Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

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@gwinter

@kathyomaha55 I was only on anastrozole for 3 weeks and in the. Morning my hands were so stiff there was no way I could bend them plus, I could barely get out of bed. It hurt so bad!
I had 20 radiation treatments and was stage 1.
I applaud your endurance! I cannot do it! But I am going to try aromasin (so) soon! Just had a hysterectomy that was also supposed to help my chances of recurrence....

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Just curious who suggested a hysterectomy ? I have always wondered about that due to uterine cancer and tamoxifen 😔

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@appaloosagal

Eliza, thank you for the reccomendations for my skin. At least mine is only in one spot right now. I am the kind of person that refuses to take another pill for my side effects. My hot flashes are several an hour all day and night long. I keep a fan next to my recliner with a remote. When I have a flash I turn it on ....When I get cold I turn it off. Lol my husband can't even sleep in the bedroom I keep it so cold. 😆 I am just now 3 1/2 years in since my breast cancer was found. I am hoping to make to 5 years on the medication, but I don't think I will make it 10 years.

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Gosh - I was hoping the hot flashes would lessen with time. It's only been 9 months since I had surgery. 🙁

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@lisman1408

I have been suffering from hives from the medications following breast cancer treatment. I was on Anastrozole for about 3 months when I started breaking out in hives. My whole body was covered. My oncologist switched me to tamoxifen, and it’s slightly better, but not much. This past weekend I was so miserable from the itching I ended up at an emergency clinic. The doctor there says it’s an allergic reaction to the cancer meds. He put me on a 7 day course of prednisone and told me to see an allergist. I can’t get an appt. to see the allergist until next month... and my next appt. with my oncologist isn’t until April 16. Sometimes I think it would have been easier to have had surgery to remove the cancer, followed up with radiation and forget taking these damn pills to prevent recurrence! Its been nearly a year of one thing after another since I was diagnosed with stage 2A!

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So sorry to hear of the allergic reaction. I did have surgery and radiation - but my oncologist still wants met to take an AI for 5 to 10 yrs. I had stage 1.

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@elizm

@appaloosagal
So sorry to hear that you continue to struggle with radiation dermatitis. It is a common side effect and can even return much later (called radiation recall)... ugh. Firstly, keep that area free of cologne, anti-bacterial soap, soap in general (ask your pharmacy to order Aquanil Cleanser or Lotion, or CeraVe Hydrating Body Wash), and use clothes detergents which are free of scents and other additives (look for or order Tide Free & Pure or All Free Clear.) Also, keep the area moisturized with something which has no chemical additives.

As for the anastrozole... I agree, it's a bummer. I opted to take just half a dose and I still experience aching joints and bones (and I don't have osteoarthritis!). It worries my oncologist (the half-dose), but I remind him that recurrence also increases after taking an AI... it really is a no-win situation in my view. We each have to pick our way through the therapeutic brambles. I wish you the best outcome and, at least, calmer skin.

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Hi. I don't know what I've been reading, but everything I've read says AI reduces the risk of reoccurrence of breast cancer. Am I wrong? I've just started taking anastrozole.

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@karendb

Hi. I don't know what I've been reading, but everything I've read says AI reduces the risk of reoccurrence of breast cancer. Am I wrong? I've just started taking anastrozole.

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My doctor told me it gives a 9% more chance cancer won’t recur. That’s not much and I hate the side affects. I stopped taking it. Taking awhile for side affects to leave. I feel so much better and like myself now!

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@kwanless

My doctor told me it gives a 9% more chance cancer won’t recur. That’s not much and I hate the side affects. I stopped taking it. Taking awhile for side affects to leave. I feel so much better and like myself now!

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Wow, that's not very encouraging considering the side effects. I read on line it reduces the reoccurrence risk in post menapausal women by 56%.

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@karendb

Wow, that's not very encouraging considering the side effects. I read on line it reduces the reoccurrence risk in post menapausal women by 56%.

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Would be great if that was true. 9% is nothing!

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Always talk with your doctor. I think the more data you collect, the more questions you can get answered. I'm with you, the side effects are worth staying alive longer.

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@kayk

@appaloosagal I found that it is apparently the blue dye in "pm" products like Tylenol PM that make me jittery and wide-awake. The pm part is just Benedryl. Try taking regular Tylenol and Benedryl instead. Hope it helps!

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Kayk thank you for that suggestion. I didn't know that about the dye.

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@elizm

@appaloosagal
So sorry to hear that you continue to struggle with radiation dermatitis. It is a common side effect and can even return much later (called radiation recall)... ugh. Firstly, keep that area free of cologne, anti-bacterial soap, soap in general (ask your pharmacy to order Aquanil Cleanser or Lotion, or CeraVe Hydrating Body Wash), and use clothes detergents which are free of scents and other additives (look for or order Tide Free & Pure or All Free Clear.) Also, keep the area moisturized with something which has no chemical additives.

As for the anastrozole... I agree, it's a bummer. I opted to take just half a dose and I still experience aching joints and bones (and I don't have osteoarthritis!). It worries my oncologist (the half-dose), but I remind him that recurrence also increases after taking an AI... it really is a no-win situation in my view. We each have to pick our way through the therapeutic brambles. I wish you the best outcome and, at least, calmer skin.

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The radiation dermatitis can be helped with calendula cream and aloe gel (scent free).

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