Anyone take new drug Camzyos (mavacamten) for HCM?

It arrived today, late due to bad weather, I will start this tomorrow at
0800, prolly have a salad tonight for dinner so my diet will be healthier..
but so there’s a record for y’all and me, I want to give all the facts of my journey ..diet, meds, physical activity.
Noticed side effects..
It may be boring so please bare with me, I figured the more concise the better for those who are on the fence about taking this approach: so I’ll see y’all tomorrow morning
Dave

I see a beautiful "puppy" in your picture is watching you too! Yes, please keep posting, even the 'boring' stuff. That way you can compare with the others using this same med and share experiences. That's what Mayo Connect is all about 🙂
Until tomorrow...

Hi there @irishpeaks , that was good to hear you don't have an issue with elevation. I live literally 500 feet above sea level, and every time I went to higher elevations for hikes to Mt. Lassen, Mt. Shasta or Mt. Anything I suffered! Short of breath, dizzy, gasping for air...I knew something was wrong, and it kept getting wronger! There are so many forms and causes of cardiomyopathy, it is like a catch-all phrase. Hypertrophic Obstructed Cardiomyopathy is a bit different than non-ischemic cardiomyopathy, but I am glad to hear you do not have issues with elevation. I feel bad you have a 'full block', that has to be limiting and always in the back of your mind. Hopefully the meds you are on are helpful. Colorado has some BIG mountains. Like the real deal mountains. Are you able to get out and enjoy their beauty? 8500 ft., I bet you got some snow this year!

Took my first dose 08:14
Morning weight 269lbs
Had 20oz coffee
Ate 3-4 crackers
No other meds taken, I’m not sure if I feel normal, but I feel different could be in my mind ..it’s been about 4hrs.
I’ll update In comments later what lunch and dinner plus any side effects. Until then y’all have an awesome day.
Regards
Dave

Ok so I’m feeling normal now
Lunch/dinner
Dbl whataburger with cheese and bacon, large extra crispy onion rings and a large Diet Coke.
1/2 can of Fresca

500mg metformin
That’s day 1 in the books, ill see y’all tomorrow
Dave

Hmmm...Sounds like you're tempting fate with that dbl burger/cheese/bacon/xtra crispy onion rings!!! Maybe put some kale on the burger next time, that way it will be "healthier" 😉
Take care @starbuck41, tomorrow is another day.

Lol

Day 2
5mg at 0813
Ta Quito’s for lunch
20oz coffee for breakfast with meds
Weight unchanged
I feel normal, not like the first day.. I guess I was all psyched up after reading all I can..
took 500mg metformin
See y’all tomorrow

Hi,
I do get out as often as possible and enjoy the altitude, I am just more cautious about things now. Really watch my electrolytes (especially potassium) and just keep a pace conducive to someone who needs to be mindful of more than just the surroundings. I always let someone know where I’m going, and always take company when it works out, just in case.
There is a lot of snow this year, lots of fun and good runoff this spring!

All that you mentioned sounds like very sound practice...for many of us! Keep that positive attitude up there in your high altitude!
Embracing a positive outlook has many benefits to not only our physical health, but our mental health as well. Thanks for sharing @irishpeaks, I liked your comment about being mindful of more than just your surroundings, it's not easy sometimes living with a heart condition, but you sound like you are enjoying life where you are and making the best of it. We got almost 8 inches of snow this year! Brought the whole community to a halt! We are flatlanders! I'd wager you got a bit more than that. Do you have to have regular labs to keep track of your potassium? Do you follow a specific diet for your heart block?