1. < Heart & Blood Health

Mitral Valve & Tricuspid valve regurgitation: when to see a cardiologist?

Posted by mikkeleo @mikkeleo, Apr 6, 2016

I was just diagnosised with Mitral Valve and tricuspid insufficiency. I have had symptoms of fatigue, heart flutters, lightheadness, and one time passed out. Some discomfort in my left chest side area, sharp. Not all the time. My Dr. Told me this is common and we will recheck in 5 yrs. Im nervous to wait that long. What should i do? I cant stop thinking about this.

Thank you.
Sincerely,
Mikkeleo

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

bruloi | @bruloi | Dec 20, 2017
In reply to @hopeful33250 "Hello @bruloi and welcome to Mayo Connect. We are glad that you posted your concerns regarding..." + (show)
@hopeful33250

Hello @bruloi and welcome to Mayo Connect. We are glad that you posted your concerns regarding your abnormal mitral valve anterior leaflet. I can understand your concern. Any problems with the heart seems especially daunting, doesn't it?

The fact that you are fold that your heart works "normal" sounds good. Also that you only need an echocardiogram every 3-5 years also sounds encouraging.

If you feel comfortable sharing a bit more, would you mind telling us what led to this diagnosis? Was it during a routine screening or were you having symptoms? Did your doctor explain how this abnormality came about (i.e., was it genetic or a result of an illness or infection)? Are there others in your family with similar problems?

I would also like to invite others into this conversation. Please meet @bjanderson @tomonthebeach @carnes @lyndylou @frande @dave2455 @shakuni11 @ch246cf10 @lizm53 @tavrm, and volunteer mentor @predictable. These Members may also have some thoughts for you.

We look forward to getting to know you and supporting you during this time of learning and investigating. Most of us have found that the more knowledge we have about a health problem, the better we can cope with it. Please also remember that getting a second opinion. is always in your best interests where you feel a concern.

Teresa

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Hello here full 33250!I don’t have any fast heart beats now. I don’t live near to any of this schools but I will call them. Thank you for the advice.

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rbs1959 | @rbs1959 | Jan 9, 2018

I just had an echo done and was shocked to receive the results in the mail. It's a report intended for the doctor and all the data is in a table format. After staring at it for a bit, I read that my mitral and aortic valves are mildly regurgitating.

The reason for the echo was that I have had symptoms for months. Just in the last 15 months I have had unexplainable PE's, a stroke, and a standing argument between doctors about whether or not I have arythmias. Could these valves have caused these things all along?

I have been with this practice for 15 years since I had an AICD placed for LQT #2. Why would they just mail the results of something so serious? What do I do now?

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jan 9, 2018

Hello @rbs1959

I see this is your first post on Mayo Connect, so let me welcome you.

I can understand your concern in receiving a report without talking with a doctor first. As we at Mayo Connect are not medical professionals, just patients like yourself, we can not interpret the echo report. I would encourage you to call your doctor and ask for some help in understanding the report. Generally speaking, mild regurgitation is not all that serious, however, given some of your other health problems you should definitely have the results discussed with a doctor so that you can put your mind at ease, or seek a second opinion.

You mentioned that you had this echo because of symptoms over the past 15 months. Can you tell us anything about those symptoms?

We look forward to getting to know you better and offering you some support during this time.

Teresa

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777darla | @777darla | Jan 20, 2018
In reply to @caretothepeople "If you're noticing symptoms worsening, I agree with @cynaburst and @colleen_young on seeking a second opinion...." + (show)
@caretothepeople

If you're noticing symptoms worsening, I agree with @cynaburst and @colleen_young on seeking a second opinion.

Here are some resources that explain how to go about that, since it might be a new experience and it's common to have hesitations doing so:
http://www.heart.org/HEARTORG/Conditions/More/ConsumerHealthCare/Getting-a-Second-Medical-Opinion_UCM_434325_Article.jsp#.Vwus_j-hK70

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BEST IN ARIZONA DR ROBERT RILEY IN SCOTTSDALE HES GOING TO FIX MY MITRAL VALVE SOON NEVER MIND JUST SAW YOU MOVED SORRY

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cindym1960 | @cindym1960 | Jan 21, 2018

I have Mitral Valve Disorder and Tricuspid Regurgitation along with AFib (heart was beating almost 200 beats per min and iv med didn't work so they shocked it back into rhythm) along with other health issues but my cardiologist says nothing is wrong with my heart... Am I just stupid or what... no meds for any heart stuff only on my thyroid med and now on Vitamin D and Calcium ... All my other specialists dont listen to me either. What should I do?

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4 replies
Moderator
Lisa Lucier, Moderator | @lisalucier | Jan 21, 2018
In reply to @cindym1960 "I have Mitral Valve Disorder and Tricuspid Regurgitation along with AFib (heart was beating almost 200..." + (show)
@cindym1960

I have Mitral Valve Disorder and Tricuspid Regurgitation along with AFib (heart was beating almost 200 beats per min and iv med didn't work so they shocked it back into rhythm) along with other health issues but my cardiologist says nothing is wrong with my heart... Am I just stupid or what... no meds for any heart stuff only on my thyroid med and now on Vitamin D and Calcium ... All my other specialists dont listen to me either. What should I do?

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Hi, @cindym1960 -- welcome to Mayo Clinic Connect. Please note I have merged your post into this discussion of Mitral Valve Disorder and Tricuspid Regurgitation so that you can meet some other members who have faced similar situations. I'm hoping you might all meet up here on this thread and that other members in this discussion might offer their insights on your recent experience and what's (not) being prescribed for you at this time.

If you feel comfortable, would you share a little more about your history with mitral valve disorder and tricuspid valve regurgitation?

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bjanderson | @bjanderson | Jan 21, 2018
In reply to @cindym1960 "I have Mitral Valve Disorder and Tricuspid Regurgitation along with AFib (heart was beating almost 200..." + (show)
@cindym1960

I have Mitral Valve Disorder and Tricuspid Regurgitation along with AFib (heart was beating almost 200 beats per min and iv med didn't work so they shocked it back into rhythm) along with other health issues but my cardiologist says nothing is wrong with my heart... Am I just stupid or what... no meds for any heart stuff only on my thyroid med and now on Vitamin D and Calcium ... All my other specialists dont listen to me either. What should I do?

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Hi cindym1960. I can’t say anything about meds for mitral valve disorder but
the tricuspid valve is another story. I take no meds for the tricuspid valve regurgitation and mine is severe. I just had a cardio version this past Thursday due to Afib. Second one in 9 months and not sure it has done the trick. I do have heart failure so take drugs for that.
Maybe a second opinion if you aren’t happy with what they’ve told you.
Good luck!
bjanderson2668

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cindym1960 | @cindym1960 | Jan 21, 2018
In reply to @cindym1960 "I have Mitral Valve Disorder and Tricuspid Regurgitation along with AFib (heart was beating almost 200..." + (show)
@cindym1960

I have Mitral Valve Disorder and Tricuspid Regurgitation along with AFib (heart was beating almost 200 beats per min and iv med didn't work so they shocked it back into rhythm) along with other health issues but my cardiologist says nothing is wrong with my heart... Am I just stupid or what... no meds for any heart stuff only on my thyroid med and now on Vitamin D and Calcium ... All my other specialists dont listen to me either. What should I do?

Jump to this post

Thank you for your input... I hope you get better soon!

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cindym1960 | @cindym1960 | Jan 21, 2018
In reply to @cindym1960 "I have Mitral Valve Disorder and Tricuspid Regurgitation along with AFib (heart was beating almost 200..." + (show)
@cindym1960

I have Mitral Valve Disorder and Tricuspid Regurgitation along with AFib (heart was beating almost 200 beats per min and iv med didn't work so they shocked it back into rhythm) along with other health issues but my cardiologist says nothing is wrong with my heart... Am I just stupid or what... no meds for any heart stuff only on my thyroid med and now on Vitamin D and Calcium ... All my other specialists dont listen to me either. What should I do?

Jump to this post

Thank you for your interest and merging my post.

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | Dec 4, 2018

I'd like to invite you to join us today, Tuesday, December 4th at 12 p.m. CT for a video Q&A with Dr. Joseph Dearani, Chair, Cardiovascular Surgery, and Dr. Juan Crestanello, cardiovascular surgeon, about heart valve disease and surgical options.
https://connect.mayoclinic.org/webinar/video-qa-about-heart-valve-disease-and-surgical-options/
Dr. Dearani and Dr. Crestanello will answer questions live. Post your question before and during the broadcast. You can participate in the Video Q&A on Connect by returning to the above page; the video will be shown at the top of the page.

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