Encephalomalacia, anyone?

Posted by tadams1129 @tadams1129, May 8, 2023

Mri results came back that I have stable encephalomalacia in the left frontal lobe. I had a benign tumor removed from my left frontal lobe in 2014. I’ve had checkup MRIs done often since then and have never had encephalomalacia mentioned. I assumed this would begin shortly after a brain surgery, showing on scans.

Has anyone else had brain surgery, then diagnosed with encephalomalacia later on? Has it progressed for you? Your similar experience is greatly appreciated. Thank you.

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numbskull1 | @numbskull1 | Feb 14 9:52pm

In reply to @precious23 "Yes, I had brain surgery and I have encephalomalacia in the cerebellum and it spread to..." + (show)

Are the doctors still dismissing it as scar tissue?

asquicken69 | @asquicken69 | Feb 17 8:28am

I had an acoustic neuroma removed in 99 and have this

asquicken69 | @asquicken69 | Feb 17 8:29am

In reply to @chelew24 "Had brain surgery 2010; just got diagnosed with having stable encephalomalacia for the first time. Have..." + (show)

Same and my primary won't answer my questions or refer me so I reached out to Mayo

asquicken69 | @asquicken69 | Feb 17 8:39am

Do you have constant ear ringing?

numbskull1 | @numbskull1 | Feb 17 12:54pm

My surgery was in 2022 I believe the encephalomalacia showed in 2023, now it shows the gliosis and it looks to have spread a bit. I get a consult on the 24th. I'm not expecting to hear anything new. Hang in there, its worrisome for sure.

numbskull1 | @numbskull1 | Feb 18 5:29pm

In reply to @asquicken69 "Do you have constant ear ringing?" + (show)

I feel like there full of water most days

carolrudderforth | @carolrudderforth | Feb 19 7:39pm

I was also diagnosed with encephalomacia after brain surgery. Surgery was in 2008. I wasn't told about the encephalomacia until 2024. They kept saying I had Bipolar disorder and treated with meds, shock therapy and more drugs. I did my own research and found out. I was told there is nothing that can be done.

taylork24koa | @taylork24koa | Mar 23 11:00pm

In reply to @ahsngsvg "Hello, I have been having migraines since about April that last 3-4 days, chronic fatigue, memory..." + (show)

I was hit by car 12 years ago. Driver ran a red light and T-Boned me on my mountain bike. I have 4 plates in my face and skull. I've been having migrains in the left side of my face, my eye and the left side of my forehead. I was diagnosed with Encephalomalacia but nobody can tell me why this massive pain is occurring. I do have an appointment with the Nuerologist on April 16th to hopefully get answers because at this time, I'm not much to go on? Help!!