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Weight Lifting and exercise with hypertrophic cardiomyopathy: Tips?
At 52 ish HOCM was discovered and my surgeon cut out some excess muscle out of my heart and changed out a valve. He made a mitro valve choice that 4 years later had to be redone/open heart again. All to say- not a lot of working out/exercise in the last 10 years. For 5 years I have been trying to find info on exercise with HCM. My cardiologist- who I do love- just keeps saying “go live life”. It is encouraging. And it isn’t. Still a bit tired and gasping for air on inclines. (Heart?! Out of shape?)
There are plenty of days where I feel my heart beat and it feels like a full body quake that others can see! (They can’t) (heart)
My question~
The other day, to encourage a friend, I went to
“The exercise coach” for three sessions.
It is a program of 20 min 2 x week pretty intensive weights.
Am I doing damage?
I am exhausted after for a day or two .
(Heart? Or out of shape?)
I watched my heart rate last time I went, it stayed under 100bpm.
After the second open heart surgery, I was walking and doing small weights and changed my diet (which really wasn’t too bad already). It has almost been a year and have had some movement toward better shape. But it has been a year. I want to live life being much more active and strong.
After three sessions of this program I could see an actually difference and would like to keep going.
Fairly competitive - and the computer allows you to push above the last time you were there while on each machine. Good or bad?!
Is there ANY reading out there for HCM on exercise that is acceptable, accurate, helpful? I have asked for 6 years. All I get is “don’t google” but I figure the Mayo Clinic is a place I can go~. Thanks
Anny
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Have a good week too @selima109 😊 We have much to be grateful for, and being 'above ground' is one!
Thanks for all the joy you express!
Ann
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1 ReactionYou inspired me
I wish I know you
You are young still have lots to live for
I am 72
Talking is good everyday it’s good to have conversations
Excising is what you think you can do
Only your body can tell you how much it can Stand
Good day
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1 ReactionI follow this stuff pretty closely being a “fitness enthusiast” with HCM and an ICD for nearly 20 years now. Here are the most recent clinical guidelines from the experts which Dr Ommen at Mayo Rochester chairs. Out of the 5 cardiologists (all at heart centers) that I have been a patient of, he is one of my favorites and most trusted. This board won’t let me paste a direct link to the publication but here’s where you can access it
CLINICAL PRACTICE GUIDELINE
2024 AHA/ACC/AMSSM/HRS/PACES/SCMR
Guideline for the Management
of Hypertrophic Cardiomyopathy
A Report of the American Heart Association/American College of Cardiology
Joint Committee on Clinical Practice Guidelines
Developed in Collaboration With and Endorsed by the American Medical Society for Sports Medicine,
the Heart Rhythm Society, Pediatric & Congenital Electrophysiology Society, and the
Society for Cardiovascular Magnetic Resonance
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1 ReactionHow do I get on these sites? I lift weights and have not received any guidelines for doing so, except not to lift too heavy.
Hello @blessmyheart, I noticed that you wished to post a URL to an article with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.
"2024 AHA/ACC/AMSSM/HRS/PACES/SCMR Guideline for the Management of Hypertrophic Cardiomyopathy" - https://www.jacc.org/doi/epdf/10.1016/j.jacc.2024.02.014
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1 ReactionThank u!
@camtak hopefully u can access the link Justin kindly listed for me. It’s a very scientific/clinic read. You could also search YouTube for Dr Steve Ommen where there are podcasts with him explaining HCM and answering common questions.
4HCM.org is also a great community with tons of resources and education. Hope this helps!
I’ve been on this journey for long time and the exercise recommendations have really changed given all the research and diagnostic tools we have now. Here are some good talks from
mayo HCM docs:
I will ask Justin to post these for us
@blessmyheart,
Here are the links you requested to share:
"Here are some good talks from
mayo HCM docs":
Specific very recent talk with Dr Larson from Mayo regarding exercise restrictions and HCM