Paroxysmal Atrial Tachycardia
Given Coralan (didn’t work).
Given Cordarone (it worked but warned of long term liver and thyroid issues).
Currently having ascites.
eGFR 41
Worried Lasix might bust the kidneys but how else to non-invasively drain abdominal fluid?
Is there a better alternative for Paroxysmal Atrial Tachycardia than Cordarone?
Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
@kravmaga
1. Click your profile (person icon) in upper right corner.
2. Select Messages
Messages will show a number when you have a new message. You will also get an email alerting you to a new private message.
I would be remiss if I didn't mention that there is benefit to sharing in the group for many to learn and share. 🙂
Thanks Colleen I got it.
I have no intention of leaving the group this was basically a one off with this particular individual.
As I’m sure you know sometimes its just easier to talk to people much is lost in the translation when you are writing.
I thought I WAS clear, and used the term 'semi-permanent' when describing the relief that ablation affords a heavy majority of AF endurers. Ablation is loosely successful when the patient has been free of palpitations and assessed AF for a period of one full year...only. And yes, it is true, that almost all patients must endure the return of AF in time, and that is due to the progressive nature of the disorder. However, while AF can't kill a person, it can sure as aitch make them miserable to the point where their anxiety, suffering, and other associated conditions make them impossible to support and to live with. It does shorten lives because of the heightened risk of heart failure and stroke. Apixaban has a growing track record of being safe and easily tolerated by the heavy majority of users, and I'm not talking about a whopping 80%, it's more like 95%. It cuts the risk of stroke from untreated AF to 10% of the estimated risk. Not so shabby, wouldn't you agree?
When I urged the OP to acquaint him/herself with the function of the Vagus nerve, I was passing on what I learned from a discussion in affibbers.org where the purported role was being discussed, and it made sense. Since some people report that soothing the Vagus nerve helped to reduce their paroxysmal AF, it seems reasonable to pass this on, certainly in view, as you say, of the fact that there is NO establishment of the causes of AF.
Thanks for the perspective. As someone currently suffering from right now untreated paroxysmal A T (beta blockers made me feel even worse and l did not control the arrythmia ) l because I’m told that these drugs are only to control the symptoms-that I don’t have serious cardiac disease- I stopped short at Rythmol - with its box warning. (Tried it for a few days and had more atrial runs not less as well as all the other symptoms and the box warning scared me off- considering that metoprolol made it worse too). So I am just suffering, as it progresses. It’s been two years.
I read these kinds of things with a sense of desperation. I know AT -not even as bad as AF -can’t kill me (I don’t “know” it -everyday I feel like it will kill me dozens of times a day. But intellectually when it’s not happening I know it won’t kill me.) but it is the most anxiety provoking uncomfortable thing anyone could deal with. It seems like you spoke up for me here. I am going to keep looking for help. If only there was an actual treatment to calm the vagus nerve I’d be all over that - I’ve tried everything.
I can offer some suggestions: yoga, meditation (both require some not inconsiderable learning, so this isn't a weekend-long uptake and new pastime), calming actions to improve the tone of the Vagus nerve (there are YouTube videos if you google that syntax), eating less (maybe try eating more often, but less, less salt (only if you get a lot in your diet, not if you already skimp on it), if you're a bit overweight, lose at least 10 pounds, try fasting (helps with weight, restores sensitivity to insulin, can reverse Type II diabetes in quite a few cases), and avoid both caffeine and nicotine if you are fans of either.
Remember, the Vagus nerve is part of the PARA-sympathetic nervous system....the calming system. If you're chronically under stresses of all kinds, anxiety, inflammation, pain, other forms of duress, your Vagus nerve will slowly lose ground until it can no longer do much for you. The more motivated you are to regain control of your existence, your path, the less stress you'll have in all likelihood...no guarantees, but that's the idea.
According to the afibbers forum, as I remember, afib can be adrenal or vagal in origin. Of course some of us have triggers from the GI system too.
Omg. You have just described me..When I am not in afib ( or at least I don't feel it) I can take on the world. But as soon as I feel it again I go into this state of fear , panic and anxiety. I just can't relax myself. However, I have started some Cranio Sacral Therapy which I must admit does relax me. I practitioner discuss the vagus nerve with me and gave me a few little exercises to do to sooth it. Early days yet but I certainly am going to keep at it. It all makes perfect sense to me. I find great comfort in knowing that I am not on my own and that lots of people feel as I do.
Hi Gloaming,
I have read many of your posts and find them interesting.
This one particularly after the portion about ablation is right on the money.
Especially the part about what A-Fib does to a person is so insightful and unfortunately true.
Thanks
I’ve tried everything. Cranial sacral is good but I can’t say that I relax. I have to wonder which is the chicken and which the egg with this condition. Anxiety versus afib. They are definitely interconnected.
Good luck with your search. Glad to know there are others finding the way through this morass.
Thanks for this… sadly, it’s nothing I didn’t already know- kind of wishing to hear about a drug or a magic bullet for restoring the vagus nerve. Yoga was my best friend for fitness and management of a pain syndrome-pudendal neuralgia- I’ve suffered for seven years. One of the reasons I know I’m in serious trouble now is I can’t do yoga without it triggering atrial tachycardia - which started 2.5 years ago and has grown steadily worse but no specialist now for one year. GP is burned out.
I mediate as much as anyone can with chronic nerve pain. (Pain is the only thing that comes into awareness when all distraction is removed so this is a serious deterrent. Even sleep has been virtually impossible for 10 months now. Like sitting down to relax in a burning building and trying to ignore all impulse to flee. )
Sorry to be so negative. I also seriously question if my problem is vagus nerve related other than via the link to the pudendal nerve-as I’ve done so much to try to retrieve my health via breathwork, attempts at yoga and meditation, physiotherapy, cold water dipping, meditation without yoga and even ketamine assisted therapy. All the things I can do and pay for without medical intervention. I am slim, trim, have no blood pressure or other health issues and other than the pain syndrome, tachycardia and associated anxiety - I was in good health. Just trying to live my best life, (which is a good life and I love it) and do physical chores that I used to be able to do in spite of my arrythmia but end up like today -in bed feeling sick, looking at a daily walking average on my smartwatch of 153bpm and feeling like my life is completely out of control and miserable. Calls made to see about specialists and referrals showing that they’ve all fallen through… nothing coming to fruition…no
appointments booked afterall though I’d thought there were active referrals in play … I was trying not to “dwell” on the problem by checking in on those- just assumed I’d get a call when an appointment came available. If I lived somewhere where Medicare was not universal (and could pay my way out of this mess) and wait times to see specialists -9 months if a referral
can even be gotten -or to see a GP -one month for a 10 minute phone consult…were shorter -I’d be in a better situation.
Considering an ER visit except I know from experience this is futile. 7 hour wait to be given an antacid for chest pain and because EKG will be normal— stress test from two plus years ago normal- no repeat test available except after a nine month wait- triaged…based on the normal test from two years earlier and a holter showing “atrial runs” but not afib.
I really liked your comments because I am
hanging on to the fact that this extremely uncomfortable condition must not be life threatening (though my body says otherwise) or else someone would react like it was worth doing something to help me with it.
Sounds like you are on top of your issues. It gives hope at least.