Post-Covid dizziness/off-balance, as most troubling symptom

Thank you! I will see if my Dr. Will test if not I’ll find someone who will. I think advocating for ourselves is our best bet. It’s literally like pulling teeth trying to explain how I’m feeling to Drs. I appreciate your advice and information.

I am a year out from my initial COVID and have been doing PT the entire time. The vestibular part of this has helped me with balance and dizziness even though sensorineural hearing loss was the only ENT finding. My balance has been an ongoing problem but slowly it is improving. The first rehab doctor (after I was discharged from the hospital) said I have a severe proprioceptive disorder but from what is the question. Pt helps but it has and still is a challenge. Prior to my hospitalization with COVID I had some balance problems that were undiagnosed but that had resulted in serious falls with multiple fractures. This was over a 3-4 year period prior to COVID. It was just so much worse and constant after COVID.

The biggest help has been PT. I was eventually diagnosed with POTS as
well but this doesn’t explain all the dizziness and motion sickness or the severity of the issues.

These are great articles if you have the time to read it.
It won’t let me post the web address but
Just add www

scientificamerican.com/article/long-covid-now-looks-like-a-neurological-disease-helping-doctors-to-focus-treatments1/

sfchronicle.com/health/article/long-covid-treatment-18144379.php

Hello,
My Covid hit me in Aug 2021 and still have some of these same symptoms. It's bad in the morning and hard to get out of bed. It gets better as the day goes on, probably around 1:00 or 2:00.
Are your issues worse in the morning?

In the last year I have taken 2 very serious falls FOR NO REASON! Latest fall resulted in hip replacement surgery ....All I was doing was bending down to open a cabinet door and simply fell to my right and ended in hospital. Have never had balance issues and the only thing I can think of is that this is related to Covid. I did take the two shot vaccine regimen after I had already recovered from Covid ... only to take preemptive measures in case I wanted to travel and at that time we all needed to show proof of vaccine. Anyone else have this same problem?????

I just started another round of PT. My therapist has me doing 'Frenkel' exercises. They reproduced the sensations of dizziness and being off balance that was so hard for me to describe. I am making progress with it. CAUTION, go very slowly and take your time getting up after doing them-I went too fast and had several near falls. Maybe have someone around when starting out.

I am fortunate in that my balance is terrible, but I haven't fallen. I am careful to have my walking stick near by or to have something to hang onto. I also don't walk very much, which is not good. Anyway, this has been going on for nearly 4 years now. I have tried physical therapy, balance therapy, medicine, and acupuncture with nothing helping except a special balance therapy and that has only been of limited value. So, I completely sympathize with you and don't offer any advice except to keep trying. Maybe one of these days there will be a cure.

Thank you!!

Hi everyone. Just a personal experience of possible thyroid issue affecting balance, dizziness, movement feeling while still. Have great PT over last year yet felt food/med seemed to make these symptoms worse. In research found the green tea, on low inflammation list provided by my healthcare system, should not be consumed within at least hour after taking thyroid medication. I caution everyone to check for contraindications of anything you ingest as even the nutritionist/dietician/ pcp were unaware of this when I consulted directly about this with each of them over the last year and half☹️ I have noticed slight improvement over the last couple of weeks and hope all of us can benefit from this🌈