1. < Osteoporosis & Bone Health

Has anyone been using Tymlos?

Posted by curlylocks @curlylocks, Aug 1, 2019

Has anyone been using Tymlos? I received devastating news that my bone density score is 4.6, much worse than my age of 72. Recommendation is Tymlos.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Mentor
Chris Trout, Volunteer Mentor | @artscaping | Jun 29, 2023
In reply to @cloud60 "Don’t fall ever actually bc bones are more brittle with Tymlos and so they are harder..." + (show)
@cloud60

Don’t fall ever actually bc bones are more brittle with Tymlos and so they are harder to heal after a fracture.

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Thanks for the note about Tymlos. Do you know where I can find the research that concludes with that decisive result.
Chris

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1 reply
cloud60 | @cloud60 | Jun 29, 2023
In reply to @artscaping "Thanks for the note about Tymlos. Do you know where I can find the research that..." + (show)
@artscaping

Thanks for the note about Tymlos. Do you know where I can find the research that concludes with that decisive result.
Chris

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I actually have been corrected and I was given false info last week so please disregard that

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cloud60 | @cloud60 | Jun 29, 2023
In reply to @windyshores "No I was not suggesting jumping to 7! You primed the pen and are fine. No..." + (show)
@windyshores

No I was not suggesting jumping to 7!

You primed the pen and are fine. No need to prime again.

Air bubbles do not cause redness 🙂

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Today the Tymlos nurse suggested I do the shot in the evening bc of possible “ dizzy “

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cloud60 | @cloud60 | Jun 29, 2023

Do you have the bc ability to remove any posts in your conversation bc I’ve been corrected on misinformation I posted. I incorrectly said Tymlos causes brittle bones can you remove any of my comments on that?

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trathfon62 | @trathfon62 | Jun 30, 2023
In reply to @cloud60 "You are doing two months of Tymlos and switching to evenity?" + (show)
@cloud60

You are doing two months of Tymlos and switching to evenity?

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Why not stick with Tymlos if no side effects?

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kathleenintexas | @kathleenintexas | Jul 11, 2023
In reply to @artscaping "Good evening @kathleenintexas. Welcome to Connect. Thank you for sharing so much of your bone health..." + (show)
@artscaping

Good evening @kathleenintexas. Welcome to Connect. Thank you for sharing so much of your bone health history in your first post. What a shame that you lost the positive bone-building from your experience with Forteo. I do note that you realize some of the test facilities use different scanning equipment. It might be wise to start a new scan series to make sure you have apples to apples.

Tymlos was my choice for two years and I had no side effects. The injections are simple and the refrigeration is not a problem. Unfortunately, I was placed on Tymlos while my scan scores indicated only osteopenia, not osteoporosis. Evidently, the endocrinologist was anxious to "sign me up". So there was no significant change in two years.

The problem for me came after Tymlos and I am happy to share that disaster with you as a warning when you are ready. I am good to go now at the "young" age of 80 and "hope" is alive again.

What are you most concerned about as you begin Tymlos?

May you be safe, protected, and free of inner and outer harm.
Chris

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I am interested in what happened to you after Tymlos; please explain. Thanks. Kathleen

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kathleenintexas | @kathleenintexas | Jul 11, 2023
In reply to @windyshores "@cloud60 bones are not more brittle from Tymlos. Bones become more brittle over time with anti-resorptives..." + (show)
@windyshores

@cloud60 bones are not more brittle from Tymlos. Bones become more brittle over time with anti-resorptives like bisphosphonates (Reclast, Fosamax etc.) and Prolia, and to a lesser extent Evenity (in the last months). Tymlos and Forteo build quality bone, my doc has said.

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My doc (Dr. Mc) said Tymlos speeds up both processes of bone-building, both the resorption and the building, so that the first few months on Tymlos the resorptive process would increase, making the bones more susceptible to fracture. I was more careful with my activities the first three months. I am in my 7th month now, so have confidence that I am past that vulnerable time.

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1 reply
windyshores | @windyshores | Jul 11, 2023
In reply to @kathleenintexas "My doc (Dr. Mc) said Tymlos speeds up both processes of bone-building, both the resorption and..." + (show)
@kathleenintexas

My doc (Dr. Mc) said Tymlos speeds up both processes of bone-building, both the resorption and the building, so that the first few months on Tymlos the resorptive process would increase, making the bones more susceptible to fracture. I was more careful with my activities the first three months. I am in my 7th month now, so have confidence that I am past that vulnerable time.

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@kathleenintexas that is interesting. I also see Dr. Mc and have read both his books and have never heard or seen that! I am curious and will look into that especially since I post on here based on what I have been told by my docs. The first 6 months show the most effectiveness as well.

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ferrer1105 | @ferrer1105 | Aug 19, 2023
In reply to @artscaping "@georgette12, @cireland, @curlylocks, Thank you so much for responding. Those are the exact reasons I chose..." + (show)
@artscaping

@georgette12, @cireland, @curlylocks, Thank you so much for responding. Those are the exact reasons I chose Tymlos @cireland, The other reason is that it doesn't have to be refrigerated. I think @georgette12, you fell into the donut hole. The price is high for a month or so and then it drops to $8.00 give or take a few cents, for the rest of the calendar year. So..overall, it is a good idea. This is a new medication, and you are right it should be state of the art. I would like to stay in touch on Connect with folks who share a common medication for what we all want to avoid, fractures. Please don't fall now until it builds more bone. I am even thinking of getting a snazzy cane until I finish the 18 months.

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I start Ttmlos next week. Quite nervous right now. I hope this works for me. These chats really help. I was freaking out because I didn’t see much chat about Tymlos. Now I see it’s the newest on the market !

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3 replies
windyshores | @windyshores | Aug 19, 2023
In reply to @ferrer1105 "I start Ttmlos next week. Quite nervous right now. I hope this works for me. These..." + (show)
@ferrer1105

I start Ttmlos next week. Quite nervous right now. I hope this works for me. These chats really help. I was freaking out because I didn’t see much chat about Tymlos. Now I see it’s the newest on the market !

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@ferrer1105 Tymlos is not the newest on the market. Evenity is the newest.

I have been on Tymlos for almost two years. I have had excellent gains and went from severe osteoporosis on the DEXA to borderline. Tymlos builds quality bone and helps with healing, according to my docs.

I am sensitive to meds and started Tymlos at a lower dose and ramped up. The pen has "clicks" to measure out the dose. I did 6-7 clicks for a year and a half and have been doing 7 or 8 clicks now- mostly a full dose, finally.

With bone scores that were low and several spinal fractures, I was willing to endure side effects but it hasn't been too bad over time. I have found the side effects ease up so if you have some, try to keep going. I do it in the morning and try to get up and out because activity helps me with side effects. Everyone is different. I also hydrate.

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