1 1/2 years ago I woke up with numbness and tingling of my face, arms, legs and feet. I thought I slept wrong. The doctor is pretty sure I have polyneuropathy. I have my firs EMG in 2 days, not looking forward to it I now have not only numbness and tingling but pain and muscle cramps in feet, hands and arms and pins and needles. Now having TONS of muscle twitching over my whole body too. I also have burning and pins and needle feelings internally including in my throat almost daily. Anybody else experience this? I'm also wondering what to expect in the future. Will this continue to progress? I'm supposed to go on a trip out of the country in a few weeks with some friends. They are worried about me traveling with them. Should I be worried? Just wondering if some of you that have had issues similar to mine could help me with what to expect. I know everyone is different and it depends on the cause (which mine seems to be idiopathic) but It would be helpful to hear from people dealing with similar symptoms. Thank you.
1 1/2 years ago I woke up with numbness and tingling of my face, arms, legs and feet. I thought I slept wrong. The doctor is pretty sure I have polyneuropathy. I have my firs EMG in 2 days, not looking forward to it I now have not only numbness and tingling but pain and muscle cramps in feet, hands and arms and pins and needles. Now having TONS of muscle twitching over my whole body too. I also have burning and pins and needle feelings internally including in my throat almost daily. Anybody else experience this? I'm also wondering what to expect in the future. Will this continue to progress? I'm supposed to go on a trip out of the country in a few weeks with some friends. They are worried about me traveling with them. Should I be worried? Just wondering if some of you that have had issues similar to mine could help me with what to expect. I know everyone is different and it depends on the cause (which mine seems to be idiopathic) but It would be helpful to hear from people dealing with similar symptoms. Thank you.
Hello, Beth. Welcome. An EMG will tell them something, but they probably don't have the time to test nerves all over your body and will probably focus on the area that is worst. I have had all the same symptoms because of cervical stenosis with spinal cord compression at C5 C6. If you have had a whiplash, that is the spine level that is often damaged. Some people get no pain when their spinal cord is compressed, but I had pain everywhere in my body, muscle twitches, pain in legs and feet, gait disturbances, bladder retention, throat pain, feeling like I was choking, horrible headaches up the back and side of my head, etc. I had muscle spasms that moved the cervical vertebra straightening the normal lordotic curve which increased symptoms because it pulled on my spine when there was no fluid space left around the spinal cord. If you have not had an MRI of your cervical spine, I would keep that in mind so you can either rule out spine issues or find them. You could also have a problem anywhere along the spine and compression will affect the levels below that area. The spine is mapped where nerves exit, but spinal cord compression does not follow that organized arrangement. I am a Mayo spine surgery patient and spine surgery resolved all those symptoms, and I've had a great recovery. 5 surgeons missed connecting my symptoms to the imaging in my neck and would not help me. That 's why I came to Mayo after reading a paper co authored by a neurosurgeon that described some similar symptoms, so I came to see him. He helped me right away, and was kind and compassionate. If your tests reveal a spine issue, and you want a recommendation for my surgeon, just ask. Mayo is great place if you need another opinion and they are very efficient and thorough.
I used cold laser as shown below for my neuropathy. It has worked very well. Got immediate results. Save money and buy your own.
healthcaremarts.com/products/low-level-laser-therapy-device-hand-held?aff=8
Hello @holhealthcare, welcome to Connect. Thank you for sharing your post. There is actually another discussion on Connect for laser therapy that you may be interested in reading and meeting others sharing similar treatments.
Hello @holhealthcare, welcome to Connect. Thank you for sharing your post. There is actually another discussion on Connect for laser therapy that you may be interested in reading and meeting others sharing similar treatments.
I have diabetic neuropathy of both feet. Using a roller and Chamomile German I was able to nearly eliminate the intense burning feeling on the bottom of my feet and sharp pains on top and toes. I continued to have numb toes and part of the foot. This year I bought the laser. I now feel everything an no pain. Improvement began with the first treatment. It is strange after many years to feel my feet almost normal.
I also had numbness on one side of my face from shingles. This cleared in two weeks of using the laser every other day.
Hello, Beth. Welcome. An EMG will tell them something, but they probably don't have the time to test nerves all over your body and will probably focus on the area that is worst. I have had all the same symptoms because of cervical stenosis with spinal cord compression at C5 C6. If you have had a whiplash, that is the spine level that is often damaged. Some people get no pain when their spinal cord is compressed, but I had pain everywhere in my body, muscle twitches, pain in legs and feet, gait disturbances, bladder retention, throat pain, feeling like I was choking, horrible headaches up the back and side of my head, etc. I had muscle spasms that moved the cervical vertebra straightening the normal lordotic curve which increased symptoms because it pulled on my spine when there was no fluid space left around the spinal cord. If you have not had an MRI of your cervical spine, I would keep that in mind so you can either rule out spine issues or find them. You could also have a problem anywhere along the spine and compression will affect the levels below that area. The spine is mapped where nerves exit, but spinal cord compression does not follow that organized arrangement. I am a Mayo spine surgery patient and spine surgery resolved all those symptoms, and I've had a great recovery. 5 surgeons missed connecting my symptoms to the imaging in my neck and would not help me. That 's why I came to Mayo after reading a paper co authored by a neurosurgeon that described some similar symptoms, so I came to see him. He helped me right away, and was kind and compassionate. If your tests reveal a spine issue, and you want a recommendation for my surgeon, just ask. Mayo is great place if you need another opinion and they are very efficient and thorough.
Thank you for responding. I was told if I had numbness in my face that it could not be coming from my neck. I did have a cervical MRI and it showed some mild degeneration. i know the EMG will not show all nerves affected, I'm expecting that it just be a start. I will need a skin biopsy to show if small fiber nerves are affected. The most depressing part is that I've learned despite having these tests and what they show, there's not much they can do for you. Thanks again for sharing.
Hello @holhealthcare, welcome to Connect. Thank you for sharing your post. There is actually another discussion on Connect for laser therapy that you may be interested in reading and meeting others sharing similar treatments.
Thanks John! I've already read 3 on the laser therapy and plan to learn more. Also, thank you for sharing your info on your supplement therapy. It was so generous of you as well all the others with their experiences
Rose
I have diabetic neuropathy of both feet. Using a roller and Chamomile German I was able to nearly eliminate the intense burning feeling on the bottom of my feet and sharp pains on top and toes. I continued to have numb toes and part of the foot. This year I bought the laser. I now feel everything an no pain. Improvement began with the first treatment. It is strange after many years to feel my feet almost normal.
I also had numbness on one side of my face from shingles. This cleared in two weeks of using the laser every other day.
Thank you so very much for sharing. I also have numbness, tingling from the waist on dowy into my feet.
Please tell me where you purchase the oil/roller and how you use it.
Thanks again
I have diabetic neuropathy of both feet. Using a roller and Chamomile German I was able to nearly eliminate the intense burning feeling on the bottom of my feet and sharp pains on top and toes. I continued to have numb toes and part of the foot. This year I bought the laser. I now feel everything an no pain. Improvement began with the first treatment. It is strange after many years to feel my feet almost normal.
I also had numbness on one side of my face from shingles. This cleared in two weeks of using the laser every other day.
I used cold laser as shown below for my neuropathy. It has worked very well. Got immediate results. Save money and buy your own.
healthcaremarts.com/products/low-level-laser-therapy-device-hand-held?aff=8
Connect
Connect
Like
Helpful
Hug
1 1/2 years ago I woke up with numbness and tingling of my face, arms, legs and feet. I thought I slept wrong. The doctor is pretty sure I have polyneuropathy. I have my firs EMG in 2 days, not looking forward to it I now have not only numbness and tingling but pain and muscle cramps in feet, hands and arms and pins and needles. Now having TONS of muscle twitching over my whole body too. I also have burning and pins and needle feelings internally including in my throat almost daily. Anybody else experience this? I'm also wondering what to expect in the future. Will this continue to progress? I'm supposed to go on a trip out of the country in a few weeks with some friends. They are worried about me traveling with them. Should I be worried? Just wondering if some of you that have had issues similar to mine could help me with what to expect. I know everyone is different and it depends on the cause (which mine seems to be idiopathic) but It would be helpful to hear from people dealing with similar symptoms. Thank you.
-
Like -
Helpful -
Hug
1 ReactionHello, Beth. Welcome. An EMG will tell them something, but they probably don't have the time to test nerves all over your body and will probably focus on the area that is worst. I have had all the same symptoms because of cervical stenosis with spinal cord compression at C5 C6. If you have had a whiplash, that is the spine level that is often damaged. Some people get no pain when their spinal cord is compressed, but I had pain everywhere in my body, muscle twitches, pain in legs and feet, gait disturbances, bladder retention, throat pain, feeling like I was choking, horrible headaches up the back and side of my head, etc. I had muscle spasms that moved the cervical vertebra straightening the normal lordotic curve which increased symptoms because it pulled on my spine when there was no fluid space left around the spinal cord. If you have not had an MRI of your cervical spine, I would keep that in mind so you can either rule out spine issues or find them. You could also have a problem anywhere along the spine and compression will affect the levels below that area. The spine is mapped where nerves exit, but spinal cord compression does not follow that organized arrangement. I am a Mayo spine surgery patient and spine surgery resolved all those symptoms, and I've had a great recovery. 5 surgeons missed connecting my symptoms to the imaging in my neck and would not help me. That 's why I came to Mayo after reading a paper co authored by a neurosurgeon that described some similar symptoms, so I came to see him. He helped me right away, and was kind and compassionate. If your tests reveal a spine issue, and you want a recommendation for my surgeon, just ask. Mayo is great place if you need another opinion and they are very efficient and thorough.
-
Like -
Helpful -
Hug
2 ReactionsHello @holhealthcare, welcome to Connect. Thank you for sharing your post. There is actually another discussion on Connect for laser therapy that you may be interested in reading and meeting others sharing similar treatments.
Groups > Neuropathy > Laser Therapy for Neuropathy
-- https://connect.mayoclinic.org/discussion/neuropathy-1/
Are you able to share a little more about the type of neuropathy you have and your symptoms?
John
-
Like -
Helpful -
Hug
3 ReactionsI have diabetic neuropathy of both feet. Using a roller and Chamomile German I was able to nearly eliminate the intense burning feeling on the bottom of my feet and sharp pains on top and toes. I continued to have numb toes and part of the foot. This year I bought the laser. I now feel everything an no pain. Improvement began with the first treatment. It is strange after many years to feel my feet almost normal.
I also had numbness on one side of my face from shingles. This cleared in two weeks of using the laser every other day.
-
Like -
Helpful -
Hug
3 ReactionsThank you for responding. I was told if I had numbness in my face that it could not be coming from my neck. I did have a cervical MRI and it showed some mild degeneration. i know the EMG will not show all nerves affected, I'm expecting that it just be a start. I will need a skin biopsy to show if small fiber nerves are affected. The most depressing part is that I've learned despite having these tests and what they show, there's not much they can do for you. Thanks again for sharing.
-
Like -
Helpful -
Hug
1 ReactionThanks John! I've already read 3 on the laser therapy and plan to learn more. Also, thank you for sharing your info on your supplement therapy. It was so generous of you as well all the others with their experiences
Rose
-
Like -
Helpful -
Hug
1 ReactionThank you so very much for sharing. I also have numbness, tingling from the waist on dowy into my feet.
Please tell me where you purchase the oil/roller and how you use it.
Thanks again
-
Like -
Helpful -
Hug
1 ReactionWhat is the laser you bought and where do they sell it.
-
Like -
Helpful -
Hug
1 ReactionAlso interested in the laser. Where to get it and how long before it works.
Thanks
-
Like -
Helpful -
Hug
1 Reaction@holhealthcare Do you own the business that is selling this device?
-
Like -
Helpful -
Hug
1 Reaction