Anyone had 2 lobectomies, years apart?

Posted by loulou2023 @loulou2023, Apr 13, 2023

hey everyone! I was diagnosed nine years ago with lung cancer NSCLC Stage 1 T2 N0. I had an upper left lobectomy. For eight years, I had no reoccurring cancer. I did all my CT scans as directed. unfortunately, the last one showed a spot that we had been following.PET scan done and it showed cancer in my hilar lymph node and in my upper right lung .Libectomy and and chemo is the suggested plan.My pulmonary function test indicated that could function if the upper right lung was removed and hilar lymph node. I am so concerned that I will be unable to function! Anyone else had 2 lobectomys and how are you doing???

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Profile picture for loulou2023 @loulou2023

The surgeon said I am not a surgical candidate. The spot on my upper lung was not cancerous but the lower was squamous cell. I also have a lung fungus, aspergillosis. Only me lol
Waiting on call for how they want to proceed. I know radiation. Thanks for checking on me

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Lou, you may also wish to join this discussion:
- Anyone have Pulmonary Aspergillus? https://connect.mayoclinic.org/discussion/pulmonary-aspergillus/

@patbrennan also had lung cancer and lung infection.

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Hi loulou2023, I have had 2 lobectomies. One in 2019 left upper , and the right upper in 2021 . I get winded easily but am able to function very well. I started playing pickleball again this spring. My second surgery was alittle more recovery time but I took that as I was also older and recovery was just a bit longer. I’m 69 now . Unfortunately for me, I was also diagnosed with NETS metastasis to the liver in 2022 and am currently on oral Chemo with no side effects!

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I had two lobectomies. The first one was in October 2014, non smoker adenocarcinoma. 1b… Upper right lobe. I was then just turning 60 yrs old. I was told to have 4 cycles of chemo which I started 6 weeks post surgery… but I had a bad reaction so they can cancelled the rest of the chemo. I was then on a 6 month surveillance since then. In 2019, some nodules where found in my lower left lung, which were further under surveillance since they were so small. By early 2020 they did grow but still a nodule and because of the pandemic, nothing could be done. 2020 Nov prior to vaccines, I did get hospitalized for COVID pneumonia - luckily I was not needing intubation - just high flow oxygen and other medication for COVID. I was released 3 weeks which by then was post Thanksgiving . I was now being considered for biopsy but COVID vaccine was required and the long and short… I did end up with a second lobectomy which was on my lower left lung. This is now March 2021… I recovered, returned briefly to work and retired at 65 1/2 yrs old.
I used to be a workaholic - but immersed into new activities and friendships that introduced me to pickleball. I did not get active on pickleball till January 2022, and now I am addicted to the sport. So far I have pass 6 month surveillance and am now only doing yearly surveillance (CT scans). I am shortly turning 71 yrs old, and my breathing and activity is normal. I go to U of M Rodel Cancer Center - U of M health is my primary health care system for all my health concerns and works for me… We all just stay smiling to live another day!

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In reply to legno54 and loulou I too have had 2 lobectomys, the first in 2018 and the second in Oct 24 nearly 12 months ago. I recovered quite well after the first but unfortunately after the second i was back in surgery having an emergency procedure due to serious complications and now i am still recovering, i have not bounced back as well as the first one but I'm 7 years older, now 76 and have asbestos plaque and dipnech in my remaining lung along with other heart and health issues BUT i too keep smiling and accept any invitation for meeting friends and family when i am up for it and embrace life to the very best of my ability.
After all, in the whole of eternity our life spans are so short so we need to grab any happiness we can with both hands/ arms. Good luck and health to all of you

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Profile picture for legno54 @legno54

I had two lobectomies. The first one was in October 2014, non smoker adenocarcinoma. 1b… Upper right lobe. I was then just turning 60 yrs old. I was told to have 4 cycles of chemo which I started 6 weeks post surgery… but I had a bad reaction so they can cancelled the rest of the chemo. I was then on a 6 month surveillance since then. In 2019, some nodules where found in my lower left lung, which were further under surveillance since they were so small. By early 2020 they did grow but still a nodule and because of the pandemic, nothing could be done. 2020 Nov prior to vaccines, I did get hospitalized for COVID pneumonia - luckily I was not needing intubation - just high flow oxygen and other medication for COVID. I was released 3 weeks which by then was post Thanksgiving . I was now being considered for biopsy but COVID vaccine was required and the long and short… I did end up with a second lobectomy which was on my lower left lung. This is now March 2021… I recovered, returned briefly to work and retired at 65 1/2 yrs old.
I used to be a workaholic - but immersed into new activities and friendships that introduced me to pickleball. I did not get active on pickleball till January 2022, and now I am addicted to the sport. So far I have pass 6 month surveillance and am now only doing yearly surveillance (CT scans). I am shortly turning 71 yrs old, and my breathing and activity is normal. I go to U of M Rodel Cancer Center - U of M health is my primary health care system for all my health concerns and works for me… We all just stay smiling to live another day!

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Welcome to Mayo Connect @legno54 , thanks for sharing your story. Cancer, twice, will certainly help to align your life priorities. I'm glad you found a new passion after working so hard for all of those years, pickleball is good for both physical and social aspects of our lives.
I've been playing socially, for the past couple of years after giving up a job that I loved, but with the heavy medications and diagnosis, I just wasn't effective at work which was difficult for me. I'm much happier now, enjoying rec-play, and laughing it off when I can't remember the score.
It's great that your breath is back to normal. Are you playing most days of the week? Being a non-smoker, do you know if any biomarker testing was completed on your tissue samples?

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