Living with Neuropathy - Welcome to the group

Thanks For the welcome John.
Actually I do not and in fact I have no other illness that can be linked to the itch . It’s a real mystery to me …and obviously also to my Doctor etc.
It’s just causes a lot of anxiety when it happens and makes any travel concerning.
Cheers

Diagnosed 3 days ago with peripheral polyneuropathy after EMG and nerve conduction. Several months of tingling and aching in feet and calves. Also, soles of feet feeling hot. It's come on quickly...I was totally healthy, no diabetes or any significant health issues. I'm still trying to figure out why and how. Meeting with my dr next week to further discuss findings and path forward. It's been devastating news for me and I already feel limitations because of pain. Hope to find some hope and peace in your group. Thank you

Welcome @gotosarah, I'm glad you found Connect. You are definitely not alone and hopefully you can find some answers and learn from others experiences. I have idiopathic small fiber PN that developed gradually over 20+ years so I can imagine how you must feel to have all of this change over a short period of time. There is another discussion where you can meet others discussing polyneuropathy and learn what they have shared.

--- Idiopathic Polyneuropathy: My endless journey to a near-diagnosis: https://connect.mayoclinic.org/discussion/idiopathic-polyneuropathy-my-endless-journey-to-a-near-diagnosis/.

Another site that you might want to bookmark for learning more about neuropathy and things you can do to help yourself is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/living-well/.

Can you give us an update after you meet with your doctor next week?

Thank you for these links. I will check them out and share what dr advises. Thank you again for accepting me into your group.

Hi. My name is Jan and I have peripheral neuropathy in my feet. It seems to have been getting worse until just recently when my doctor ordered some blood tests and I found out that I am very high in vitamin B6. I have been taking B6 off and on for a few years but a week ago I stopped. It seems like my neuropathy is slightly better but I'm not sure if it's only in my mind. B6 has been shown to cause naturopathy if you have toxic levels in your blood. Has anyone else had any experience with this being true? Also, some people have neuropathy symptoms just from taking any B6 supplement. Not to worry about B6 you get naturally in foods.

Hi Jan @janetlee23, Welcome to Connect. Sorry to hear that you have joined the PN club. You are not alone, there are a lot of us with varying degrees of peripheral neuropathy and other varieties and conditions. I shared my story in another discussion here – https://connect.mayoclinic.org/comment/310341/. There are a couple of other discussions on vitamin B6 that you might want to view.
— Body making too much Vitamin B6: https://connect.mayoclinic.org/discussion/body-making-too-much-vitamin-b6/
— B-6 vitamin danger!: https://connect.mayoclinic.org/discussion/b-6-vitamin-danger/

Do you have pain with your neuropathy in your feet or just numbness and some tingling?

Hi, I'm Dawn. Diagnosed (after several doctor visits and tests) with peripheral polyneuropathy, which has become much worse over the last year. Have a lot of balance issues and fall fairly frequently. Try to get exercise by going up and down shopping aisles (because I can hang on to the cart and pretend I'm walking somewhat normally), but if I do too much of that, I'm awake all night because of unrelenting pain in my legs. Does anyone else experience that? On Gabapentin, but not sure how much it helps. So glad to find this forum for support and information. What a frustrating diagnosis! The neurologist essentially said, don't know why you have it but that doesn't make much difference - there's not a lot you can do about it.

Hi Dawn @imagine1, Welcome to Connect. I have to be careful with balance myself. I haven't fallen but a few times the past few years but I'm always conscious that it could happen and have become an expert in the senior shuffle, especially during the winter time. There are a couple of other discussions where members have discussed balance issues and might be helpful.
--- Having trouble keeping your balance?: https://connect.mayoclinic.org/discussion/having-trouble-keeping-your-balance/
--- Anyone try Tai Chi to help with neuropathy and balance?: https://connect.mayoclinic.org/discussion/anyona-try-tai-chi/.

The Foundation for Peripheral Neuropathy has a lot of information that might help you learn about available treatment options and learning more about neuropathy - https://www.foundationforpn.org/living-well/.

I don't have the pain with my neuropathy but do have some numbness and tingling. It has been helpful for me to keep the skin on my legs from drying out too much by putting a hydrating lotion on every night and then putting socks on. I have used different lotions but one of my favorites is Life Flo Magnesium lotion as it seems to make my legs feel a little better.

What is your number 1 annoyance with neuropathy?

Thank you for the welcome, John! I'm also becoming good at the senior shuffle and can now relate in a new way to Tim Conway "old man" skits where he did that to perfection.

Those links will be very helpful - I appreciate you providing them. Number 1 annoyance is the overall clumsiness. I also have drop foot, which adds yet another challenge to walking. Ah well, could always be something worse.

Hello. I just joined here and am just learning how to navigate the site.
I have peripheral neuropathy with no diagnosis as to the reason for it. So I am looking for pain relief or a possible cure. I am on 1200 gr a day of Gabapenten, but it is not doing a lot for the pain, especially by the end of the day. Any suggestions?