I am finally giving up COVID can have me

Hi..did you try the naltrexone? I just got it prescribed yesterday during my visit at Mayo post Covid Care. I was told they are seeing good results in studies with long covid, MS, chronic fatique, Inflammation , crohn's, IBD patients. I got Covid December 2021. It attacked my immune system and brought on severe ulcerative colitis, along with many other symptoms. I had covid toes , and my toes are still numb, painful, red and swollen. I hope and pray that someday they can help all of us with this syndrome. I have been in a flare since December of 2021. There is no stopping this disease. I have failed various therapy due to horrible side effects of the drugs. My doctor prescribed 1.5 mg capsules that are compounded at the Mayo pharmacy. Of course, my insurance will not pay for it. I am going to try it . I am desperate for any help I can get.Could you get back to me and let me know anything about this treatment. Thanks for your time. Sincerely..Kitty2

RN here too. My short term disability has ended. Looking into Workers Comp.

Any luck with Worker’s Comp?

I am, was, a RN on a busy Surgical/Medical Unit. Told I did not get infected at work due to the practices of safety glasses and gowns and masks. Now almost 2 years later I was denied any disability and am looking at working in a grocery store part time. I can not stand in one spot, walk without shortness of breath or think or process without headaches. I can not always speak and remember what was said. I am not giving up. Fatigue and pain and confusion is part of who I am now. I am still grieving my loss of self, but one day at a time is where it's at. Family and friends don't always understand, but I will continue. A good therapist helps too. I do wish you well as only we can understand fully the emotional and physical toll of this disease.

Facebook had a long CoVid support group that has helped me keep my sanity as well as being a wealth of information. I've had Long CoVid for a year. It took 9 months after a referral to be seen at the Long CoVid Clinic near me. I'm thinking the medical community still has much to learn in dealing with Long CoVid, but the doctor at the Long CoVid Clinic definitely made me feel validated. I honestly think if I could just get Long Term Disability so I don't have to worry about losing health insurance or paying bills, I could deal with the slow process of healing. But looking at other Long Haulers posts, I may well be of retirement age 5 years from now before I'm approved. The whole thing sucks royally. We were all robbed.

I was full-time in the grocery store before contracting CoVid last May. My PCP insisted I go back to work at 4 hours a day telling me it would increase my strength and energy. He obviously never heard of Post Exertional Malaise. But I had no choice without a doctor's note if I wanted to pay bills and have health insurance. I came home crying from the pain every day even though my work tried to accommodate me the best they could. And I had no energy or enjoyment to do anything when I wasn't at work. My son would rub me with a pain relief cream after I soaked in CBD Epsom salts and I'd eat an edible. An hour before bed I'd take 5 mg. of melatonin and eat another edible, which let me sleep 10-12 hours. It isn't living. It is just surviving, barely. I also have shortness of breath, lightheadedness, fatigue, and gastrointestinal issues. I'm on short-term disability now, but that only lasts for 12 weeks. I've been off 3 weeks now, and the only difference is the pain is less as I can rest when my body tells me to (10-15 minutes of light exertion usually is it) instead of pushing myself 4-5 hours at work.

my doctor at the OHSU Long Haul Clinic also prescribed a low dose of Duloxetine, another drug that studies have shown is effective for Long CoVid, Chronic Fatigue, myalgia, and other things related to my symptoms. Have used it for 2 months and have not noticed a difference. My insurance wouldn't cover it in 30-day increments, but would for 90 days. You might ask if that is the issue. I hope it works for you.

I've done all that as my levels were low after I contracted CoVid May 1, 2022. Finally got into the Long Haul Clinic at OHSU on March 27, 2023. Yes, after the doctor's referral, it took 9 months to be seen. They ran bloodwork again, and all my levels were in the upper range of where they were supposed to be, except Vitamin B12 which was significantly above the range. I felt no better, and I was surprised they were all where they were supposed to be. Also took Turmeric and drank lots of ginger tea for inflammation and gastrointestinal issues. Neither of those worked either. I have just plateaued. I'm better than the first 3 months of the infection, but so far from who I used to be.

That is ridiculous saying you couldn’t get Covid at work because you wore PPE. Everyone did and many got it anyway and some died! You need to apply for disability. I’m hoping that now that the pandemic has lessened, that more research will be devoted to long Covid.

I know you said you are a nurse and can’t work. I’m curious if you tried hydroxychloroquine? Long Covid mimics lupus for some. You have the fatigue like me and I couldn’t stand and got to the point i could hardly walk. I decided to treat the symptoms. The rheumatologist told me Covid damage the cells so the treatment for lupus would not work. I figured I didn’t have a choice. I knew I couldn’t deal with it anymore. It took about 3 1/2 months to kick in and I’m so glad I stuck it out. Research it. No it will be confusing because in testing when you put in Covid and hydroxychloroquine that doesn’t work that’s because it takes about three months to kick in. There are some people anti-VAX who would get Covid and think you just take that because Trump took it. That’s completely different. We are not active with the virus right now. We have long Covid so it’s different. It’s the drug of choice for lupus.