Liver transplant - Let's support each other
What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?
Interested in more discussions like this? Go to the Transplants Support Group.
Hi
Please contact the Hospital transplant team.
They will go through the processes etc.
Thans
jackie NEVER drink any alcohol please doctors find out this and if you need second liver transplant you are not a good choice when you even wash your mouth with Listerine
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@arqui02000, If you click on the blue In reply tp at the beginning of this message, you can read about @jinja320 and her 2nd liver transplant experience.
Hi again @rosemarya,
I was referred to Mayo Phoenix and Mayo is going through the process of working with my insurance which should be finished in the next couple of weeks. Anyway, I would like to take you up on a question about the evaluation process. I was unable to find the answer myself. So... When going through the evaluation it seems that it could take up to a week. Do you know if I'll be admitted to the hospital for the evaluations?
Hi!
My husband had his evaluation done at Tampa General and he was admitted. He was there about 9 days.
@klm3, The evaluation is typically done as an out-patient. And it seems to be a normal Mayo/Rochester pattern to schedule a 5 day period of time. I honestly don't know whether it takes the full 5 days for the evaluation, but I feel confident to say that it depends on the patient and the particular liver disease and underlying medical needs of the patient.
I had a unique situation: I was already in the hospital at Mayo Rochester when I was determined to be strong enough to undergo evaluation. Out of necessity, some of the evaluation was completed as inpatient and some after release to outpatient, as I needed a liver and a kidney evaluation.
So to answer your question - The outpatient scheduled evaluation procedures could take 5 days. You should get a schedule of the appointments prior to your visit.
I'll be looking forward to hearing about your schedule when you get it. ❤
@klm3 I don’t know about liver transplants. I had a pancreas transplant. I have also gone through pretransplant evaluation for kidney transplant at Mayo Transplant Center in Rochester, MN. The initial evaluation was outpatient and took about a week. It was 5 days full of appointments to check me out head to toe. It was impressively thorough. There were a bunch of staff / disciplines involved to address everything including insurance coverage. I received an itinerary before I went and help with lodging and transportation issues. In the years since then I’ve returned for a few days to review and update some of the tests to keep current. I suspect procedures are similar at the AZ and FL campuses.
Mine took 7 days, 1 week plus 2 days the next week.
Then I had a million things to accomplish before it went before the Mayo Jax board. This whole process took close to 4 months. I almost got put on the list during ICU stay but got better and got deferred for counseling. I've completed everything and got a phone call this morning 6/26/23 that my file was going back to committee this Wednesday and likely will be approved.
Congrats markslivertransplant. I wish you the very best. ajdo129 aka Barbara
@jaxpilot, Welcome to Connect! And Congratulations on your approaching 1st year with your new liver and for the co0mpliments of "looking good' . As a recipient, I know that the "You looking good" compliments are accompanied by your feeling good! Isn't it great to be healthy again?
Will you be doing anything to celebrate/honor your donor? Here is where members have shared their ideas. I invite you to join us there!Happy "Transplantiversary"!
https://connect.mayoclinic.org/discussion/happy-transplantiversary/