Neuropathy Pain at Night: What helps?

I'm not gonna go down that road what I think of the FDA/DEA machine. I will tell you I have severe neuropathy tbat never stops. Tried 5 meds that did nit work, and made me a zombie. One did work, but stopped working after 6 months. Duloxetine. But it stopped working entirely. And was difficult to taper off despite it no longer helping neuropathy. You know what HAS worked now for over a year? Kratom. Yes, you have to get a 3rd party tested kratom preferably from a seller thats a member of American Kratom Asociation. These physicians prescribing Gabapentin, Lyrica and all that othe stuff are clueless. I am for anything that works, pharmaceutical or natural. I have a friend tbat says Tramadol helps their severe neuropathy. No Dr. ever told me about that one though. Only Kratom, and NOTHING ELSE, has worked for me long term. It takes away 60-70% of the pain, making life bearable.

@donfeld, You will notice I changed the discussion title to more reflect the topic and help members find your discussion. You mentioned in another discussion that you slept in a recliner and the night pain went away. Do you still find that helpful to reduce or make the pain go away?

I have lymphedema and my right leg tends to swell up during the day even though I wear compression socks to help with the lymphedema. I put a pillow under the mattress at the bottom of the bed to elevate my legs slight and help with the fluid retention and swelling. I've read where other members have used blanket and sheet tents to raise the sheets off of their legs to help with the pain they feel when the sheets touch their legs. There is another discussion you might find helpful if you have similar problems with fluid retention.

Correlation between increased neuropathy pain and fluid retention?: https://connect.mayoclinic.org/discussion/correlation-between-increased-neuropathy-pain-and-fluid-retention/

@jeffrapp @rwinney @jimhd @artscaping may also have some thoughts about neuropathy pain at night and what helps.

I'm not gonna go down that road what I think of the FDA/DEA machine. I will tell you I have severe neuropathy tbat never stops. Tried 5 meds that did nit work, and made me a zombie. One did work, but stopped working after 6 months. Duloxetine. But it stopped working entirely. And was difficult to taper off despite it no longer helping neuropathy. You know what HAS worked now for over a year? Kratom. Yes, you have to get a 3rd party tested kratom preferably from a seller thats a member of American Kratom Asociation. These physicians prescribing Gabapentin, Lyrica and all that othe stuff are clueless. I am for anything that works, pharmaceutical or natural. I have a friend tbat says Tramadol helps their severe neuropathy. No Dr. ever told me about that one though. Only Kratom, and NOTHING ELSE, has worked for me long term. It takes away 60-70% of the pain, making life bearable.

My husband has had neuropathy for over 6 years. When he is in pain l massage his legs with Amlactin. Then give him 2 Tylenol. He goes right to sleep. He is very active for a 91 year old. He swims and has PT. All these things help him deal with his pain. Amlactin is over the counter and can be found at Costco. There a stronger prescription form that you can get from your doctor.

@donfeld, good afternoon, thanks for presenting this discussion of nighttime pain from neuropathy. My goal is to sleep through the early morning pain and the itching.

So....in in addition to my evening tincture of 1:3 CBD/THC.....I add a 2:1 CBD/THC dropper just as I go to bed and I call it my morning insurance policy. I am also now taking Doxepin at bedtime to prevent the itching that has me in a stranglehold these days. I am sure things will change and I will have to adjust.

I just don't like this neuropathy stuff to get a head start on me when it changes direction. I refer to it as my friend "NP" and try to not let this friend get the upper hand.

May you be free of suffering.
Chris

I find that by taking Tramadol 50 mg before bed, and then 2 ibuprofen tabs, it helps me get to sleep.
Occas the pain in my feet wake me up in the am, as does the need to go to the bathroom.
My bladder is shot and I need to go every 1-2 hrs depending g on what liquids I have had.
I have no feeling when I have a bowel movement, I have to look into the bowl to see if I have had one.
I’m assuming this is all part of the neuropathy.
Anyone else have bladder and bowel issues.

I find that by taking Tramadol 50 mg before bed, and then 2 ibuprofen tabs, it helps me get to sleep.
Occas the pain in my feet wake me up in the am, as does the need to go to the bathroom.
My bladder is shot and I need to go every 1-2 hrs depending g on what liquids I have had.
I have no feeling when I have a bowel movement, I have to look into the bowl to see if I have had one.
I’m assuming this is all part of the neuropathy.
Anyone else have bladder and bowel issues.

am an 85 yr old female who was diagnosed with peripheral neuropathy in all four extremeities in the early 1990s, caused by pernicious anemia. I received B12 shots and then B12 pills for about fourteen years and the numbness was greatly reduced when in 2014 I was diagnosed with Small fiber neuropathy. At that time I only had pain, heat, itchiness and swelling in two toes. I declined a prescription because the pain was infrequent.

In Dec 2022 my PCP ordered a head c-t scan because I reported balance and falling issues. She then referred me to a neurologist and my appointment is in September. I have never talked with a neurologist about any of my concerns. I have never talked with my PCP, really, about bowel and bladder incontinence so I don’t know if they are related to the neuropathy or perhaps the diuretics I take for congestive heart failure. I have no sense of having a full bladder but when I stand up I have a flood. I can rarely walk to the bathroom without urinating before I get there and I rarely feel anything when I pass fecal matter. I set an alarm to remind me to go to the bathroom, I was interested to see that someone else was raising these issues. Is it neuropathy?