Anyone else out there with extremely high lipoprotein (a)?

Lots of studies ...

Hi. I just found out my 9 year old daughter has an lpa level of 195 on top of her cholesterol being 313 (ldl is super high as well at 240). Her father died at 45 of a sudden heart attack. He was not on any statins. I’m very saddened and scared. It’s consuming my thoughts. I’m going to put her on statins and have started a healthy diet where she’s lost 7 lbs and is exercising much more. But after all the research I’m doing it’s so hard not to think she will not be able to live a long life. Any thoughts or advice will be very appreciated. Thank you!

Hello @cwalgamotte
In my family tree from my father's side all men have passed away due to Cardiac blockages.
ages varying 60 to 95, to me it seems family has been genetically predisposed to Cardiac issues
I have had BP & High cholesterol from an early age below around 10 yrs, ( I still engaged in sports in youth in spite of BP Meds) so far so good .. in am in 70s, of course I do watch my diet and walk around 5 miles, also had a kidney transplant completing 4 years this month.
As long as we identify the issues & pursue a balanced approach.
Best

Primal Kitchen makes great salad dressings with avocado oil, and I recently found some California Olive Ranch dressings that only have olive oil in them.

Look up Dr. Caldwell Esselstyn and Dr. Dean Ornish on YouTube or their books.
Do it for diet for yourself and her (you will feel great and help her) along with the medicines your/her doctors recommend (don’t skip doctor recommendations or medicines if prescribed).

Mine has tested twice as greater than 600. Cardiologist wanted to put me on Leqvio but insurance company made me jump through hoops with other meds since Leqvio isn’t in their formulary. He says in a year there will be better meds to lower Lipoprotein a but until then we’re seeing if my insurance company will cover Praluent or Repatha.

I have read that fasting has no effect on Lp(a). I know that it doesn't help mine which was 125 mg/dl. I am 52, and the doctors who have checked my neck and heart seem to think that they sound OK. In any event, I have been taking 2000 mg of C for at least 26 years. A dentist who later committed suicide put me on it. I have also read about the Linus Pauling Protocol of taking 3000 mg of Vitamin C and 3000 mg of L-lysine which I am taking spaced out. Sadly, I didn't even know about the Lp(a) until this year. I have also taken Vitamin D at 5000 iu for several years and high dose fish oil. I have tried to stay fit. I was able to reverse pre-diabetes for several years although it has been creeping up slightly with Statin use.

I am 52 almost 53 and just found out that I have a high Lp(a) reading as well. Looking up the Pauling Protocol. I have been taking 2000 mg Vitamin C for decades now. It also helps with gum disease. Have her eat walnuts (or almonds, pistachios, cashews, macadamia nuts, etc.) 2 to 3 times a week, get plenty of sunshine for Vitamin D, start Vitamin C and eat more vegetables. Ditch sodas! Drink only unsweetened tea with sweet-n-low, coffee, or water. Avoid fruit juices where fiber has been removed. Control the things you can. Get the LDL down. There are studies that indicate that a lower LDL will reduce the teeth in a high Lp(a). Look into lipid aphoresis to buy time if needed.

Visit a Seventh Day Adventist Church and try to learn how they eat. Also, search up additional info about Blue Zones. I wound up doing those things and wound up joining the church about a year afterwards after listening to Mark Fox, but they will not pressure you to join.

WELCOME to Mayo Connect @peugh314! I see you have shared a lot of information regarding high Lipoprotein (a) here with others. From what I know, which honestly isn't much, there is no dietary or exercise program that can help with high levels of Lp (a), but there certainly are no downsides to eating a healthy diet and maintaining an active lifestyle. Lipoprotein apheresis seems like the only approved therapy. Also from what I have read, the Lp (a) test is not part of a routine lipid panel, and therefore many may have this and not know it, so I am glad you brought up some of your insights for others to think about and ask their doctor if they think it is appropriate to test for this. I think we have to be careful when we recommend supplements and such because we are not doctors here, and what is good for one may not be good for another, you know what I mean? As for the Seventh Day Adventist Diet, you certainly do not have to attend the church to find out about their dietary guidelines/restrictions, it is online in many places for others to explore. There has been a 60 year long-term study done on the SDA diet, and they show the benefits of eating clean, plant-based food.
https://www.webmd.com/diet/what-is-the-seventh-day-adventist-diet
Here is a quick read I found from WebMD regarding the SDA diet that may be helpful, and this is just one of many online articles out there. It is not a cure, as you stated, but it certainly can't hurt either! Do you have a history of any of the other risk factors? How did your doctor come to order the test for you?