1. < Post-COVID Recovery & COVID-19

Does anyone know of anyone whom has gotten over Long Covid Condition

Posted by jimmiep @jimmiep, Jul 30, 2023

We are all hearing of our issues that don't seem to get any better BUT, does anyone know of someone who has beat this bug. My wife made the comment that those who beat it probably don't communicate hear on this sight any more. If someone has found a way to beat this thing please let the rest of us know how you did it.
I've only been dealing with this for 7 months now and I am exhausted with it. Hearing that some have been suffering with this for 2 1/2 to 3 years is dis-heartening for sure. I really feel bad for you folks. I'd be a pot head by now. At least I'd be able to control the way I feel. I'm starting to think that way. Good luck everyone.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

laja | @laja | Oct 25, 2023
In reply to @okradurham "I am scheduled for a bone marrow biopsy and am really scared . I never had..." + (show)
@okradurham

I am scheduled for a bone marrow biopsy and am really scared . I never had anything abnormal in a blood test before!! And I am 75 years old. The blood test results are worrisome. The more I read the more I realize what an absolute beast Covid is. But abnormal red cells need to be checked out and I read this can be a result of Covid lasting anywhere from two months to two years after infection!

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What are the abnormalities in your Red Blood Cells? Are there too many of them or is it the shape of the cell itself?

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elliep | @elliep | Oct 25, 2023
In reply to @laja "Thank you for your valuable input! Especially about the Apolloneuro band. I bought one as well..." + (show)
@laja

Thank you for your valuable input! Especially about the Apolloneuro band. I bought one as well and after two days of use I felt that it contributed to my tremors returning and/or worsening my palpitations. I thought it was just one of those coincidences as we seems to second guess ourselves often, but hearing that this also happened to you made me feel secure in my initial observation about the device. I stopped wearing it over a month ago but to no avail...I still have the tremors that no one sees, but that I can feel. The tremors make me feel like I could run a hundred miles... as if my adrenaline is being affected by my vagus nerve. Thank you for your observations on the other meds as well. I am very sensitive to any medication (new since post covid) and don't care to try this or that if it will not help. I too have some odd reverse reactions to many meds they have tried on me--- even at children doses. I know everyone is different but I am also finding out that many of us are experiencing similar responses to symptom management. I talked to my functional medicine Dr about the Amla just a few weeks ago and she said she would have to look in to it and discuss it at our next appointment. It was recommended by a friend who is going through LC and was one of the FIRST nurses in our area to be stricken with it. She has done many local interviews and is offering advice on what works for her. She also has LYME disease which was brought out by LC. Seems when our immune systems are in check the Lyme can remain dormant and many of us can live with it but when Covid interferes the immune system leaves the door unlocked to fight stronger things and things that were once locked away are now free to roam our bodies. I have a pending Lyme disease test that was sent out to an independent lab because the hospital labs are not reimbursed for the stringent Lyme testing so unless you are flamingly positive with Lyme Disease a hospital Lyme test could give you a false negative result. So I paid 1600$ for a very reputable independent lab ( IGENEX) to run the in-depth Lyme tests for final peace of mind.

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than nk you for being candid…
it is really helpful to share similar symptoms
and attempts to manage them.
interesting about the apollo neuro device.
i used it for 2 days as well. they had no problem with
the return. i volunteered to help their research , but they haven’t reached out.
next step…how about the Omega red light device. i am thinking to try it.
but i am more hopeful with current research on gut serotonin. i am thinking about buying 5-HTP or amino acid supplements including tryptophan.
talk again soon,
ellie

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okradurham | @okradurham | Oct 25, 2023
In reply to @laja "What are the abnormalities in your Red Blood Cells? Are there too many of them or..." + (show)
@laja

What are the abnormalities in your Red Blood Cells? Are there too many of them or is it the shape of the cell itself?

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The shape and number are a bit off!

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laja | @laja | Oct 25, 2023

Are you seeing a hematologist/oncologist?

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okradurham | @okradurham | Oct 26, 2023

Thanks so much for your post.
My test is Monday and I had never really heard of a bone biopsy before! Trying to stay positive ! Knowing others have had the test with negative results gives me hope!!! Thanks again!

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kendrarjones | @kendrarjones | Oct 26, 2023

I have had long covid after having it in October 2021. I wish I could say I'm getting better, but so far I'm not. I was just told by the GI Specialist that I likely acquired a stomach autoimmune disorder from covid (I had already drawn that conclusion myself), but that they don't know enough to know how to help me.

I finally found a naturopath clinic 2 hours from me and after the initial consultation, I have hope for the first time that they can help me.

I am on a very limited diet and still have quite a few GI issues. I also have many new food sensitivities and I have some neurological issues (numbness and twitching in my left arm and hand). I have fatigue and brain fog.

I will update as things unfold with my new naturopath. I have a 2 hour appointment on November 10th and will go from there.

I wish everyone the best in finding your healing path. It is hard not to be discouraged, but we need to hold on to hope. Grace and peace,

Kendra

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laja | @laja | Oct 27, 2023

Ellie you seem to be researching many avenues and that is great! I read about the 5 HTP too and am considering. I have some new meds starting after my bone marrow biopsy...had some blood drawn by a hormone specialist, MD turned holistic MD. Dr. Gary Joseph out of Solon Ohio who came highly recommended by my cardio doc. Never had a cardio doc until covid. Anyhoo- Dr. Joseph is taking another avenue to try and calm my nervous system down (tremors and anxiousness that I never experienced prior to covid) and he had SEVERAL blood tests ran on me and said my hormones are out of wack too and wants to try low dose Progesterone. He said it calms the nervous system and is also a med that the body easily rids and does not hide in your cells like Estrogen does, plus I am 60 yrs old and too late to start on Estrogen therapy according to him and all the latest research it would be unsafe. He said we have come a long way in hormonal therapy. I am going to start it up after my bone marrow biopsy per my choice so as not to confuse my body with things. That is wonderful you were able to return your Apollo device! I will have to look in to that. He also told me to continue to take the LIPOSOMAL GLUTITHIONE GEL that my Functional Med Dr ordered. One teaspoon twice a day per the order. He said this will help the nervous system as well bringing it cellular support at the Mitochondrial level. I was on D-Ribose powder for cellular support but he said that is more for people with Congestive Heart Failure Diagnosis which I am not. Thank God. It also made me feel like my tremors were worse because of the sugar content. My nurse friend Samantha, who has LC and Lyme said that sweating it out in a Sauna helps manage tremor symptoms. SHe bought one off Amazon for $150, It is a pop up device. She said just make sure to drink something with electrolytes in it after a 15 minute session to replenish and aid in flushing out toxins.

If the Progesterone therapy helps with rebalancing my nervous system I will let you know. I wonder if the Gents that are dealing with LC should get their hormone levels checked out? Dr. Joseph said that the immune system is closely tied into our hormonal balance. Being a nurse for 36 years, I understand that but had forgotten about it with the brain fog this last year. When he started talking about it, the light bulb went on again and I felt a ray of hope in all this mess. Please keep me informed on your ideas with 5 HTP and Tryptophan. I have a feeling a long covid sufferer is going to come up with a protocol for LC before any research team ever does.

Best Regards to you and blessings.

Laja

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