<p>I have had chronic pain for over 40 years and use strong medicine to fight it. My concern is that there are groups trying to ban opioids for everyone except cancer patients and temporary short term use. 19lin</p>
Pain meds don’t help you, try no hard it is to get off those things Her is a bit of my background.
To start off with I don’t really have much to live for anymore. I’m 60 years old, I am not young, I have had a full life, the person who i loved more than anybody or anything, took her one life, two weeks after I got the infection.
I had an infection on my C5 through my C7 from a disk replacement surgery that I had done on that part of my neck, September 7th, On October 3rd, 2023, I had to be rushed to the emergency hospital from the pain i developed from the surgery, after three emergency hospitals, and tons of test, and when I started to lose the mobility of my body from my neck down, they ended doing an emergency surgery, they took out the artificial disk from the first surgery, and they fused my neck. I woke up completely paralyzed from the neck down, I had a tiny little movement in my right hand, the doctor came in and said I would never walk again. The next day I ended up getting some mobility back in my right side and as time went it continued to improve, a week later they put me into a rehab, to work on getting to place I could take care of myself.
I have numbness and burning from my neck down, my penis and my balls burn, my bladder and bowel‘s work very poorly, my sexual functions barely work and when it does get hard it burns and has numbness and is not enjoyable in any way whatsoever, It’s been ten months and I still have all the the same symptoms, what has continued to get better is my mobility, but now it has plateaued!
Like I stated in the very beginning my girlfriend killed her self two weeks after I got the infection. Which was devastating because I loved her so much!
My left leg is stuck where it’s at. I have mobility in the rest of my body, but I walk very poorly because of the nerve pain and because of the paralyzation, the pain is unbearable most of the time day in a day out.
I am on a lot of pain pills, oxycodone on Lyrica and muscle relaxers, and Benzo’s for my depression. I cry all the time and don’t have anything to fight for. I sound pathetic but that is wear i am at, i feel like eating a gun barrel all the time!
But I finally got off the pain meds and my brain is functioning completely different! I have more than I have had through all through this nightmare I am living, and I have exhausted everything and everyone to find a solution and there is not much anyone can do for me!
Will definitely read this
Nothing has had a positive effect on my central pain syndrome from a stroke.. not meds, acupuncture, med marijuana, nothing
Neurologists, pain management specialists all at a loss for ideas
Mayo’s Pain Rehab Center has been recommended to me by both my pain doc and physical therapist. A three week 8am - 5 pm course. Anyone done that course?
I am dealing with Pudendal nerve pain.
I have not had that many, but quite a few. The very first one gave some relief for about 2 weeks. Then, nothing. Ever snce, none have helped. I just had another round a week ago...again, no help. It remnds me of the old saying about insanity: doing the same thing over and over, and expecting a different outcome. Ha! Why don't I learn?
Why did you keep having injections if they didn't help? Just desperate and hopeful, like me? lol.
Injections did not help me, to the contrary, pain became worse as expected for 2 weeks, but after that always remained more painful than before the injection.
Noting else they can do for me, but strongly recommended going to the Mayo Rehabilation Center.
Not easy, 3 weeks daily from 8 until 5. It will be very difficult for me to attend due to the condition I’m dealing with.
But, decided to give it a try - nothing to lose. I am absolutely desperate and don’t know how manage living with this issue. Waiting for insurance approval.
If I can’t do their schedule, I hope they understand.
Pain meds don’t help you, try no hard it is to get off those things Her is a bit of my background.
To start off with I don’t really have much to live for anymore. I’m 60 years old, I am not young, I have had a full life, the person who i loved more than anybody or anything, took her one life, two weeks after I got the infection.
I had an infection on my C5 through my C7 from a disk replacement surgery that I had done on that part of my neck, September 7th, On October 3rd, 2023, I had to be rushed to the emergency hospital from the pain i developed from the surgery, after three emergency hospitals, and tons of test, and when I started to lose the mobility of my body from my neck down, they ended doing an emergency surgery, they took out the artificial disk from the first surgery, and they fused my neck. I woke up completely paralyzed from the neck down, I had a tiny little movement in my right hand, the doctor came in and said I would never walk again. The next day I ended up getting some mobility back in my right side and as time went it continued to improve, a week later they put me into a rehab, to work on getting to place I could take care of myself.
I have numbness and burning from my neck down, my penis and my balls burn, my bladder and bowel‘s work very poorly, my sexual functions barely work and when it does get hard it burns and has numbness and is not enjoyable in any way whatsoever, It’s been ten months and I still have all the the same symptoms, what has continued to get better is my mobility, but now it has plateaued!
Like I stated in the very beginning my girlfriend killed her self two weeks after I got the infection. Which was devastating because I loved her so much!
My left leg is stuck where it’s at. I have mobility in the rest of my body, but I walk very poorly because of the nerve pain and because of the paralyzation, the pain is unbearable most of the time day in a day out.
I am on a lot of pain pills, oxycodone on Lyrica and muscle relaxers, and Benzo’s for my depression. I cry all the time and don’t have anything to fight for. I sound pathetic but that is wear i am at, i feel like eating a gun barrel all the time!
But I finally got off the pain meds and my brain is functioning completely different! I have more than I have had through all through this nightmare I am living, and I have exhausted everything and everyone to find a solution and there is not much anyone can do for me!
Your situation almost brought me to tears. I cannot express my feelings of sadness for you. My pain and problems pale compared to yours. I will give you my advice, for what;s it's worth. I can understand why you have a less than a positive attitude. It seems that the medical community is poorly equipped to handle chronic pain. Ask me how I know. I can tell you this: our mental state can have a tremendous effect upon our physical being.
I want tyou to know that you have a great God who loves you and cares for you. I know, that can be hard to believe when you have gone through the things that you have. All I can tell you is that, according to God's word, the Bible. we have ALL sinned and come short of his glory; the wages of sin is death: BUT, if we confess our sins, he is faithful and just to forgive us our sins and cleanse us from all unrighteousness. John 3:16 says, "For God so loved the world that he gave his one and only son, so that all who believe in Him should not perish but have eternal life".
The most important decision ever made was to acept Jesus as my saviour over 50 years ago. My life was changed forever. Not in some magical, booming experience, but a quiet, comforting way over time. I have seen His hand in my life so many times. Often protecting me in inexplicable ways. Even now, in my chronic pain, I still feel his presence, even though, admittedly, I have gotten pretty angry at times. Those are the times when FAITH comes in. Faith is trusting God even when you can't see any way out.
I am asking to to consider accepting Jesus as your personal saviour right now. It is not a difficult thing, but your heart has to be willing and in the right place. Pray something like this: "Lord, God, I know that I am a sinner and I do not deserve your love and forgiveness. But, you have promised that you WILL do these things. Lord, right here and now I confess my sinns and ask that you forgive me. I accept Jesus as my personal saviour and will do my best to be an example for him before others. Amen."
I would also suggest getting a Bible or a New Testament and read the Gospel of John. It relates Jesus' ministry and the plan of salvation. Hope in something greater than yourself can be a great help in getting through difficult times. I am lfting you up in prayer right now, Konrad. Push through all the bad and look ahead! You are made in the image of God...God does not make junk.
Your situation almost brought me to tears. I cannot express my feelings of sadness for you. My pain and problems pale compared to yours. I will give you my advice, for what;s it's worth. I can understand why you have a less than a positive attitude. It seems that the medical community is poorly equipped to handle chronic pain. Ask me how I know. I can tell you this: our mental state can have a tremendous effect upon our physical being.
I want tyou to know that you have a great God who loves you and cares for you. I know, that can be hard to believe when you have gone through the things that you have. All I can tell you is that, according to God's word, the Bible. we have ALL sinned and come short of his glory; the wages of sin is death: BUT, if we confess our sins, he is faithful and just to forgive us our sins and cleanse us from all unrighteousness. John 3:16 says, "For God so loved the world that he gave his one and only son, so that all who believe in Him should not perish but have eternal life".
The most important decision ever made was to acept Jesus as my saviour over 50 years ago. My life was changed forever. Not in some magical, booming experience, but a quiet, comforting way over time. I have seen His hand in my life so many times. Often protecting me in inexplicable ways. Even now, in my chronic pain, I still feel his presence, even though, admittedly, I have gotten pretty angry at times. Those are the times when FAITH comes in. Faith is trusting God even when you can't see any way out.
I am asking to to consider accepting Jesus as your personal saviour right now. It is not a difficult thing, but your heart has to be willing and in the right place. Pray something like this: "Lord, God, I know that I am a sinner and I do not deserve your love and forgiveness. But, you have promised that you WILL do these things. Lord, right here and now I confess my sinns and ask that you forgive me. I accept Jesus as my personal saviour and will do my best to be an example for him before others. Amen."
I would also suggest getting a Bible or a New Testament and read the Gospel of John. It relates Jesus' ministry and the plan of salvation. Hope in something greater than yourself can be a great help in getting through difficult times. I am lfting you up in prayer right now, Konrad. Push through all the bad and look ahead! You are made in the image of God...God does not make junk.
Thank you for your reply, I know it is from your heart, No he did not make me as junk but he certainly has a very sick humor to allow man to to all the sick things he done over and over in his name! Why did he do this to me, so I can accept his so into my life while my girlfriend is forbidden in his kingdom because she committed suicide! No I don’t remember anything before I was born I don’t think I will be tempering anything after I die, I take life as it is dealt you and we just do our very best! But I am happy for your peace! God bless
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Pain meds don’t help you, try no hard it is to get off those things Her is a bit of my background.
To start off with I don’t really have much to live for anymore. I’m 60 years old, I am not young, I have had a full life, the person who i loved more than anybody or anything, took her one life, two weeks after I got the infection.
I had an infection on my C5 through my C7 from a disk replacement surgery that I had done on that part of my neck, September 7th, On October 3rd, 2023, I had to be rushed to the emergency hospital from the pain i developed from the surgery, after three emergency hospitals, and tons of test, and when I started to lose the mobility of my body from my neck down, they ended doing an emergency surgery, they took out the artificial disk from the first surgery, and they fused my neck. I woke up completely paralyzed from the neck down, I had a tiny little movement in my right hand, the doctor came in and said I would never walk again. The next day I ended up getting some mobility back in my right side and as time went it continued to improve, a week later they put me into a rehab, to work on getting to place I could take care of myself.
I have numbness and burning from my neck down, my penis and my balls burn, my bladder and bowel‘s work very poorly, my sexual functions barely work and when it does get hard it burns and has numbness and is not enjoyable in any way whatsoever, It’s been ten months and I still have all the the same symptoms, what has continued to get better is my mobility, but now it has plateaued!
Like I stated in the very beginning my girlfriend killed her self two weeks after I got the infection. Which was devastating because I loved her so much!
My left leg is stuck where it’s at. I have mobility in the rest of my body, but I walk very poorly because of the nerve pain and because of the paralyzation, the pain is unbearable most of the time day in a day out.
I am on a lot of pain pills, oxycodone on Lyrica and muscle relaxers, and Benzo’s for my depression. I cry all the time and don’t have anything to fight for. I sound pathetic but that is wear i am at, i feel like eating a gun barrel all the time!
But I finally got off the pain meds and my brain is functioning completely different! I have more than I have had through all through this nightmare I am living, and I have exhausted everything and everyone to find a solution and there is not much anyone can do for me!
Look for somatic psychotherapy.read Dr shubiNer on u tube or David Hanscom on u tube.see a somatic therapist. Results could be amazing
Will definitely read this
Nothing has had a positive effect on my central pain syndrome from a stroke.. not meds, acupuncture, med marijuana, nothing
Neurologists, pain management specialists all at a loss for ideas
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Helpful -
Hug
1 ReactionMayo’s Pain Rehab Center has been recommended to me by both my pain doc and physical therapist. A three week 8am - 5 pm course. Anyone done that course?
I am dealing with Pudendal nerve pain.
I am dealing with pudendal nerve pain too. I am interested in finding out how to manage the pain. What are others doing.
I had 30 epidural injections. They did not help. I am studying somatic brain thinking. It is interesting. Dr.levine and Sarno have on line talks.
I have not had that many, but quite a few. The very first one gave some relief for about 2 weeks. Then, nothing. Ever snce, none have helped. I just had another round a week ago...again, no help. It remnds me of the old saying about insanity: doing the same thing over and over, and expecting a different outcome. Ha! Why don't I learn?
Why did you keep having injections if they didn't help? Just desperate and hopeful, like me? lol.
Injections did not help me, to the contrary, pain became worse as expected for 2 weeks, but after that always remained more painful than before the injection.
Noting else they can do for me, but strongly recommended going to the Mayo Rehabilation Center.
Not easy, 3 weeks daily from 8 until 5. It will be very difficult for me to attend due to the condition I’m dealing with.
But, decided to give it a try - nothing to lose. I am absolutely desperate and don’t know how manage living with this issue. Waiting for insurance approval.
If I can’t do their schedule, I hope they understand.
-
Like -
Helpful -
Hug
1 ReactionYour situation almost brought me to tears. I cannot express my feelings of sadness for you. My pain and problems pale compared to yours. I will give you my advice, for what;s it's worth. I can understand why you have a less than a positive attitude. It seems that the medical community is poorly equipped to handle chronic pain. Ask me how I know. I can tell you this: our mental state can have a tremendous effect upon our physical being.
I want tyou to know that you have a great God who loves you and cares for you. I know, that can be hard to believe when you have gone through the things that you have. All I can tell you is that, according to God's word, the Bible. we have ALL sinned and come short of his glory; the wages of sin is death: BUT, if we confess our sins, he is faithful and just to forgive us our sins and cleanse us from all unrighteousness. John 3:16 says, "For God so loved the world that he gave his one and only son, so that all who believe in Him should not perish but have eternal life".
The most important decision ever made was to acept Jesus as my saviour over 50 years ago. My life was changed forever. Not in some magical, booming experience, but a quiet, comforting way over time. I have seen His hand in my life so many times. Often protecting me in inexplicable ways. Even now, in my chronic pain, I still feel his presence, even though, admittedly, I have gotten pretty angry at times. Those are the times when FAITH comes in. Faith is trusting God even when you can't see any way out.
I am asking to to consider accepting Jesus as your personal saviour right now. It is not a difficult thing, but your heart has to be willing and in the right place. Pray something like this: "Lord, God, I know that I am a sinner and I do not deserve your love and forgiveness. But, you have promised that you WILL do these things. Lord, right here and now I confess my sinns and ask that you forgive me. I accept Jesus as my personal saviour and will do my best to be an example for him before others. Amen."
I would also suggest getting a Bible or a New Testament and read the Gospel of John. It relates Jesus' ministry and the plan of salvation. Hope in something greater than yourself can be a great help in getting through difficult times. I am lfting you up in prayer right now, Konrad. Push through all the bad and look ahead! You are made in the image of God...God does not make junk.
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Helpful -
Hug
1 ReactionThank you for your reply, I know it is from your heart, No he did not make me as junk but he certainly has a very sick humor to allow man to to all the sick things he done over and over in his name! Why did he do this to me, so I can accept his so into my life while my girlfriend is forbidden in his kingdom because she committed suicide! No I don’t remember anything before I was born I don’t think I will be tempering anything after I die, I take life as it is dealt you and we just do our very best! But I am happy for your peace! God bless