Hello @moralesjmoe9, welcome to Mayo Clinic Connect. I'm tagging members @valentinasoyyo, @jmoline, and @web28 who also found the Myocardial Bridging discussion to see if they can give an update and share their experience.
@moralesjmoe9 - If you are comfortable sharing, how has the medication your cardiologist prescribed helping? Did you discuss with your current cardiologist about getting a possible referral for an MB specialist in your area? Are you not happy with your current cardiologist, or are you just hoping to see a specific specialist?
I started on Verapamil and I could tell that it was helping to reduce the angina symptoms. After a few weeks I started in with side effects, skin burning sensation, low energy level, I did not feel like moving. So after 3 weeks, I switched to Diltiazem ER, 60 mg capsules 2 X a day. After a month on Diltiazem, I have my stability back and I have been driving for 3 weeks. This took some time to work through controlling the angina, starting from mid March until the present. As I stated initially, I received a stent in 2014 and had stability for 9 years with no meds except low dose aspirin. The angina symptoms started up mid March and with the calcium channel blocker I am now on, I am currently stable. My cardiologist ran me through all necessary testing, showing no blockage but something has shifted or changed. My eyes were affected, muscle cramping on the top left side in my back and some reduced circulation in the right foot. Leads me to believe it is related to some reduction in circulation. I decided to have a Mayo specialist take a second look at my tests and images and provide an opinion. Myocardial Bridge angina symptoms create instability and are not something you can just live with.
Hello @moralesjmoe9, welcome to Mayo Clinic Connect. I'm tagging members @valentinasoyyo, @jmoline, and @web28 who also found the Myocardial Bridging discussion to see if they can give an update and share their experience.
@moralesjmoe9 - If you are comfortable sharing, how has the medication your cardiologist prescribed helping? Did you discuss with your current cardiologist about getting a possible referral for an MB specialist in your area? Are you not happy with your current cardiologist, or are you just hoping to see a specific specialist?
You may want to talk to your Dr, about looking into a different Beta-blocker, I started with Verapmil, which was not a good fit, then Coreg CR ER the brand that worked for 17 years till the manufacturer changed and now it's packaged as the brand Coreg CR but is actually a generic Carvedilol which gave me severe rashes that simulate burns marks all over my body, I now have scarring and severe hyperpigmentation. If you are feeling skin burning please have your doctor look into that immediately. Apparently, Beta-blockers can cause these reactions, I had blood work that revealed toxic levels of neutrophils. My former cardiologist, who I am seeing again changed me over to Bystolic, which seems to be a much better fit for my Myocardio-bridge. Hope you feel better soon, and be well.
You may want to talk to your Dr, about looking into a different Beta-blocker, I started with Verapmil, which was not a good fit, then Coreg CR ER the brand that worked for 17 years till the manufacturer changed and now it's packaged as the brand Coreg CR but is actually a generic Carvedilol which gave me severe rashes that simulate burns marks all over my body, I now have scarring and severe hyperpigmentation. If you are feeling skin burning please have your doctor look into that immediately. Apparently, Beta-blockers can cause these reactions, I had blood work that revealed toxic levels of neutrophils. My former cardiologist, who I am seeing again changed me over to Bystolic, which seems to be a much better fit for my Myocardio-bridge. Hope you feel better soon, and be well.
So far, I've not had any sleep issues with it, however, I would definitely let your Dr know if you see a difference in your sleeping patterns. I had to change some of my own bad habits when I began taking beta-blockers. These were some of the changes I made that helped me.
1) I began taking a walk after dinner, then took my medicine.
2) I stopped taking my phone, and or laptop to bed to work, while in bed.
3) I set an alarm on my phone to go to bed and shut my cell off every night.
Good sleep hygiene is something we can all use, especially those of us on medication that can affect it. I hope this helps. Be well, stay healthy.
I was diagnosed with a MB in 2013 when I had an angiogram. Now I also have two damaged valves and am waiting on my cardiologist to send me to the repair cardio person. Both my parents died from congestive heart failure. it scares the heck out of me that I am heading down that same road after several ER visits thinking I was have a heart attack, chest pain, trouble catching my breath and no energy at all.
I have just received this latest diagnosis from my echo done last week, middle of a blizzard, looking forward to getting in to my cardiologist February 7th.
I am scared, I would rather have this corrected!
Paula
I was diagnosed with MB in 2021, confirmed by tests, angiogram, stress test, etc in 2023. I'm 73. On Metoprolol 75 mg daily. My MB is triggered by even mild exertion, like swiffering kitchen floor, making bed, waling around shopping mall. Surgeon says not serious enough for unroofing, possibly ablation. Any experiences?
Hello @moralesjmoe9, welcome to Mayo Clinic Connect. I'm tagging members @valentinasoyyo, @jmoline, and @web28 who also found the Myocardial Bridging discussion to see if they can give an update and share their experience.
@moralesjmoe9 - If you are comfortable sharing, how has the medication your cardiologist prescribed helping? Did you discuss with your current cardiologist about getting a possible referral for an MB specialist in your area? Are you not happy with your current cardiologist, or are you just hoping to see a specific specialist?
Thank you for this. I am seeing my Cardiologist tomo0rrow morning to go over recent sonogram results that are very upsetting to me. I am going to ask for a referral to a cardiologist who specializes in MB in our area. Thank you. I am so glad for all the support I have been given by Mayo Clinic since I became a patient almost six years ago. What a wonder filled, caring institution.
My cardiothoracic surgeon said my MB was too close to WidowMaker artery to operate/unroof. So that was the end of him being willing to answer any questions. During angiogram, developed stroke like symptoms with Fentanyl (but not a stroke). Rush to ER, get CT, and observation to discover I have a severe sensitivity to Fentanyl. Couldn't talk, move limbs, etc, lasted about 15". Take 75mg Metoprolol daily. Exertion induced angina- like swiffering the kitchen, 1 flight of stairs, any incline at mall, getting out of bathtub. 73years old. Was very active until angina symptoms and syncope in 2022.
Connect
Connect
Like
Helpful
Hug
I started on Verapamil and I could tell that it was helping to reduce the angina symptoms. After a few weeks I started in with side effects, skin burning sensation, low energy level, I did not feel like moving. So after 3 weeks, I switched to Diltiazem ER, 60 mg capsules 2 X a day. After a month on Diltiazem, I have my stability back and I have been driving for 3 weeks. This took some time to work through controlling the angina, starting from mid March until the present. As I stated initially, I received a stent in 2014 and had stability for 9 years with no meds except low dose aspirin. The angina symptoms started up mid March and with the calcium channel blocker I am now on, I am currently stable. My cardiologist ran me through all necessary testing, showing no blockage but something has shifted or changed. My eyes were affected, muscle cramping on the top left side in my back and some reduced circulation in the right foot. Leads me to believe it is related to some reduction in circulation. I decided to have a Mayo specialist take a second look at my tests and images and provide an opinion. Myocardial Bridge angina symptoms create instability and are not something you can just live with.
My cardiologist says. I’m not having issues with myocardial bridging. Doesn’t feel the pressure is coming from the bridging.
-
Like -
Helpful -
Hug
1 ReactionYou may want to talk to your Dr, about looking into a different Beta-blocker, I started with Verapmil, which was not a good fit, then Coreg CR ER the brand that worked for 17 years till the manufacturer changed and now it's packaged as the brand Coreg CR but is actually a generic Carvedilol which gave me severe rashes that simulate burns marks all over my body, I now have scarring and severe hyperpigmentation. If you are feeling skin burning please have your doctor look into that immediately. Apparently, Beta-blockers can cause these reactions, I had blood work that revealed toxic levels of neutrophils. My former cardiologist, who I am seeing again changed me over to Bystolic, which seems to be a much better fit for my Myocardio-bridge. Hope you feel better soon, and be well.
-
Like -
Helpful -
Hug
1 ReactionDoes the Bystolic cause sleeping issue as some other beta blockers do??
So far, I've not had any sleep issues with it, however, I would definitely let your Dr know if you see a difference in your sleeping patterns. I had to change some of my own bad habits when I began taking beta-blockers. These were some of the changes I made that helped me.
1) I began taking a walk after dinner, then took my medicine.
2) I stopped taking my phone, and or laptop to bed to work, while in bed.
3) I set an alarm on my phone to go to bed and shut my cell off every night.
Good sleep hygiene is something we can all use, especially those of us on medication that can affect it. I hope this helps. Be well, stay healthy.
-
Like -
Helpful -
Hug
1 ReactionI was diagnosed with a MB in 2013 when I had an angiogram. Now I also have two damaged valves and am waiting on my cardiologist to send me to the repair cardio person. Both my parents died from congestive heart failure. it scares the heck out of me that I am heading down that same road after several ER visits thinking I was have a heart attack, chest pain, trouble catching my breath and no energy at all.
I have just received this latest diagnosis from my echo done last week, middle of a blizzard, looking forward to getting in to my cardiologist February 7th.
I am scared, I would rather have this corrected!
Paula
I was diagnosed with a MB a couple years ago as well. Now I was just diagnosed with Extraskeletal myxoid chondrosarcoma
I was diagnosed with MB in 2021, confirmed by tests, angiogram, stress test, etc in 2023. I'm 73. On Metoprolol 75 mg daily. My MB is triggered by even mild exertion, like swiffering kitchen floor, making bed, waling around shopping mall. Surgeon says not serious enough for unroofing, possibly ablation. Any experiences?
Thank you for this. I am seeing my Cardiologist tomo0rrow morning to go over recent sonogram results that are very upsetting to me. I am going to ask for a referral to a cardiologist who specializes in MB in our area. Thank you. I am so glad for all the support I have been given by Mayo Clinic since I became a patient almost six years ago. What a wonder filled, caring institution.
My cardiothoracic surgeon said my MB was too close to WidowMaker artery to operate/unroof. So that was the end of him being willing to answer any questions. During angiogram, developed stroke like symptoms with Fentanyl (but not a stroke). Rush to ER, get CT, and observation to discover I have a severe sensitivity to Fentanyl. Couldn't talk, move limbs, etc, lasted about 15". Take 75mg Metoprolol daily. Exertion induced angina- like swiffering the kitchen, 1 flight of stairs, any incline at mall, getting out of bathtub. 73years old. Was very active until angina symptoms and syncope in 2022.