Bullous Pemphigoid

Posted by yolanda53 @yolanda53, Feb 17, 2021

Anyone with this?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

@lisbeth

Do you have Bullous Pemphigoid disease?

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I have no problem with my eyes or mouth, but I am glad you gave the name of the rinse in case I need it. My skin is getting much better now. I hope I don’t get any more blisters

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@lisbeth

I have Bullous Pemphigoid and would like to connect to others.

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I have it also

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In reply to @shelly1234 "I have it also" + (show)
@shelly1234

I have it also

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Are you broken out or do you have hives now? Is this your first time? It is mine.

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@lisbeth

Do you have Bullous Pemphigoid disease?

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I am now experiencing blisters that itch and burn when the break.
They are mostly on my arms but have also shown up on my , face, chest, and upper thighs. It has been 3 years since I was diagnosed with Bullous Pemphigoid.
There was a time last summer when I wasn't having any symptoms.
But this year is different. I went to urgent care at one point because I couldn't get in to see a dermatologist until July 28th. They prescribed clobetasol and doxycycline. They want me to take the doxycycline for 3 months and use the clobetasol for 4 weeks.
Iam into 1 month and nothing has changed.
I am at my wits end. My partner has cancer so I try to put things into prospective but it's not easy. I hope you are doing better.

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@lisbeth

Do you have Bullous Pemphigoid disease?

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At this moment I still have the red blotches, but I don’t put the creams on them because they don’t itch, and the rash is gone, but my skin is pink. I guess you have been on prednisone before the Doxycycline? I am on the Doxycycline, too, and get a shot every other week. I hope your inflammatory skin will go away quickly.

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@shelly1234

I am now experiencing blisters that itch and burn when the break.
They are mostly on my arms but have also shown up on my , face, chest, and upper thighs. It has been 3 years since I was diagnosed with Bullous Pemphigoid.
There was a time last summer when I wasn't having any symptoms.
But this year is different. I went to urgent care at one point because I couldn't get in to see a dermatologist until July 28th. They prescribed clobetasol and doxycycline. They want me to take the doxycycline for 3 months and use the clobetasol for 4 weeks.
Iam into 1 month and nothing has changed.
I am at my wits end. My partner has cancer so I try to put things into prospective but it's not easy. I hope you are doing better.

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My doctor told me that I would never be able to get off doxycycline or another drug like it.

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@shelly1234

I am now experiencing blisters that itch and burn when the break.
They are mostly on my arms but have also shown up on my , face, chest, and upper thighs. It has been 3 years since I was diagnosed with Bullous Pemphigoid.
There was a time last summer when I wasn't having any symptoms.
But this year is different. I went to urgent care at one point because I couldn't get in to see a dermatologist until July 28th. They prescribed clobetasol and doxycycline. They want me to take the doxycycline for 3 months and use the clobetasol for 4 weeks.
Iam into 1 month and nothing has changed.
I am at my wits end. My partner has cancer so I try to put things into prospective but it's not easy. I hope you are doing better.

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My friend had this, the dermatologist put her on steroids for a long time. It finally went away. She was on them for months.

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@lisbeth

Do you have Bullous Pemphigoid disease?

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Hello @lisbeth. You will notice I have moved your post, and the replies, into an existing discussion that you can find here:
- Bullous Pemphigoid: https://connect.mayoclinic.org/discussion/bullous-pemphigoid-2/

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@johnbishop

Hello @yolanda53, Welcome to Connect. There are two older related discussions on Connect but I'm not sure if the members who participated in the discussions are still following. Mayo Clinic also has information on the condition - Bullous pemphigoid - Symptoms and causes: https://www.mayoclinic.org/diseases-conditions/bullous-pemphigoid/symptoms-causes/syc-20350414

- I have recently been diagnosed with bullous pemphigoid and I am looking: https://connect.mayoclinic.org/discussion/i-have-recently-been-diagnosed-with-bullous-pemphigoid-and-i-am-looking/
- Looking for info on medications for Bullous pemphigoid: https://connect.mayoclinic.org/discussion/ive-been-diagnosed-with-bullous-pemphigoid-and-i-need-to-find-if/

Have you been diagnosed with Bullous Pemphigold?

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have been diagnosed with bullous pemphigoid recently and I am on an antibiotic (doxicycline)
and put on cellcept about 4 weeks ago,

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For breakthrough itchy red lesions or blisters you may get relief with a topical steroid cream. Hope the cellcept
affords you control. If not you may need prednisone.
Wear sunscreen and take your doxycycline with food
to minimize side effects.

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