Pain and Loss of Self Worth

Posted by labgirl @labgirl, Aug 26, 2023

I was diagnosed with arachnoiditis 5 years ago following major spine surgery.
I think I've learned to live with the chronic pain and neuropathy, but I still struggle with the fact that I can't do what I used to do. I have expectations that I should at least be able to vacuum and cook a small meal, but I can't because after standing for 3-5 minutes, I have to sit down and let the pain subside. Traveling, shopping, or even walking for more than 10 minutes are out of the question.
I held a challenging and very active executive position for 40 years, working 10+ hrs/day. I raised a daughter, and volunteered at a local hospice. Now, at age 70, I sit in a recliner for most of the day and read and do crosswords.
I see so many ads of people in their 70's and 80's golfing, biking, baking cookies and I look within myself and see a sedentary, dull person. I suspect that other people must think that of me, also.
Is anyone else experiencing these negative thoughts about themselves? How do you get to the point where you can regain some pride in yourself--this new self that can't accomplish or contribute very much to family, friends, or the community?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@scottij

I cannot alleviate your pain but with respect to self-worth I believe you have a lot to give others. With your experience you can mentor, coach, and pass on the wisdom of your life from a recliner. There are a lot of younger executives, college students, and kids that could use your help.

It won't lessen your pain, but it might make you feel good.
Best always,
s!
Scott Jensen

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I would love to help students and those newly entering the job market! There is a small college nearby and I'll contact them about volunteering opportunities.
I so appreciate your giving thought to my situation, Scott! Many thanks for responding!

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@lacy2

.... I hope you get some positive feedback and also maybe check some previous comments/discussion on here that will help you - I can only say that I am in a similar position having worked since age 16, not a high end job but paid the bills; away from family support in another country; coped with 9 yr abusive marriage, single parent then thankfully remarried a good man; but then many illnesses and have also been non-productive whereas before was busy with job home garden driving raising children etc.... you are not alone and I agree it is even worse not being able to do most of these things now, and especially when we see others around the same age being able to still do many of the things we did!!! so we are not only suffering with painful and poor health but almost a guilt at having to rest most of the time... the mental affect/effect not helping... I don't really have an answer except that most days now I "have" to accept this change! without feeling guilty without pining for the past, but am gradually learning to live with it. I do have a social worker zoom me once a month and she has helped with verbal support and most of all trying to get me to love myself .. love myself the way I am now.. it has not been easy but this "new life" was not my choice but through illness... I hope to read some comments you receive too because am always seeking help: just wanted to say I feel for you and understand... and although it is life altering maybe realizing there are those even worse off - not always helpful I know, but things "could be worse" ... sorry for your pain and suffering, J.

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I can't tell you how much your response and that of others has helped me see that there are many approaches to dealing with this new reality.
I guess we all need to remind ourselves that we have value even with diminished physical capacity.
Thank you for your kind response and wishing you the best~

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I totally understand. I have horrible pain from a neck injury and surgery that didn't help, it made it worse. I have a plate and 4 screws in my neck.I also have chronic pancreatitis and get a block every 3 months and biopsies for barrett's esophagus. My esophagus is really tight and they have to use dialaters just to do the egd and ultrasound for the injections. I live on a feeding tube into my small intestine and a pump feeds me. I have gastroparesis with chronic nausea. I also now have 2 types of neuropathy. My blood pressure tank's when I stand up and I Pass out. The majority started when I was 49. I feel your pain. I am disabled because I have to be on the feeding pump for 16-18 hours a day. I can't drive with the blood pressure issues from my one neuropathy and my failed neck surgery has me in chronic pain. I also can't be up for more than 10 minutes without having to sit down. I wish someone had answers and something that can help me. My life is so stagnant and I was a very active person and loved my job. I feel like my doctors have just given up on me. I can't get answers or relief and I spent most of my days sitting on my bed. I hope someone out there can steer us both into the right direction 🙏 God Bless you 🙏

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Change in overall health in a negative direction is never a welcomed event in our life. I too have and do still struggle with unwelcomed changes to physical abilities. When I was in.a very low place in this process I came across a book. It changed the way I looked at my afflictions and predicament in a positive manner. The title is, "90 Minutes in Heaven" by Don Piper. It's quick read and I promise it will help you greatly towards learning that what once was, will not be the same again. And, it really does not need to be the same for you to feel good about yourself again, I promise!

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Omg! I literally just started a discussion in depression and anxiety, almost to the T of what you posted. I know exactly how you feel. It's terrible. It's caused me to completely be by myself w very little outside contact, I'm struggling with what to do now, since I add zero value, have nothing much to offer and it's 110% changed me as a person.

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I understand where you are coming from. Pain is not fun and does do a number on your mind I have rheumatoid arthritis, 14 weeks post op of major neck fusion, and back surgery, and awaiting tests to see if I have fibromyalgia. I am a not so active 75 yr old. It There is always reading about what you like to do, or phone a friend.

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Oh yes. 40 years as an academic, 15 as a dean of science. Arachnoiditis and nueropathy following failed back surgery 4 years ago have slowed me down to a crawl and my self esteem has suffered greatly. How I miss my running, biking, hiking, travel. Waaay too much time for rumination. So sorry. I am a fellow traveler, my friend….

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I’m 71 and have neuropathy, chronic pain syndrome and associated crap that comes with it. I’m sorry to hear you’re feeling less worth because you can’t do for others or maybe that choir you can’t do for yourself. Is this a healthy way to view yourself? NO! Let’s try flipping the switch on what you’re trying to do to make you feel worthwhile. I do the cooking and shopping for my wife and I but as my body continues to fall apart I adapt. I no longer shop myself but by computer for delivery. I cook but do it in small steps along the day so I’m not standing over a counter prepping for 15-30 minutes at a time. Ouch!
You spent 40 years as an executive providing some benefit that allowed you to earn money. Obviously you’re an educated women that I presume can still use a PC, which should enable you to either do positive things for yourself or others if your physicality permits. My wife over Covid lockdown did ESL tutoring for Nationality Services Center via zoom. You can read books for the blind or other remote services that you might be able to contribute to for people who cannot. You can enjoy yourself by reading books, newspapers, do puzzles, communicate with others via Mayo Forum, etc. as a way of remaining relevant as you have been in the past.
For me since pain is my steady companion I do everything everyday that I can to keep it at bay. In other words I come first which for me was difficult to put in motion having been a nurse for 40 years and used to taking care of others. You only have one life so why not enjoy the free time you have for yourself. I hope I did not carry on too long and bore you.

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@jenatsky

I’m 71 and have neuropathy, chronic pain syndrome and associated crap that comes with it. I’m sorry to hear you’re feeling less worth because you can’t do for others or maybe that choir you can’t do for yourself. Is this a healthy way to view yourself? NO! Let’s try flipping the switch on what you’re trying to do to make you feel worthwhile. I do the cooking and shopping for my wife and I but as my body continues to fall apart I adapt. I no longer shop myself but by computer for delivery. I cook but do it in small steps along the day so I’m not standing over a counter prepping for 15-30 minutes at a time. Ouch!
You spent 40 years as an executive providing some benefit that allowed you to earn money. Obviously you’re an educated women that I presume can still use a PC, which should enable you to either do positive things for yourself or others if your physicality permits. My wife over Covid lockdown did ESL tutoring for Nationality Services Center via zoom. You can read books for the blind or other remote services that you might be able to contribute to for people who cannot. You can enjoy yourself by reading books, newspapers, do puzzles, communicate with others via Mayo Forum, etc. as a way of remaining relevant as you have been in the past.
For me since pain is my steady companion I do everything everyday that I can to keep it at bay. In other words I come first which for me was difficult to put in motion having been a nurse for 40 years and used to taking care of others. You only have one life so why not enjoy the free time you have for yourself. I hope I did not carry on too long and bore you.

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What a great response! Thanks, because I was thinking of what to suggest, but you about covered it all.
Sue

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In no way did you bore me!! In fact, you inspired me to continually search for ways to remain active while accepting the limitations of the pain.
You and so many others have been so helpful with their responses.
You're right..........it's time for me to "flip the switch"!
Thank you so much for taking the time to respond.

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