would order another mri at some point. Crazy making

Thank you. Yes you are right. It is so hard to know what to think with so many different points of view. Good luck to you !