Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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I got he Moderna vaccine along with 3 boosters. I also think I had Covid.

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Both at maximum 300 mg twice a day

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I am 78 year old, I had Moderna vaccines, and had my 3rd booster (also Moderna) in Dec 22.. I never had Nueropathy before, and am not Diabetic...
My GP did not seem terribly interested when I told him I thought I have it, I have an appointment with him May 1, and want him to send me to a specialist to find out for sure that is what I have.
I am lucky that I am not in a lot of pain, and do not have any trouble sleeping, but feel it is progressing from my toes, further along my feet... Just want to know for sure what it is....

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Profile picture for sheilarob116 @sheilarob116

I am 78 year old, I had Moderna vaccines, and had my 3rd booster (also Moderna) in Dec 22.. I never had Nueropathy before, and am not Diabetic...
My GP did not seem terribly interested when I told him I thought I have it, I have an appointment with him May 1, and want him to send me to a specialist to find out for sure that is what I have.
I am lucky that I am not in a lot of pain, and do not have any trouble sleeping, but feel it is progressing from my toes, further along my feet... Just want to know for sure what it is....

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I am 80 and had third Moderna booster Oct 10. Fatigue and headaches ever since.Now toe cramps in bed and bottom pf feet swell. It feels l7ke skin surrounding my feet feel like they are shrinking. No answers.Also skin rashes esp on my legs . Topical ointment helps but only a little. No answers yet.

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Hearing a lot of messages about vaccines and Neuropathy symptoms, think possibly a connection?

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I had neuropathy after the 4th vaccine. Already have fibromyalgia due to toxins. Pain went up 10 fold for weeks until I got acupuncture. Moderna did me in. But Pfizer started slowing me down. Also got the flu shot and got burning nerves from that and never had that before. So my body changed. Getting microcurrent now and seem to be mending.

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Profile picture for smigal @smigal

I had neuropathy after the 4th vaccine. Already have fibromyalgia due to toxins. Pain went up 10 fold for weeks until I got acupuncture. Moderna did me in. But Pfizer started slowing me down. Also got the flu shot and got burning nerves from that and never had that before. So my body changed. Getting microcurrent now and seem to be mending.

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Can you explain what microcurrent is for neuropathy? Do you have vibrations? I have had vibrations for two years.

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Profile picture for hello2 @hello2

Thank you for sharing this. I'm getting so many responses with the same nerve problems. The only thing that is helping me is Lyrica. I take 100mg twice a day. I still have the pain, but not as sever.

Good luck to you.

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My Neuropathy is not painful but holding me back from doing my PT exercises due to the heavy feeling now spread above my knees after starting in my toes in January 2022

Is LYRICA available without a Prescription? My Referral probably won't give it to me unless I deal with a Neuropathy Specialist. I'm done with Doctors and have been dealing with the Neuropathy through good diet and vitamin supplements such as B12, D3, etc.
Thank you for caring. I am still using wheelchair for some tasks but using a walker to get around my Home with the help of a few handicap aids. But the Neuropathy is slowing down my activity and I will be 88 in August.

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Hello,
After I received my third vaccine I started losing the feeling in my feet and toes which has prevented me from driving at all. Prior to getting
these vaccines I had the tingling and numbness in my feet, mostly positional while sitting or laying down. I saw two neurosurgeons who both agreed that surgery is not indicated. So I did six weeks of PT which I can honestly say did very little to restore the feeling in my feet.
I have no medical conditions to support this issue so my neurologist gave me a diagnosis of idiopathic
neuropathy about 12 years ago and told me she didn’t think it would worsen.
But now after having received 4 vaccines for a virus that we still don’t understand completely, I no longer have feeling in my feet up to my ankles, while sitting or lying down. An EMG confirmed that I have axonal distal polyneuropathy.
So I ask, where did this come from?

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Profile picture for jalcorn @jalcorn

Hello,
After I received my third vaccine I started losing the feeling in my feet and toes which has prevented me from driving at all. Prior to getting
these vaccines I had the tingling and numbness in my feet, mostly positional while sitting or laying down. I saw two neurosurgeons who both agreed that surgery is not indicated. So I did six weeks of PT which I can honestly say did very little to restore the feeling in my feet.
I have no medical conditions to support this issue so my neurologist gave me a diagnosis of idiopathic
neuropathy about 12 years ago and told me she didn’t think it would worsen.
But now after having received 4 vaccines for a virus that we still don’t understand completely, I no longer have feeling in my feet up to my ankles, while sitting or lying down. An EMG confirmed that I have axonal distal polyneuropathy.
So I ask, where did this come from?

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@jalcorn, You ask a good question but I'm not sure anyone can answer it. A lot of us that have been given an idiopathic diagnosis would love to know for sure. Here are a couple of research articles on the topic.

"What is the most common cause of axonal polyneuropathy?
Diabetes is the leading cause of polyneuropathy in the U.S. About 60 to 70 percent of people with diabetes have mild to severe forms of nerve problems that can cause numb, tingling, or burning feet, one-sided bands or pain, and numbness and weakness on the trunk or pelvis."
--- Peripheral Neuropathy: https://www.ninds.nih.gov/health-information/disorders/peripheral-neuropathy

"Diabetes, HIV infection and alcoholism can cause several patterns of neuropathy. They most commonly cause a distal, symmetric axonal sensorimotor neuropathy. The second most common presentation in these conditions is a small-fiber, painful neuropathy."
--- An Algorithm for the Evaluation of Peripheral Neuropathy - AAFP:
https://www.aafp.org/pubs/afp/issues/1998/0215/p755.html

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