Chronic pain - Let's talk
Are there any discussions for chronic pain?
Interested in more discussions like this? Go to the Chronic Pain Support Group.
Are there any discussions for chronic pain?
Interested in more discussions like this? Go to the Chronic Pain Support Group.
@excentrk hello. I am new here. Just joined connect 2 days ago
I am SO fatigued from constant pain as well. I too take tramodol. I have for the last 5 years, but 50 mg tablets. I now take 2 per day. Sometimes they help my excruciating chronic back pain. Sometimes they don’t
I sustained 7 spinal compression fractures 6 years ago, due to severe osteoporosis from taking prednisone for many years for a chronic illness, ulcerative colitis . Had 2 surgeries (kyph) which did help a lot. But I am still left with back pain every day. It has been a monumental struggle. For the first two years I could only walk with a walker. Now I can walk half an hour at a time, sometimes one hour, w/o walker, then take a tramodol and rest. I only use the walker first thing in the AM, to help me out of bed
I wish I knew other people who have suffered compression fractures so I could find out what works for them
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2 Reactions@konrad I am sorry for your plight and the loss of your significant other. I hope you are in therapy? You said the benzo’s haven’t helped and you want off them and you stopped pain meds too? Being off benzo’s is a plus I feel but I presume you’re still experiencing pain? You should reach out to #988 to obtain immediate psychological assistance with your immediate issue of grief recovery and suicidal ideation. Since you’ve written seeking help don’t stop with us! Good luck
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1 Reaction@eviejudith you should check out Buprenorphine for your chronic back pain. It has done wonders for me. Please read: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4675640/
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1 ReactionYes I am theraphy, yes I still have chronic nerve pain from my neck to my feet! My stomach feels like it’s wrap with duct tape, I have to cath to piss, and only because I went plant base only do I have Better bowl movement, my sexual functions cease to work, I hate my life now, I went to Panama and spent $30,000 for stem Cell and so far nothing! And not one person on my medical team have offered me any hope of relief! I been working my ass off to come back from being completely paralyzed! People tell me to be grateful you can now walk, but what about the chronic pain I live with from the moment I wake up to the moment I go to sleep! Why would anyone want to suffer through this, I am just saying if all this is a place to bitch and there is no solution for people what’s the point of this support group! What you want to pat me on the back and tell me good job, before this happened to me, I had the woman of my dreams, I was surfing waves over six stories and in the ocean 6 hours a day doing things I loved to do! Now I walk like a cripple and suffer from morning to night!
Not the way I want to spend the rest of my life! I will fight a while longer but if change can’t happen then I will move in and people should be alright with it!
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1 ReactionHi, @konrad123 - Like other members, I am sorry to read of your struggles and situations. Sometimes, it is difficult for others to articulate empathy when someone is struggling so deeply as yourself. Hopefully their kind words and encouragement offer some comfort during your tough times.
Have you looked at any of the discussions in the Depression & Anxiety group - https://connect.mayoclinic.org/group/depression-anxiety/ ? You questioned what these groups are good for if only for a place for members to vent. Sometimes, that is all a person can do. Mayo Clinic Connect is a collection of patients from across the world trying to make sense of their situation and get comfort through meeting others with experiences similar to their own. If you'd like to seek a second opinion, you can always contact the Mayo Clinic appointment office, http://mayocl.in/1mtmR63.
Like @jenatsky mentioned, if you are feeling suicidal, #988 is a number to call in the worst of times. I personally admire your fight. We all deal with some sort of chronic pain in this group, but not all experiences are created equal. The community is here for you, even if it is to vent your frustrations.
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2 ReactionsIf you’ve shown you’ve made progress like you have described why haven’t you tried getting into a LTR to assist yourself in continuing the improvements. Since as you’ve said you have shown what you’re capable of achieving physically you’re still a candidate under Medicare guidelines to receive rehab services inpatient. This would most likely include psych assistance as well, which you apparently need considering your loss.
I would love to hear more about your experience with Buprenorphine. I have been taking hydrocodone at increasing dosages for about 3 years. I have undiagnosed chronic pain. My dr has talked about converting me to the Butrans (sp?) patch but I’m hesitant because I like having control over how much medicine I am taking and when I take it if that makes sense. I would really appreciate hearing your experience with it.
I have chronic pain from spinal stenosis and I have a back brace to help me walk. Works well. Also, if I am really sore in the morning, I lean over/forward a few times and this helps. Fatigue is an issue at times so I try to nap when able. Has anyone found something better than ablations for pain control for spinal stenosis?
Butrans is the brand name for Buprenorphine administered via a patch that delivers 24/7 pain relief. Not having to worry about remembering or forgetting doses. I was also able to stop using Percocet for breakthrough pain by substituting medical cannabis. I use tincture CBD 150mg 4x day and THC 20mg 4x day. I tried higher THC and lower CBD but no effect on breakthrough pain. Good luck with Butrans.
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2 ReactionsJenataky, do u have constipation with these doses of medical cannabis? Also are you too woozy to drive?