Does anyone know of anyone whom has gotten over Long Covid Condition

The thing I've noticed also is that one cure does not fit all and if you pick up something here you should have a doc you can go to and at least ask why or why not it makes sense to try. I'd want my doc to have an opinion either way or be very committed to doing research so they could develop one?

Thank you, I've read similar reports and interpret each a bit differently. Some were about both covid and influenza causing seizures. You said you had the seizures well after first getting covid. I assume you were not tested in January of 2020 as testing was near impossible? Yes tests suggest that people had developed anti-bodies but clearly it was very early stage based on the measurables in terms of people actually getting sick and hospitalized, and then eventually through the tracking of positive tests. As the report states itself: "Despite the findings, widespread community transmission in the U.S. was unlikely until late February, the authors said".

If it was 3 1/2 yrs later you had your seizure it was likely due to a later covid infection (seizure usually occurs w/in 6 mos. of covid?) and as a long covid characteristics as the first report of covid post infection seizure was in April of 2021. So covid or not, clearly your best care is in dealing with the Epilepsy. I raise this as I've must have read and heard thousands of testimonies on covid and long covid and it really is important that people focus on getting someone to care and treat their symptoms and not get discouraged over anyone claiming they did or did not have covid and when. Clearly after the initial infection we are dealing with something unique that we've labeled "long" or "post covid", but no matter what it is called progress must be made in getting a better handle in terms of what it is and how to treat and mitigate it. That may be complicated in that in reaction to the original covid; "long covid" manifests in different ways. Yes, makes sense to avoid mental stress and I've gotten mixed reports of physical stress, but I am hopeful avoiding stress is not the only way to avoid long covid and its impact but that we can get a much better handle, or should I say "handles" on how we can start to get an upper hand. All the best to everyone who is a part of that journey...

That is so weird you developed a chalazion. I did too, but mine is on the inner lower eyelid. I have had one in the past and left it alone. It took months to go away but it eventually did. I also developed a heaviness in my throat about two weeks ago although no difficulty swallowing.

yes please let us know if anyone has beaten this thing. I have been suffering for ten months with more symptoms than fingers and toes. My life has come to a screeching halt because of this virus. I often wonder just how much I will take before I decide I have had enough.

So sick of the hyperacusis. So sick of the vibrations, tinnitus and digestive issues and the snake like squeezing around my rib cage every day. My PCP put me on baby doses of Lorazepam (0.25 mg) twice a day for tremors and other nervous system symptoms and it helps most days.

Hi, I contracted covid in April, still having a sore chest and weakness. I was posting and responding to Post Covid Conditions (PCC) in May and June, I think. It was really bad. I went to the ER at least 4 times and Urgent Care as many as 4 times too. I’m one of the lucky ones who didn’t need a ventilator but still struggled to find answers or help.
I’ve been to the cardiologist and had EKG, ECHO, Lexiscan, and Treadmill stress test. Also, went to have Pulmonary Function Test(PFT), also a CT scan of my chest twice to check for pleurisy, scaring, nodules, or cancer.
Both cardiologist and pulmonologist said my heart and lungs are normal.
I am better today than I was three months but I’m still not feeling like my myself with chest pain and fatigue. I can walk a few miles for exercise and golf but if I exert a little too much I feel like my lungs will explode and I’m dead tired and have to rest. (I’m 67 yrs old).
It’s been six months and I’m still not well as can be.
My comments to all you PCC folks out there. Don’t give up hope, it’s tough both physically, mentally and emotionally. My first three months were the worst but it got better, not perfect but better. This might be my normal for a while but it’s way better than it was before.
There must be thousands out there suffering what we have and all I can say is keep the faith, try and do your best to socialize, get back into your normal routine, wash hand’s frequently, and wear a mask cause covid is still out there.

The studies I’ve seen on covid and Epilepsy only tracked patients for 6 months. My feeling is the risk does not go away after 6 months. I got covid very early in the pandemic, and it took 3.5 years of post covid to develop Epilepsy. Time will tell how much of a
risk this is for post
Covid patients and for how long. I also wanted to touch on the question “has anyone gotten over post covid”. At times I felt I was over it - about 2 years post covid I felt great - I had a ton of energy and started walking an hour every morning. I felt sharp - no brain fog. I lost weight without really trying. My doctor congratulated me. I thought I was done with Covid. Then the weight loss continued, and I realized I had no appetite. I could skip a day and not feel hungry at all. I lost 50 pounds in a year, and the brain fog came back, likely due to poor nutrition. So yes, at one point I thought I was done with Covid, only for something else to pop up later. It may be a see-saw of periods of relatively better or worse health for some time. Treat the symptoms as they come up.

Yeah it is almost irrelevant if one assigns their health issues to covid or not because a diagnosis of "long covid" does not really exist. The purpose of "long covid" clinics IMO should be to gather data and link to other health clinics and doctors who are working with people that can be verified as having symptoms that were an extension of an initial bout of covid so correlation is strong when also tracking of any additional and commonly experienced symptoms. I know of people who have gone to long covid clinics and gotten less help then just going to a doctor who simply is dedicated to dealing with the health issues and at least being aware of what is being discovered in terms of post-covid. Often that leads to being referred to a specialist Some covid clinics are committed to approaching LC from a certain perspective. While we may not really know what LC is, there does seem to be some progress on treating symptoms? Hopefully there will be a breakthrough in terms of understanding if long covid is the right term to use and what iterations it takes and how to both treat existing symptoms and avoid future ones.

can you be more specific about your tremors?
i have vibrations and tremors as well. and digestive issues. i have found that deep breathing can sometimes keep the tremors away when at rest. any activity usually keeps them away too. have you investigated vagus nerve involvement?

Yes, I solved and healed my Long Haul and have come back to the forums to let people know it's possible. But treating your symptoms one by one is NOT the answer. You have to solve this at the root cause level. I was bedridden and not working for 6 months, so I get it. My case was extreme. And the longer these baseline things are not done, the body will continue to get worse.

I'm writing up my own personal protocol and will be sharing it widely so that everyone can check their BASE LINE methods for solving this, which is diet (low histamine is key!), supplementation (B-3 is key!), hydration (Liquid IV is key!). If you aren't doing those 3 things that's a really excellent place to start - I'm not joking. Ensuring you have all the correct nutrients for basic metabolic functioning, and reducing inflammation and histamine levels, and NOT over-extending yourself in any way is the only way to beat this.