Alternative treatments

@sweethighland I use the 7% saline and I have never had a specific time to do it. Sometimes I do it in the morning and sometimes I do it at night....whatever my schedule allows me to do really. Others might chime in but I think just as long as you do the saline that's what counts. I'm not sure the time of day of matters. Nan

Hi, I wish I would have found this site years ago. I’ve been coughing for 16 yrs. Dr.s had no answer. X-ray, ct scans showed nodules but weren’t concerned. I was finally diagnosed with bronchietasis 3 yrs. ago and was RX’d Breo, ipratropium, aerobika, and 10% saline. The 10% saline hurt my lungs coughing so much. I had one positive sputum but for 2 1/2 years all further sputum samples were rejected because of too much mucus. Finally went to Stanford where they did induced sputum tests and 3 positive Tests later finally a diagnosis = MAC with bronchiectasis. I realized that the 10% saline was harder on my lungs than the induced mixture and asked for 7% which still makes me cough but doesn’t make me feel like vomiting. Why don’t doctors tell you more?

I started the 3 antibiotic protocol for 12 months. I’m just exhausted all the time. I have absolutely no immunity left. I have a 1 1/2 yr grandson and I catch every bug he’s had so I’ve been sick all year. This is pretty depressing.

Hi, I wish I would have found this site years ago. I’ve been coughing for 16 yrs. Dr.s had no answer. X-ray, ct scans showed nodules but weren’t concerned. I was finally diagnosed with bronchietasis 3 yrs. ago and was RX’d Breo, ipratropium, aerobika, and 10% saline. The 10% saline hurt my lungs coughing so much. I had one positive sputum but for 2 1/2 years all further sputum samples were rejected because of too much mucus. Finally went to Stanford where they did induced sputum tests and 3 positive Tests later finally a diagnosis = MAC with bronchiectasis. I realized that the 10% saline was harder on my lungs than the induced mixture and asked for 7% which still makes me cough but doesn’t make me feel like vomiting. Why don’t doctors tell you more?

I started the 3 antibiotic protocol for 12 months. I’m just exhausted all the time. I have absolutely no immunity left. I have a 1 1/2 yr grandson and I catch every bug he’s had so I’ve been sick all year. This is pretty depressing.

Hi, I wish I would have found this site years ago. I’ve been coughing for 16 yrs. Dr.s had no answer. X-ray, ct scans showed nodules but weren’t concerned. I was finally diagnosed with bronchietasis 3 yrs. ago and was RX’d Breo, ipratropium, aerobika, and 10% saline. The 10% saline hurt my lungs coughing so much. I had one positive sputum but for 2 1/2 years all further sputum samples were rejected because of too much mucus. Finally went to Stanford where they did induced sputum tests and 3 positive Tests later finally a diagnosis = MAC with bronchiectasis. I realized that the 10% saline was harder on my lungs than the induced mixture and asked for 7% which still makes me cough but doesn’t make me feel like vomiting. Why don’t doctors tell you more?

I started the 3 antibiotic protocol for 12 months. I’m just exhausted all the time. I have absolutely no immunity left. I have a 1 1/2 yr grandson and I catch every bug he’s had so I’ve been sick all year. This is pretty depressing.

Hi, I wish I would have found this site years ago. I’ve been coughing for 16 yrs. Dr.s had no answer. X-ray, ct scans showed nodules but weren’t concerned. I was finally diagnosed with bronchietasis 3 yrs. ago and was RX’d Breo, ipratropium, aerobika, and 10% saline. The 10% saline hurt my lungs coughing so much. I had one positive sputum but for 2 1/2 years all further sputum samples were rejected because of too much mucus. Finally went to Stanford where they did induced sputum tests and 3 positive Tests later finally a diagnosis = MAC with bronchiectasis. I realized that the 10% saline was harder on my lungs than the induced mixture and asked for 7% which still makes me cough but doesn’t make me feel like vomiting. Why don’t doctors tell you more?

I started the 3 antibiotic protocol for 12 months. I’m just exhausted all the time. I have absolutely no immunity left. I have a 1 1/2 yr grandson and I catch every bug he’s had so I’ve been sick all year. This is pretty depressing.

SO sorry Josey. Briefly: Find a respected naturopath or other integrative or alternative practitioner for some integrative/alternative support as well as seeing the MDs - even if you can only afford to see one for a short time or now & again. Not advising you to do same, but I stopped taking prescriptions from pulmonologists 4 years ago when I was told I was at the point - nightly soaking night sweats, constant shortness of breath, already thin lost 15-=20 lbs. - where I had to take "the cocktail" oI 3 antibiotics for 18 months to 2 years. Long story, but suffice to say I nebulize with l-glutathione powder with 7% sodium chloride, get it in capsule (powdered) form - from Theranaturals online (theranaturals.com) cuz much less expensive than the gold standard liquid form which you should use if you can afford it; I can't. Also NAC, proteolytic enzymes (big help for MAC), liquid & encapsulated herbs e.g. olive leaf extract, sometimes lomatium, lobelia; also pau d'arco; etc. also black cumin seed oil caps. Along with basic supplements like C, D &E. But you really need some more specific guidance here. The point is, there's definitely hope! Meanwhile focus on everything at all positive in your life, practice gratitude, you know the "spiritual" drill - and it works. & you'll also b in this old lady's (idiosyncratic) prayers and meditations. Blessings!

Not sure whether to post this on this thread or on a thread relating to thinning mucus/airway clearance, but.... I've been diagnoses with BE for 2 years or so , had a bronchoscopy which showed both aspergillosis and mac, and have had a CT with 3 small cavities and lots of nodules.

I see an acupuncturist every other week and am currently also taking an herbal extract ( like a tincture but without the alcohol) that I think helps thin mucus - even more than NAC for me. The formula is Strengthen Lungs/Deep Breath/ and Purge Phlem. I think it's the Purge Phlem which is helping with thinning mucus, making it easier to cough up. The new name for this evidently is "Purge Sticky Stuff" . I'm going to see if the purge sticky stuff comes in pill form, as the extract is pretty expensive.

Leslie 51