They won't do anything. I called the manufacturer and the specialty pharmacy, each assuring me that they are required to report it all to the FDA. Being that I told them this six months ago and haven't heard or read anything, I am doubtful anyone is looking at it. Thanks for the suggestion, though!
Hi tricia225. My endo has suggested Forteo. I haven't started it yet. Are you using the brand name Forteo or generic brand Teriparatide? Just curious as these are my options. Thanks
Hi @leeosteo Just curious, is there a difference with your copay and coverage between generic teriparatide and Forteo? (My HMO only prescribes Forteo and not generic teriparatide.)
Hi and sorry for the delay in responding. I am using the brand name Forteo. There's a shell game between the specialty pharmacies and the manufacturer and, somehow, this 'copay' arrangement works and I haven't paid for any of the medication, so far.
I would encourage you to stick to the brand name as the generics are typically diluted or cut with other agents. Just my perspective.
Good luck!
tricia225, thanks for your reply. Is your insurance through medicare..... plan D (original medicare) or medicare advantage? For original medicare, I know Plan D can vary. Just curious. I'm on original medicare with Plan D through Aetna.
I have been on both Tymlos and Teraparatide. I am on teraparatide right now. I actually prefer Tymlos. I am going to ask my endo if I can go back on it. I had better gains on it. I haven’t experienced weight gain on either one.
ssapp1, why do you prefer tymlos over forteo? What are gains you experienced on Tymlos e.g., 5%, 10% over Forteo? My endo has suggested Forteo, Tymlos or Evenity. I'm leaning toward Forteo because it's been around longer and well tolerated by most.
Hi @leeosteo Just curious, is there a difference with your copay and coverage between generic teriparatide and Forteo? (My HMO only prescribes Forteo and not generic teriparatide.)
tetris, I haven't researched the cost difference yet.. between Forteo brand name and teriparatide generic yet. My Plan D (original medicare) covers both. I suspect the generic would cost less. I'd rather take the brand name because you never know if the generic formulation is the same.
ssapp1, why do you prefer tymlos over forteo? What are gains you experienced on Tymlos e.g., 5%, 10% over Forteo? My endo has suggested Forteo, Tymlos or Evenity. I'm leaning toward Forteo because it's been around longer and well tolerated by most.
@leeosteo
I am not sure of the percentage gains over Forteo, but at least 5%. Tymlos you don’t have to refrigerate, although I did, not sure why. It has an adjustable dosage. I had gains in all areas. On Forteo, actually I am on tereparatide, I had some gains and some losses. My insurance would not cover Forteo, but would cover Tymlos or tereparatide. Hope that helps.
@leeosteo
I am not sure of the percentage gains over Forteo, but at least 5%. Tymlos you don’t have to refrigerate, although I did, not sure why. It has an adjustable dosage. I had gains in all areas. On Forteo, actually I am on tereparatide, I had some gains and some losses. My insurance would not cover Forteo, but would cover Tymlos or tereparatide. Hope that helps.
I could not tolerate Forteo. I even visited an immunologist to try to get on. I have tolerated Tymlos because the adjustable dose allowed me to ramp up, and for most of the time I did not even take a full dose. But gained 20% in spine and 9% in hip. Tymlos is very effective for spine.
I have seen comparison charts and they are very similar but Tymlos came out slightly ahead. It has been around a lot longer then Evenity, which I felt was too new but many docs seem to be prescribing it.
I initially lost weight on Tymlos. Maybe some people eat more to settle nausea down-?
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FDA compiles incoming reports and looks for trends, the number of such reports, etc., etc etc.
Hi @leeosteo Just curious, is there a difference with your copay and coverage between generic teriparatide and Forteo? (My HMO only prescribes Forteo and not generic teriparatide.)
tricia225, thanks for your reply. Is your insurance through medicare..... plan D (original medicare) or medicare advantage? For original medicare, I know Plan D can vary. Just curious. I'm on original medicare with Plan D through Aetna.
ssapp1, why do you prefer tymlos over forteo? What are gains you experienced on Tymlos e.g., 5%, 10% over Forteo? My endo has suggested Forteo, Tymlos or Evenity. I'm leaning toward Forteo because it's been around longer and well tolerated by most.
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1 Reactiontetris, I haven't researched the cost difference yet.. between Forteo brand name and teriparatide generic yet. My Plan D (original medicare) covers both. I suspect the generic would cost less. I'd rather take the brand name because you never know if the generic formulation is the same.
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1 Reaction@leeosteo
I am not sure of the percentage gains over Forteo, but at least 5%. Tymlos you don’t have to refrigerate, although I did, not sure why. It has an adjustable dosage. I had gains in all areas. On Forteo, actually I am on tereparatide, I had some gains and some losses. My insurance would not cover Forteo, but would cover Tymlos or tereparatide. Hope that helps.
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1 Reactionssapp1, this does help. Where were your losses?
@leeosteo I will find my paperwork this week and give you the specifics
I could not tolerate Forteo. I even visited an immunologist to try to get on. I have tolerated Tymlos because the adjustable dose allowed me to ramp up, and for most of the time I did not even take a full dose. But gained 20% in spine and 9% in hip. Tymlos is very effective for spine.
I have seen comparison charts and they are very similar but Tymlos came out slightly ahead. It has been around a lot longer then Evenity, which I felt was too new but many docs seem to be prescribing it.
I initially lost weight on Tymlos. Maybe some people eat more to settle nausea down-?
I also gained weight, on reclast. very distressing