Afib - do I just live with it?

Posted by kfox21 @kfox21, May 3, 2021

I am in permanent afib for 18 months. Because my quality of life is good (mild SOB on exertion) I am told to just live with it vs ablation. Is this a good recommendation?

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Joko, that's the book! I ordered the Kindle edition first but then a hard copy to mark up with questions for my EP at Mayo. The session with her was very assuring and she acknowledged that the book was a good resource. Good reading...TA

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@mimio

@kfox21
How is your AFib? I only today saw your post and read through all the responses. The last posting I saw of yours was Apr 25, 2022 and you were going to tele-consult with Dr Munger. Did you have an ablation?

Hope you are doing well.

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I am good. Thanks for asking. I consulted with Dr Munger as noted. The short of it - since my quality of life is good with minimal symptoms and my ejection fraction is good, advice is that ablation introduces more risk than doing nothing (other than meds, diet, exercise). It is all about risk management.

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@tedalmon

Well, as simply as I can describe it, an ablation is a procedure where a catheter is inserted though a peripheral vein into the heart in order to kill cells thought responsible for conveying the errant pacing signals. There are two types, radio frequency,(RF) and cryo (freezing). Usually it starts by isolating the pulmonary veins but can treat other problem areas too. I am having my first one later this week. If you are serious you should do some real research beyond this chat room. I have recommended the book, "The AFIB Cure" by two prominent EP's before and I still think it is a good place to start. Good Luck.

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Thanks, now I know what people are talking about. I appreciate the information.

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I was diagnosed with A-fib at the age of 30. I lived with going in and out of A- fib all of those years. I am now 58 years old. I was cardioverted repeatedly with minimal success. When I went into A-fib, it wiped me out everytime. I was not even able to work. I got pretty tired of it so I chose to get the cardiac ablation two years ago and so far, it has been a blessing. I did have a very short A- fib episode about 4 months post ablation but it only lasted a day. My experience has been a good one. I had a good electrophysiologist complete my ablation. I'm told that sometimes, a person might need to have this procedure repeated as they only last around 5 years. Although success rates I'm sure different from patient to patient. So, my two cents for you folks wondering about completing the ablation, I'd encourage you to find a good doctor who will either tell you your a good candidate or not and go for it if you are as tired as I was with this condition. I always pray about these things before proceeding. God is my rock.🙏👍

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@junqdawg

Not to upset you but I hope you have a BIG BANK ACCT Or VERY VERY GOOD DRUG INSURANCE. MynDr also gave me a STARTER PACK AND A RX FOR ELOQUIS . I about STROKED OUT @ THE PHARMACY WHEN I FILLED THE SCRIPT ... $800 for 30 days 25mg twice a day .. Absolute INSANITY !!!!!! PART D INSURANCE DON'T want to pay for anything that costs more than an ASPIRIN !!! BIG PHARMA is nothing but a MAFIA ORG> in disguise ...JUNQDAWG

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When time comes for open enrollment for Part D, you need to find a new plan. I just started taking Eliquis and like you was shocked when I picked it up. $518 for a month. I have deductable of $505 so fulfilled that and called my insurance the next day to see what next month will cost me. I will have to pay $99 per month. Much better that $518. Will still see if I can find a better Part D when time comes. The pharmacist told me most people with insurance pay about $45 a month. Good luck getting the price down.

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@emo44

When time comes for open enrollment for Part D, you need to find a new plan. I just started taking Eliquis and like you was shocked when I picked it up. $518 for a month. I have deductable of $505 so fulfilled that and called my insurance the next day to see what next month will cost me. I will have to pay $99 per month. Much better that $518. Will still see if I can find a better Part D when time comes. The pharmacist told me most people with insurance pay about $45 a month. Good luck getting the price down.

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I get my Eloquis (Apixaban) through Maple Leaf Meds in Canada.
It takes a few weeks to get them but its a lot cheaper.
$160 for 180 pills.
I scan in my prescription and a check and email them to Maple Leaf Meds.
Maple Leaf Meds 800-998-4016

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@lenmayo

I get my Eloquis (Apixaban) through Maple Leaf Meds in Canada.
It takes a few weeks to get them but its a lot cheaper.
$160 for 180 pills.
I scan in my prescription and a check and email them to Maple Leaf Meds.
Maple Leaf Meds 800-998-4016

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Thanks for the post…. I was looking for a reputable company in Canada…. I will check them out…. Why did you choose Maple Lead Meds?

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I'm wondering if anyone my age (83 or older) has permanent, constant AFIB. I've been told I have 4th stage AFIB which sounds scary, but honestly, since I've had it for a very long time, this news doesn't really scare me. I tried conversion once and was told it wouldn't work and that I should not bother to try again. I HATE taking blood thinners, but the Docs are making me do that to prevent stroke, since I also have high blood pressure. I take medication for the HBP as well, so all of these meds make me tired a lot. How I would love to get rid of AFIB, but I've pretty much accepted that I can't. Anyone out there have a different experience with ending a long term AFIB situation?

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My understanding is that permanent AF has that descriptor because it is an apt descriptor. It fits the syndrome well, and there is little recourse except for two methods that I am aware of (I'm not a health professional): ablation of the SA node and possibly the AV node as well (not by all means, but sometimes) which means the installation of a pacemaker; and chemical treatment to treat symptoms and risks.

Really this is a question to be put to a cardiologist or an electrophysiologist. Some people live for decades in and out of arrythmia, some permanently in arrhythmia, and a great many progress to heart failure. It's not a sure thing, but the literature suggests that, as a progressive disorder, the majority of sufferers will have myocyte disorders and death, and/or heart failure. On another forum, one person knows two aged relatives who have had AF for 24 years and seem to be okay. So, it's an individual journey and experience.

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@pickleball1946

Thanks for the post…. I was looking for a reputable company in Canada…. I will check them out…. Why did you choose Maple Lead Meds?

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I have used PricePro Pharmacy for about 5 years. The doctor can fax them a Rx on a different number than this one. A friendly pharmacist told me about it.
(855) 776-0079

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