Fibromyalgia Was the most chronic pain you could imagine.

Posted by tresemae @tresemae, Jul 28, 2023

I started pain management not opioids anymore. I have been getting nerve blocks 2 and next they will do ablation of the nerves that were causing my pain. I can't tell you how good it has worked for me. I'm sitting here right now pain free finally. No more pain meds I sleep all night and wake with no pain, To all of you who suffer from this dammed thing I would suggest doing it. GOD I FEEL GOOD.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Rachel, Volunteer Mentor | @rwinney | Aug 2, 2023

In reply to @finny4606 "I’m interested in knowing more." + (show)

Hello @finny4606 - thanks for your reply. I'm curious of your thoughts on Dr. Sletten's CSS video and his pain management approach? Did any part resonate with you?

tresemae | @tresemae | Aug 2, 2023

In reply to @jwkelly72 "How often do you do these treatments." + (show)

2 times and he does 6 injections in my neck at a time. 3 to numb it and then 3 more which is medication. Before they do the nerve ablation it is really just to test and make sure they got the right nerve. But it last about 2 weeks. I will soon get the last injection that will burn the nerve. And I'm done. They say it can last up to 2 years hopefully.

tresemae | @tresemae | Aug 2, 2023

In reply to @irr4et "I desperately need an ablation of my left occipital nerve but I was told insurance (Medicare)..." + (show)

No i didn't have that problem of it leaking. It has worked good for me. I haven't had the ablation yet. But no chronic pain at all. So I know I will benefit from the procedure. I had the 2 lidocaine injections. Going for the ablation next.

foxylloyd | @foxylloyd | Aug 2, 2023

In reply to @foxylloyd "I am wondering if I’m going to die from torture or from sleep deprivation. My pain..." + (show)

Thanks for the hug. foxylloyd

vellen | @vellen | Aug 5, 2023

I began taking Topamax. It tells the nerves to calm the heck down and also decreases the severity of the migraines I get. I hope I'll stop getting them altogether but for now, I'm breaking apart the Imitrex and can probably go down from the 100 mg to 25. As for the fibro pain, I was taking 2-3 Tramadol per day and am down to 1-2.
Oh and I've lost weight as a side effect.

tresemae | @tresemae | Aug 5, 2023

In reply to @vellen "I began taking Topamax. It tells the nerves to calm the heck down and also decreases..." + (show)

So you get those mad migraine headaches. I couldn't handle that. What nerves does the medication calm down? Is it tied with the headaches? or the spine? Neck ,Back ?

vellen | @vellen | Aug 5, 2023

The nerves it calms are tied to the Fibronyalgia as well as what causes the migraines for me.
The migraines I get started about five years after I was diagnosed with Fibro. I started on 25mg of Imitrex and over the past 20 years have been increased to 100mg. Now on Topamax almost a month (started it on July 11) the migraines are becoming much milder. I have different triggers, stress being one and the other is the nerve on the right side of my neck that goes down my back.