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Anyone have input on living with symptoms from cardiomyopathy?
Does anyone have input on living with symptoms from cardiomyopathy, I.e., shortness of breath, angina and heart arrhythmia. Other than meds, it’s a challenge to mentally accept and live with this.
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Hi @selima109 ,
This is a great place to be to find out information from others who share your same condition. It sounds like you are active and live a healthy lifestyle by walking and going to the gym and eating well. Do you have hypertrophic cardiomyopathy? Is your doctor aware of your fatigue?
My cardiologist are great I did no talk to doctor
I had stress test in December
Everything same my cardiomyopathy show more
Down at the bottom and they not worried
I having one in September
I trying to figure out my tiredness if it’s from
My allergies to outside.?
I had physical two weeks my oxygen was good
Thanks for responding
Celima
For many, fatigue is definitely a symptom of hypertrophic cardiomyopathy. But it is also present in many other situations as well. September is a long way off...do you have a list of symptoms and questions you are prepared to ask your doctor?
It is a real struggle. I just do what I can do. I decided to start walking everyday on an indoor track. Even if I can only walk for 10 min it’s better than nothing. I changed my diet, I found that greasy food made it worse. I try and reduce my stress. That’s a hard one but it does help. I am now on medication and honestly it has changed everything. I have now worked my way up to a 5km walk daily
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2 ReactionsAwesome
I was at gym doing cardio
When I had stents surgery
I went to 3 months of cardio
Rehab
That’s what give me energy
There a saying if they can bottle
Walking everyone be talking 😂
So I do have two things going on
With my heart
Keep fighting
I do need a vacation.
Keep in touch
Let me know your journey.
I had two last year stress test
I do talk to my doctor ,
She knows my concerns
I want to know everything
We on same page
Seems when I do cardio I feel
Not tired
Keep in touch
Enjoy the day
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1 ReactionYou have a wonderful attitude @selima109 ! That and a desire to learn all you can about your condition and be as healthy as you can is inspiring to others. Keep up the good work!
I have also recently been diagnosed with HTM. Other than meds, heart doctor has no further info on what I should be doing. Very stressful.
Just keep moving
May your own schedule
Do it for you
Let’s fight to live as long as we can
I don’t know where you live
Summer here for me I’m
Mi.
Let me know your journey
Hello @bevjune, and welcome to Mayo Clinic Connect. I noticed that you are posting on the Hypertrophic Cardiomyopathy Group, or HCM. You said you were recently diagnosed with "HTM". I am not familiar with that acronym, can you enlighten me on HTM? You mention also you are taking meds prescribed by a heart doctor, but you were given no further information regarding what else you should be doing for your newly diagnosed condition. That would be very stressful, no wonder you are concerned. Can you explain what HTM is?