Pain in the butt - Can't sit down

That’s a big difference in pain. Did you go through with the pain pump and how do you feel now?

This pudendal neuralgia feels just like shingles but underneath your skin around the anus perineum and penis. There are no visible outbreaks like shingles but it’s the same pain level. I’ve had shingles on my side once it lasted 3 weeks and it was very painful and uncomfortable so that’s the only way to describe the condition I have. Severe burning tingling numbness. Disabling

Same here it was a surgery under the sacrum on my s2-s3 nerve that’s the biggining of the pudendal nerve. Very painful.

Had the pain pump installed about 2 weeks ago. They started me on the lowest possible dosage, which has minimal effect, as expected. Had the dosage bumped up last week. a little bit of pain relief, but nothing to shout about. Going back this coming Tuesday for another adjustment. It may take a few more adjustments before reaching optimal pain mitigation. We'll see.

I hope it works for me I have no life and no friends left. I stand every one up because I can’t make it to my appointment. At the end of my rope.

I’m also hopeful that it works for you too and thanks for responding I really am scared of another surgery and especially one that doesn’t work. Since I’ve been through 2 stimulators that were ineffective for my pudendal neuralgia. 2 implants and 2 explants. Surgery is difficult on the body. Recovery time takes longer each time I have had surgery. Good luck with your pain pump. I’m hopeful for you.

I've been going through a lot of surgeries because of butt problems that started with both ass cheeks being abscessed with strep B Ecoli and Mirsa and it went from there. I've been through rehabs and a lot of diseases and infections. My thoughts are you should see a colon and rectal surgeon. They save people's lives who have butt problems. Colon & Rectal clinics are a huge help with butt problems.

Thanks for the advice I appreciate that. I have seen my colon dr after my colonoscopy and he showed me photos and said my colon has no issues. Did bloodwork and poop test and everything was in order so. I’m sorry to hear what happened to you I understand butt problem are debilitating for sure.

I read with great interest all who admitted to pelvis type discomfort and pain. The book mentioned 'A headache in the pelvis' is a good read and available via the pubic library. There is a good Ted Talk on Utube by a pelvic floor physiotherapist. As a retired R.N. I was very skeptical that a physiotherapist could help me. I have seen gynecology, neurology, and urology all to no avail. The first pelvic therapist I went to actually did me more harm than good as she was certain that my pelvic floor needed to be tightened up with exercises. Wrong! I have come to understand that my pelvic floor needs to relax, and my new highly recommended physio has helped me. I am cautiously optimistic. There are some helpful pelvic exercises on Utube as well. Although I am far from being 'all better' I see small glimmers of hope from day to day. Essentric type exercises have helped too and I want to offer encouragement to all suffering with this quality of life issue. Don't give up, keep trying.

Yes, I have great pain when sitting in my tailbone. Several years ago, I fell slipping on ice and hurt my tailbone. Paste for started to grow and I had to have an operation. Now I am having trouble again and need to see an orthopedic doctor.