Non Hodgkin's lymphoma

Posted by maisyann @maisyann, Mar 22, 2016

Non Hodgkin's lymphoma

Would like to find a support group in regards to non hodgkins lymphatic B cell.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

@colleenyoung

Hi @maisyann, welcome to Connect.
I'm tagging @kjs1015 @aamarion @diana63 @djzlady96 to see if they will return to talk about their experiences with Non Hodgkin's lymphoma.

Maisy Ann, when were you diagnosed? What treatment are you getting or have you had?

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Hello @milanp

How is your daughter feeling now that she has finished 6 chemo treatments? Will her doctor be following on her progress in the near future.

I hope to hear from you again.

Teresa

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@colleenyoung

Hi @maisyann, welcome to Connect.
I'm tagging @kjs1015 @aamarion @diana63 @djzlady96 to see if they will return to talk about their experiences with Non Hodgkin's lymphoma.

Maisy Ann, when were you diagnosed? What treatment are you getting or have you had?

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I hope she will do well. NHL is highably treatable.

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@vonbaron36

I was diagnosed in 2014 with follicular lymphoma. I had radiation for a tumor on my neck. My last pet scan in 2017 showed no cancer since.

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I finished chemo in March for NFL. Just recently I found a large lymph node along my jaw line. Biopsy shows it the same form of NFL which is good. Doctor is recommending raidation.wjat side effects should be expected?

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@vonbaron36

I was diagnosed in 2014 with follicular lymphoma. I had radiation for a tumor on my neck. My last pet scan in 2017 showed no cancer since.

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Hi, jjohnson8747. I wish I had info about your treatment, but I was treated with R-CHOP only. I'm sorry that nasty node appeared at the jawline and hope they zap it for you. Good luck and sock it to 'em. gp

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@vonbaron36

I was diagnosed in 2014 with follicular lymphoma. I had radiation for a tumor on my neck. My last pet scan in 2017 showed no cancer since.

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@jjohnson8747 So sorry you need added treatments for your NFL. It does sometimes take a combination of both Chemo and Radiation together to rid the disease. Radiation can effect each person differently. Some do not have any side effects and others do. It is hard to say if you would experience anything at all. Here is a link to Mayo clinic's site that talks about Radiation therapy and the side effects of radiation.
https://www.mayoclinic.org/tests-procedures/radiation-therapy/about/pac-20385162
I wish you the best.
Jackie

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I had radiation on my neck. I didn't have any side effects at all.

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@vonbaron36

I was diagnosed in 2014 with follicular lymphoma. I had radiation for a tumor on my neck. My last pet scan in 2017 showed no cancer since.

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Thank you

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@vonbaron36

I was diagnosed in 2014 with follicular lymphoma. I had radiation for a tumor on my neck. My last pet scan in 2017 showed no cancer since.

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@jjohnson8747, I am sorry to hear that your NHL has come back. If you don't mind sharing, what was your experience with chemotherapy? I am not a medical professional, but it is my understanding that radiation differs from therapy in that it is more focused and is meant to only affect the part of the body that has cancer. Does this sound like the treatment you are going to have?

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@vonbaron36

I have had it for three years.

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just had my yearly check up. C T scan this time. No detectable cancer. Will go back in a year.

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@vonbaron36

I have had it for three years.

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@ vonbaron36 thats wonderful. My yearly ct scans for lymphoma are coming soon too.. I am hoping for the same.. 🙂
Jackie

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