Has anyone been using Tymlos?

Thank You!

Forteo cost is 4,300 was to much for me . I tried to get it through Lily help but they didn't accept Medicare so I called RX Advocate they helped me get it for 70.00 a month . I hope this helps someone.

I got Tymlos for free through Radius Assist, for 18 months. (I am on Medicare Advantage.)

I have regular Medicare part AB and D I’m receiving Tymlos now free sample form my doctor until I get the Forteo that doctor wants me to take cause it has less side affects

I’m having a large extensive back surgery September 21 so right now I’m taking 80 mg of Tymlos until I get the Forteo . I noticed with Tymlos I have headaches , weight gain and I hurt more than ever.I’m willing to put up with it so I can build up my bones for the surgery so tired of hurting all the time . Asking for prayers cause I’m 75 years old

@me75 I could not tolerate Forteo at all, but have tolerated Tymlos because the dose is adjustable. The Forteo pen only gives a full dose. I wonder why your doctor said Forteo has fewer side effects.

Everyone is different of course. Maybe your doc can explain. They may have reasons.

The Tymlos pen has "clicks" and if you start at 2 clicks and move up, many of us have found our bodies adjust. We also make progress at less than the full dose. My doc not only approves of this but has adopted this practice with his other patients at a top hospital.

Other things to try: if you take Tymlos in the evening, try in the morning and move around. Hydrate well. Maybe eat something salty if your diet allows. I keep a blood pressure cuff to make sure my bp is not too low.

Headache was my main side effect at first but it went away within a month and in the beginning was less severe when I adjusted the dose. I hope you can make Tymlos work, if your doctor agrees. It is very effective for spine.

Forteo is a very similar medication working through the parathyroid with similar side effects but the dose is not adjustable. Again your doc may have their reasons but hoping the Tymlos starts to be tolerable so you don't have to change!

Good evening @ferrer1105

It sounds like you are ready to begin the Tymlos journey. I see that @wndyshores has responded to you about the "newest" bone-building medication being Evenity. Tymlos followed Forteo. I wish that the "click" apparatus had been available for the two years I was on Tymlos. Still, I had no side effects and the results were positive.

Please continue to be a "chat" member. I would like to know about your experience.

May you be safe, protected and free from inne and outer harm.
Chris

The reason the surgeon wants me to take Forteo is to strengthen my bone’s faster for the surgery I was afraid to take anything because I had a very serious reaction to Prolia I lost some of my jaw bone inside my mouth and had to have surgery done I didn’t lose any teeth , thank God . I still have all my teeth haven’t lost any so far my gums have healed nicely I wouldn’t recommend Prolia to anybody , the most frightening thing I’ve ever been through

Thank you , I will try taking it that way and decrease the dose a little to see if that helps

@me75 maybe try 4 clicks. I recently saw a study that said even that dose can help grow bone, and my doc said that too. Of course 6 or 7 is better but you could start with 4 clicks, which is half a dose. (I started at full dose and then restarted with 2 clicks and moved up weekly.)