Pain and Loss of Self Worth

Posted by labgirl @labgirl, Aug 26, 2023

I was diagnosed with arachnoiditis 5 years ago following major spine surgery.
I think I've learned to live with the chronic pain and neuropathy, but I still struggle with the fact that I can't do what I used to do. I have expectations that I should at least be able to vacuum and cook a small meal, but I can't because after standing for 3-5 minutes, I have to sit down and let the pain subside. Traveling, shopping, or even walking for more than 10 minutes are out of the question.
I held a challenging and very active executive position for 40 years, working 10+ hrs/day. I raised a daughter, and volunteered at a local hospice. Now, at age 70, I sit in a recliner for most of the day and read and do crosswords.
I see so many ads of people in their 70's and 80's golfing, biking, baking cookies and I look within myself and see a sedentary, dull person. I suspect that other people must think that of me, also.
Is anyone else experiencing these negative thoughts about themselves? How do you get to the point where you can regain some pride in yourself--this new self that can't accomplish or contribute very much to family, friends, or the community?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

I cannot alleviate your pain but with respect to self-worth I believe you have a lot to give others. With your experience you can mentor, coach, and pass on the wisdom of your life from a recliner. There are a lot of younger executives, college students, and kids that could use your help.

It won't lessen your pain, but it might make you feel good.
Best always,
s!
Scott Jensen

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I am 66 and find myself in the same boat. I've worked since age 16 and had to retire at 62 due to my health and to be pretty much the sole caretaker of my mom until she ended up in a nursing home and then passed away last fall. I was diagnosed with ankylosing spondylitis around 5 years ago. Before that, osteoporosis and arthritis. I went to see mom every day at the nursing home until I started having trouble walking. An MRI showed a severe levoconvex scoliosis. I went to a neurosurgeon who sent me for a lumbar injection which finally provided me with relief, unfortunately only for 2 weeks. Next sent me to physical therapy which only made things worse. Then I got a blood clot and was put on Eliquis which stopped the possibility of another injection. Doctor then referred me to another specialist who is sending me back to PT, this time aquatherapy which I start Tuesday... I'm scared to death it will cause more pain and cripple me, but going to try anyway. I'm told if that doesn't work my next step is a spinal cord stimulator. I know exactly how you feel... I wish there was something I could say that would help... I find myself digging out unfinished embroidery type crafts, and have been organizing old photographs to put into scrapbooks... looking into the genealogy of my family to keep my mind off of my situation. Just know you are not alone... I hope things get better for you 🌻

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In response to @labgirl
I have not had surgery on my back yet, but it’s pretty jacked up and
I have had to learn to live with the pain because I’m not going to let them pump full of steroids that don’t work anymore any way .
But I know how you are feeling my home is not carpeted so I have to sweep or use to anyway.
I can’t do much house work anymore making the bed, doing the dishes or trying to sweep just causes me so much pain pretty much everything I do hurts so bad .
And it’s so frustrating and depressing
but I to do a lot of sitting around because I just can’t do the things I use to I’m 62 years old , I also have spondylitis and have joined a group called My Spondylitis and I have learned there are a lot of options out there to help with the pain .
Acupuncture is one of them water therapy seem to help make it easer to regain moment and help with the pain I my self have not tried any of these yet, but you should check this support group out you may find some kind of relief and the members are very supportive just some information that might help you find some kind of relief.
I’m going to try the water therapy and see how that works for me.
I hope you can find something that help you because we should not have to learn to live with such debilitating
Pain with all the medical terminology we have now days. Sending prayers and hugs to you hang in there 🙏❤️

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I grew up with parents who were certain that they always knew why others did and acted the way they did. It’s taken me many years to foster in myself an openness to the possibility that other people are much more complicated than that. Developing a sense of humility abt. My judgment of others has opened some unexpected opportunities for me —but of course not always.

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I have same feeling after a stroke a year ago. Cannot contribute as I used to and I was also very active. The work is to se our inner beingness which has its own beauty just because it’s part of existence. Like a dog or a cat or nature just “is” and has its own beauty without “thinking” they have to contribute to society. A different view of life

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You've provided a different way of thinking about this situation. In all the books and articles I've read about positive mindset, I've not read of this analogy. Thank you for your insight and taking the time to respond.........I'll try incorporating your perspective into my thinking when I have "down" days.

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Profile picture for jlf2 @jlf2

In response to @labgirl
I have not had surgery on my back yet, but it’s pretty jacked up and
I have had to learn to live with the pain because I’m not going to let them pump full of steroids that don’t work anymore any way .
But I know how you are feeling my home is not carpeted so I have to sweep or use to anyway.
I can’t do much house work anymore making the bed, doing the dishes or trying to sweep just causes me so much pain pretty much everything I do hurts so bad .
And it’s so frustrating and depressing
but I to do a lot of sitting around because I just can’t do the things I use to I’m 62 years old , I also have spondylitis and have joined a group called My Spondylitis and I have learned there are a lot of options out there to help with the pain .
Acupuncture is one of them water therapy seem to help make it easer to regain moment and help with the pain I my self have not tried any of these yet, but you should check this support group out you may find some kind of relief and the members are very supportive just some information that might help you find some kind of relief.
I’m going to try the water therapy and see how that works for me.
I hope you can find something that help you because we should not have to learn to live with such debilitating
Pain with all the medical terminology we have now days. Sending prayers and hugs to you hang in there 🙏❤️

Jump to this post

Thank you so much for sharing your experience. It helps just knowing that others feel the same way I do. I'll look into that support group.
Sending support and best wishes to you, also!

REPLY
Profile picture for esthermayo @esthermayo

I grew up with parents who were certain that they always knew why others did and acted the way they did. It’s taken me many years to foster in myself an openness to the possibility that other people are much more complicated than that. Developing a sense of humility abt. My judgment of others has opened some unexpected opportunities for me —but of course not always.

Jump to this post

Judgement of myself and what others may think is definitely the source of this negative thinking. I'm trying to break the pattern of mind-reading what others may think when I'm not able to do what I used to. Humility about who I am and what I'm able to do now is very important, I agree. I'm working on that, and remembering that my situation is so very much better than many people.
Thank you so much for taking the time to respond!

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Profile picture for ellymayhem @ellymayhem

I am 66 and find myself in the same boat. I've worked since age 16 and had to retire at 62 due to my health and to be pretty much the sole caretaker of my mom until she ended up in a nursing home and then passed away last fall. I was diagnosed with ankylosing spondylitis around 5 years ago. Before that, osteoporosis and arthritis. I went to see mom every day at the nursing home until I started having trouble walking. An MRI showed a severe levoconvex scoliosis. I went to a neurosurgeon who sent me for a lumbar injection which finally provided me with relief, unfortunately only for 2 weeks. Next sent me to physical therapy which only made things worse. Then I got a blood clot and was put on Eliquis which stopped the possibility of another injection. Doctor then referred me to another specialist who is sending me back to PT, this time aquatherapy which I start Tuesday... I'm scared to death it will cause more pain and cripple me, but going to try anyway. I'm told if that doesn't work my next step is a spinal cord stimulator. I know exactly how you feel... I wish there was something I could say that would help... I find myself digging out unfinished embroidery type crafts, and have been organizing old photographs to put into scrapbooks... looking into the genealogy of my family to keep my mind off of my situation. Just know you are not alone... I hope things get better for you 🌻

Jump to this post

Reading the responses to my post and realizing that so many others, like you, are struggling with all of the issues that come packaged with chronic pain has been incredibly helpful. I like your ideas about doing crafts and will pull out a crochet project I had abandoned and pick it up again. I think I'll look at craft store websites for other activities that I can do while sitting.
I have read that ankylosing spondylitis is incredibly painful and debilitating. Your strength and resolve are inspiring.

PS- I'm certainly not qualified to comment on the general effectiveness of spinal cord stimulators, but in my case it was not effective at all. If you decide to proceed with it, I hope that you'll experience real relief.
Best wishes to you and thank you for your comments.

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Profile picture for scottij @scottij

I cannot alleviate your pain but with respect to self-worth I believe you have a lot to give others. With your experience you can mentor, coach, and pass on the wisdom of your life from a recliner. There are a lot of younger executives, college students, and kids that could use your help.

It won't lessen your pain, but it might make you feel good.
Best always,
s!
Scott Jensen

Jump to this post

I would love to help students and those newly entering the job market! There is a small college nearby and I'll contact them about volunteering opportunities.
I so appreciate your giving thought to my situation, Scott! Many thanks for responding!

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