I have a very high calcium score. What next?
Just joined the site and I'm looking to share with others who have had a high calcium score. I found out today that mine is 2996 and I am scared by this. I am 61 and I am totally asymptomatic. Now I feel like a walking time bomb. I am thinking of requesting an angiogram to see if there's any narrowing anywhere and if it can be corrected with a stent. After a second heart doctor told me that the plaque buildup might be uniform over the course of years with no big problem areas, I am encouraged. But the score still freaks me out, specifically my LAD at 1333. I don't smoke or drink but I have to lose 40 lbs.
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@questionofbalance : I was in a similar situation a few months ago. I had to take 4 months off running (after running for more than 20 years) because of Polymyalgia Rheumatica, an inflammatory thingie. At the end of that time, I got a score of 600. I had a stress test before I started running again. I was told that aerobic exercise is fine, but to avoid an RPE of “hard”. I think you are wise to wait to start ramping up until you talk to someone and get a stress test. But I think you will absolutely be able to get back to training at a decent level. I found the book “Beat the Heart Attack Gene” to be helpful. Sometimes books in the popular literature are iffy, but most of the things the book mentions I have also found to be true in my light read of more ‘“trusted” resources. It’s at least a place to get started trying to get your arms around this diagnosis.
#christianzane. Thanks for your comment. Two weeks ago I got a score of 535. I have taken an 2d echo and today a nuclear stress test. The 2d echo was great. I have great blood pressure, always have. And healthy weight.
If the stress test doesn’t show anything, I believe my doc is just recommending lifestyle changes: diet, exercise, statin, hydration, etc. I was thinking I needed another doc, to see about more testing. Listening to YouTube Cardiologist, I am hearing CT Angiogram, CIMT, etc.
I thought my doc wasn’t doing enough.
Where did you hear about K2 causing clots? What I am being told is that it removes calcium from the blood stream and increases calcium in the bone (where it belongs). I would hate to be taking the wrong supplement.
Speaking of baby aspirin, I too decided NOT to take it but only after realizing I am one of those people to whom it causes major heartburn. It got so bad one night, I thought I was having a heart attack but no, it was only baby aspirin. My doc told me that when they did original studies, there found this subgroup of people who cannot tolerate the aspirin but it's not widely publicized....gee, I wonder why not? 🙂
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Update on effects of taking Praluent/Repatha for a year.
When I came out with a calcium score of 642, I was worried but my cardiologist was not after giving me a nuclear stress test and echocardiogram. He did put me on a PKS9 inhibitor ....Praluent which became Repatha when my insurance company would no longer pay for Praluent. BTW, Repatha is very consumer friendly. I make a pretty decent salary in the three figures, have private health insurance and still qualified for the $5 co pay each month. I believe it will go on for a year, we'll see. But anyone interested should sign up at the Repatha website. When I told my GP this, he said: "Wow that was a $5,000 a month drug when it started." I've read A LOT about heart health my friends and learned that the best you can do is to take a statin combined with a PKS9 inhibitor like Repatha. Okay so after a year, my new blood test showed an overall cholesteral score of 77 and an LDL score of 5!!! i was pretty astonished by that. It was about 80 a year ago and the docs said they wanted to get it below that. Well, it's below that all right. Now my GP tells me it's too low and it should be about 25. My cardiologist says not really but he cut my statin in half from 10 mg to 5. I have another blood test coming up and I'll keep you posted. Wow!!
Everyone with interest or concern about high calcium scores should read the blogs of noted Harvard Cardiologist, Doctor Bernard Lown, founder of the Lown Institute ( deceased in his 90's in 2021) especially Essays #28 and #31.
Dr. Lown was considered a renegade who challenged the "industry" of over treating folks such as us who
are handed high calcium scores, are invited into heart cath labs, given grave prognoses, and ultimately( irresistibly) subjected to Coronary Artery Bypass Graft surgery(CABG).
He rails against the modern practice of some cardiologists to use fear tactics over logic sometimes out of conviction, but always with economic consequences for the patient and the doctor(s).
Please read Doctor Lown's own words.
What exactly does an angiogram tell you? Is it the test where they stick those cords on your chest and read something that looks like the results of lie detector test?
This is the first time I join a group like this. I'm a 75 YO male, otherwise in excellent health, except that I recently received a high Coronary Artery Calcium Score (CACS). (See below) I joined this group to post my complete story of the recent journey. I'm scheduled for this this CT Angio Hrt W/Cont W/3D W/FFRCT prn in couple of days. I'm very grateful to this group for giving me comfort in knowing that high CACS score is not the end of my life any day now as defined on the test results. I wanted to join now so that I would be able to post some links in couple of weeks.
My CACS Score on Aug-31-2023
Left Main Coronary = 0
Right Coronary = 301
Left Anterior Descending = 801
Left Circumflex = 114
Posterior Descending = 0
I had a CACS done in 2006 because my brother who is 2 years older than me had 4 way bypass.
My 2006 CACS Scores Defined on the Test Results as: Volume130 & AJ-r30 (in a two column table).
Left Main Artery (LMA) 0 0
Left Anterior Descending (LAD) 92 & 115
Left Circumflex (GCX) 0 0
Right Coronary Artery (GCA) 0 0
Posterior Descending Artery (PDA) 0 0
Total 92 & 115
I will post further details of my recent CACS score and what followed. I'm very grateful to this group. Thanks
Are you exercising now and how much and how strenuous? Are you on statins?
Interesting. Have you asked your cardiologist about Dr Lown?
Wonder what Mayo Clinic would say