Living with Neuropathy - Welcome to the group

Thanks.

However can't take Ansaids and can t take anything acidic due to Sjigrens Disorder. Dry mouth an issue. Also have Bullous Pemphigoid and causes mouth ulcers.

Thanks anyway

Sorry health care access difficult. I feel feel very fortunate to be able to access care.

Before takiing Tizanidene I was up three or more times each night.

Has anyone tried PT? I've been going and the leg cramps have subsided. Strengthening of the muscles help nerve pain along with Lyrica.

Hello- PT is my next question to my doctor. I've lost so much strength in my feet, hands, legs. So sad!

Hello @jayne229, Welcome to Connect. PT is a great question to discuss with your doctor. We neuropathy folks need to exercise for many reasons to help us keep moving. There are a few other discussions you might also want to check out:

--- Neuropathy & Exercise: https://connect.mayoclinic.org/discussion/neuropathy-exercise/
--- Water Exercise for Peripheral Neuropathy: https://connect.mayoclinic.org/discussion/water-exercise-for-peripheral-neuropathy/
--- Peripheral Neuropathy - Stretching and Exercise: https://connect.mayoclinic.org/discussion/peripheral-neuropathy-stretching-and-exercise/.

Have you tried doing any specific exercises to help with the strength in your feet, hands and legs?

I am 77 and have been living with neuropathy for 13 years. My symptoms have been manageable mostly in the toes and hands. Since my wife’s diagnosis of dementia tingling, numbness and pain have move up to the knee and elbow. Legs are more sore and weak but I continue to walk. Is it possible the stress caused by my wife’s condition has made my idiopathic peripheral neuropathy worse. I am not diabetic but recent A1C was 5.7 and fasting glucose 94

@gbrodnan1945, Stress can make the neuropathy pain worse. Here's an explanation:
--- How Stress May Worsen Peripheral Neuropathy Pain: https://fapnewstoday.com/columns/stress-peripheral-neuropathy-pain-tips/.

I find that when I get stressed I try to take a short walk or even just stop and take a moment to look out the window and watch some of the birds around our bird feeder which has a calming effect on me. Have you found any ways to relieve some of the stress?

Hi folks,
I just found the group, and am interested in learning what treatments are “out there” besides the medication I am taking. My neuropathology is a bit complicated because of pre-existing conditions related to massive brain trauma and (unrelated)chemotherapy, later compounded by (unrelated) brain stem tumor/surgery.

I have neuropathy in my feet, going up my legs.For the past few years, I have been having UTI's, vaginitis. I take the meds and it always comes back. Sometimes there is no infection and I still have burning. Could there be nerve damage in that area causing the burning? My urologist doesn't know, Urogynecologist doesn't know. I need to go back to my neurologist. Anybody else have this problem?