Horrible leg pain with fibromyalgia

Posted by fearless @fearless, Jun 6, 2012

Lately, I have been having terrible leg pains I think are associated with my fibromyalgia. Has anyone else experienced this? Also, because of my pain and fatigue I am unable to lose weight which is another downer on top of everything else. Any suggestions for that? I really am feeling rather defeated lately by fibromyalgia and my depression all tied into one.

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@jeweljordan

I have started to have horrible leg pain also. I am not overweight. It is both legs but my right leg is worse. I’ve been tested for PAD and do not have that. It seems it is progression of my Fibromyalgia symptoms .They only thing I found that helps me are leg air pumps available on Amazon . I’ve tried all topical treatments—biofreeze, and multiple pain creams. They used to help the pain but now they don’t do a thing for it. Hope this helps

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I've read that leg air pumps help. For me, a daily walk is a must to reduce misery at night. I do leg edema massages (upu tube) periodically when it wakes me up. Hamstring stretches and clamshell stretches, piriformis stretches help. Pressing on the most painful area of leg to stop spasms and lidocaine patch with splint helps. For long term sitting or standing, compression socks really help - even the cheaper ones from Walmart. I have not found that the meds for nerve pain, like Lyrica, help. I have started THC/CBD 1:2 tincture under tongue is also helpful. Magnesium spray is something I have not tried yet.

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@carolcunnyngham

I completely understand your condition...I am 68 and have had fibro since I was in my early twenties. It took years for a diagnosis because no doctor could understand why I was hurting all over my body. Finally my Dr diagnosed me with fibromyalgia which made me feel better just to know there was a name for it...I felt like everybody thought I was a hypochondriac...some people out of ignorance still do. But the lack of sleep at night because of the terrible leg pain wears me out!! I use a very large heating pad and keep adjusting it to the worst pain areas at night. I've been going to a pain clinic for about 20 years and I take Gabapentin, Belbuca, Naproxen and hydrocodone which help tremendously. The Dr just put me on Belbuca which is a film coated with the medicine that you put in your cheek and let it dissolve...it is an opiod. I have had more relief from that than anything, and I don't have to take as much other meds. My husband and I go out dancing on Saturday nights...pain or not every week... I'm in bed all the next day, but its worth it just to get out and be with friends. I find that trying to get my mind off the pain is very freeing. I wish there was a simple answer to this condition, but regrettably there isn't. Thanks for sharing...

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Try Compression socks - they really help.

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I have to push through the pain ... stretch, stretch a little more, move, move a little more, breathe, breathe a little more .... In a few days it's easier, I feel "lighter" ... then it's easy to keep doing it -- I love that feeling of health and vitality. Peggy

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Do you notice more pain with caffeine intake? If so, I would suspect nerve entrapment in your leg. You could confirm with popliteal injection. I generally experience fibromyalgia as more of a spinal area pain, but I am sure it has different effects on different people. I also really believe that peripheral nerve problems have been written off as fibromyalgia in some patients, so it is always helpful to see someone who treats peripheral nerve pain and knows how to diagnose with tinnel sign and muscle weakness indicators.

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@sarasally2

Fedupwith fatigue.com has suggestions

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Also, consider looking at P.O.T.S. diagnosis if fatigue is worse the more hours you spend laying in bed. If you feel better when you sleep less and are upright most of the day, then this is definitely something to investigate.

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@chrisj1

I was resently diagnosed with Fibro. I had been told I've had it for about 15 years but would not except that I did. I also have degenerative disk desease, OA, and Depression. I too suffer from bad leg cramps, pain, heaviness in my legs from the Febro. I get bad head aches and depression from all of the above. I went to a new Doc last week. So nice. He explained everything and I now know I definetly have Fibro. He added a new medication that has really help with the Fibro pain called Tramadol. I am now taking a combination of Vicodin for the OA and other pain issues I have and Tramadol for Fibro, Cymbalta for pain from Fibro and depression, Clonazepam for aniexty and Ambien to sleep. I am also stretching, trying to be more active and doing a lot of self talk. I too will be happy to take any other suggestions anyone has. I hope this helps you to know you are not alone.

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Vitamin D has been shown to change hormone levels in body (not really a vitamin) and really helps with depression. Also, tramadol is really constipating for some people, so be careful with that one. I would really try and replace drugs with common side effects with more natural solutions like Vitamin D (depression) vs Cymbalta and Melatonin (sleep) vs Muscle Relaxers / Ambien. You might be surprised at how well they work.

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I was diagnosed with that 30 years ago, at the Cleveland Clinic after tons of tests, took BP meds which I couldn't handle, steroids for a short time and salt tablets which made Meniere's worse then compression hose. By the time I got those on I was totally exhausted. Over the years I went from tachycardia to bradycardia then on to several other diagnosis. I had severe hypovolemia. I mentioned to the doctor that when I was pregnant I felt great but after I had the kids I couldn't take care of them because the fatigue, dizziness and pain was so bad so she immediately checked me for hypovolemia, SO don't be afraid to ask questions or symptoms that may seem silly because they are clues to good doctors.

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I've had Mixed Connective Tissue Disease for 20 years or so and it has an element of fibromyalgia. Trying to stay on the basic meds (plaquenil, Etodolac, zoloft), and use movement for lots of relief. I have had hip pain for longer than that, and then sort of a restless leg/ILT/tibia muscle pain for the last four or so. Piriformis syndrome stretches are the bomb for the hip, also helped by cat/cow/child/cobra yoga, clamshell stretches (there are better ones at PT, but this is a start). I've tried the nerve meds, to no avail; Tramadol makes my gastric system rebel. I do put KT (kinesiology) tape horizontally across the acupressure point for the knee (you can find other places online), but if really achy it is a Salonpas lidocaine patch in the same area with knee splint. A daily walk, hamstring stretches, elevation, compression socks and avoiding 90 degree angle of legs when sitting. Epsom salt bath, ice/heat help. For the most part these and PT have reduced the nights of misery. MRI, EMG, XRAYs show no permanent reason for this, but is very common for those with fibromyalgia and other autoimmune ailments. THC/CBD 1:2 helps sleep at night. Working on posture, balance and core at PT did allow some weight loss. We also went to two meals a day, with 14 hour fast between dinner and next day's lunch. Best.

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@useless

How can you soak every 15 minutes? You would be in the tub all day every day

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I think it's just a 15 minute bath whenever you do take one.

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With doctors approval I added over the counter leg cramp pills They worked a lot until my knee surgery then my muscles cramped, twisted, and rolled into knots I was just into the pain and screamed every once in a while Finally figured out I had stopped the leg cramp pill So it really helps me Talk to your doctor about trying that or other leg cramp medicine

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