Non Hodgkin's lymphoma

Posted by maisyann @maisyann, Mar 22, 2016

Would like to find a support group in regards to non hodgkins lymphatic B cell.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

jjohnson8747 | @jjohnson8747 | Sep 21, 2018

You are so right about the walking. You dont have to go far to feel better! Sometimes I just have to force myself to get out!

Jackie, Alumna Mentor | @travelgirl | Sep 21, 2018

In reply to @jjohnson8747 "You are so right about the walking. You dont have to go far to feel better!..." + (show)

@jjohnson8747 It's hard some days to push ourselves. I work from home and trust me it is so easy to be a couch potato. Which does not help at all. Since our lymph nodes are sluggish from the disease. We need to help get the fluids moving. Exercise does that. I try and get to the gym 3 times a week. ride the bike and walk the track there. Have you tried the livestrong exercise program for cancer patients? It is free and offered through your local YMCA. That program really helped me see my potential of what I was able to do after my diagnosis.
Here is the link for that.
https://www.livestrong.org/what-we-do/program/livestrong-at-the-ymca
Let me know if this help you?
Jackie

jjohnson8747 | @jjohnson8747 | Sep 21, 2018

In reply to @travelgirl "@jjohnson8747 It's hard some days to push ourselves. I work from home and trust me it..." + (show)

Thanks Jackie! I live in Minnesota and it's starting to cool off. I had trouble with the cold last winter. There is a YMCA about 2 miles from me, I'll check it out!

jjohnson8747 | @jjohnson8747 | Oct 2, 2018

In reply to @ginpene05 "Some ideas- keep a detailed food journal, take max doses of the simethicome and mylanta, avoid..." + (show)

I have the results of my pet scan. My Lymphoma is back and aggressive. Doctor thinks it may have morphed to large cell. Biopsies scheduled for this week. 🙁

Jackie, Alumna Mentor | @travelgirl | Oct 2, 2018

@jjohnson8747 Ugh I'm so sorry ..Last we spoke you were tired and dragging yourself to do things. Was that the only symptoms, you being tired?
I think though if I'm not mistaken, the lady across the hall from me the same thing happened to her.
She was given treatments and is fine today. She is in her very late seventies. It has been about 5 years now and she hasn't had another occurrence..
Hang in there stay positive and keep pushing yourself. I will pray it all works out for you..
Jackie

jjohnson8747 | @jjohnson8747 | Oct 3, 2018

In reply to @travelgirl "@jjohnson8747 Ugh I'm so sorry ..Last we spoke you were tired and dragging yourself to do..." + (show)

Thanks Jackie! I'm feeling down and this helps😁

ckeys | @ckeys | Oct 4, 2018

In reply to @seekhealth2016 "I would like to know more about your operation's details and the food that helped you." + (show)

Personally I found fresh fruit… Especially berries, berry milkshakes, and Asian food the easiest to eat. The umami really helps when you can’t taste much!

ginpene | @ginpene05 | Oct 5, 2018

In reply to @jjohnson8747 "I have the results of my pet scan. My Lymphoma is back and aggressive. Doctor thinks..." + (show)

I am sorry to hear about the recurrence. Do you doctors give you hope with different chemo? Do whatever you like or enjoy, and god luck with the biopsies. gp

jjohnson8747 | @jjohnson8747 | Oct 11, 2018

I get results on Tuesday, I'll let you know what I find out.
In the meantime, does anyone have ways to deal with night sweats, I had to in one night!

Jackie, Alumna Mentor | @travelgirl | Oct 14, 2018

In reply to @jjohnson8747 "I get results on Tuesday, I'll let you know what I find out. In the meantime,..." + (show)

@jjohnson8747 How are you feeling? I am just popping on to see how you are doing? Have the night sweats gotten any better?

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