C Difficile: Do you have memory issues, disoriention, confusion?

I have had cdiff 3 times. The last time I had sepsis and was in the hospital for a week. I am on vancomycin (tapered from original treatment) every other day for 30 days. Ever since I left the hospital I have very frequent soft ( not diarrhea ) bowel movements each day. Anyone experience that. I am just wondering if it could be from the vancomycin.

Hi,
I'm sorry to hear about you lingering problems. I have had C-diff 9 times. I was in the hospital 16 days a couple years back with C-Diff with Megacolon. Have had multiple re-occurences since. Had 3 FMT via pill form which helped for a short time and Cdiff came back. Was also on Dificid each episode which was a great help-but it always came back. On January 30th, 2023 had an FMT via Colonoscopy route. So far so good. BM's are not as they were when I was "normal", pre Cdiff. But as my Dr said, with having been through all your body has endured who's to say what your "new normal" is.
To address your question. I currently have Bronchitis and am on Antibiotic. My infectious Disease Dr placed me on Vancomycin 125mg- 2 daily- for the duration of the ABX, Plus 7 more days after finishing Abx. This was done as a prophalaxis to ward-off any more Cdiff developing. I HAVE noticed since starting the Vancomycin I too am having frequent, soft Stools (not diarrhea). You described it perfectly. I havent called my Dr about it-but I just assumed it was from the Vancomycin, as it seemed to start within a day of starting the Vanco. I hope that it in some way reassuring to you. I wish you the best with your healing process!

So sorry to hear you’ve had cdiff so many times. I call it human torture. Thank you for your reply. That helps a lot. I was beginning to think I had serious colon problems. I too am considering the FMT.

I appreciate your kindness. it certainly is torture. Folks who haven't experienced it, or are close to someone who has, just dont understand how miserable and serious it is. I am having the issue today of frequent soft stools. I certainly tie it to the Vancomycin since it started within a day of my beginning Vanco. So we seem to be in the same boat on that. Its a relief (though certainly not a joy) to know someone else is experiencing what seems to be side effects to the Vancomycin. Anything different (esp tending toward Diarrhea), just freaks me out thinking the monster is rearing it's ugly head again!
I would reccomend the FMT by colonoscopy route to anyone dealing with this terrible issue. But, having said that, I am only a little more than 4 months out from my FMT at this time. I wish you the best with this battle.

Thank you so much. I am seriously considering FMT by colonoscopy but have a small tear in the bowel so have to make sure that has healed. I’ve heard it’s at least 85% effective against cdiff. I appreciate all your help and hope it is a cure for you.

You're very Welcome. I see. Yes I understand the tear would need to heal first. I hope when and if you decide to have the FMT , and are able to, that it is a cure for you as well. I think from all I've read and understand from my Doctors, it is indeed the best hope for cure of Cdiff. Especially for folks like you and me where it keeps Recurring. Take Care and my best to you.

Thank you so much!!!

What are all the side effects you all have had from c diff. I’m waiting on my results but I’m pretty sure that’s what I have. I’m so scared that my diverticulitis now gave me that. And I can’t catch a break. 2023 has been hard on me

What all changed for you. I can’t even eat any more or anything

C diff 11 times since 2021 hospitalized quite a few times June 21st I'm having a colonectomy I have no choice or that's my only choice I've been so sick and I had to double dose of fecal transplant in April and it I was a failure just couldn't get rid of that bad bacteria so now I'll be wearing a colostomy bag forever but I won't have the C diff anymore and you get a range of symptoms I was off balance memory loss all kinds of things and I had the two top drugs antibiotics for it and it didn't help so best of luck to you make sure you have a good doctor it really does make a difference I'm 76