Pain in the butt - Can't sit down

I agree. Peripheral nerve damage has been tossed around quite a bit. One would think that the nerve damage would have begun to heal by now, 7 years post injury. I realize that nerves repair and regenerate very slowly, but this is crazy.
Thanks for reaching out. I appreciate it.

I too experienced condtopstion due to tskingbopiods. I don’t face any physical problems when constipated fortunately. But I do take 1-3 tsp physllium husks mixed with water and that overrides the constipation effect. For me Problem Solved! Good luck to you.

I suggest physical therapy. I have contracted pelvic floor muscles and can hardly sit without pain in the rectum. My physical therapist specializes in pelvic pain. Maybe u you oh can find one near you. Good luck.

I have tried psyllium husks before and will use it again after surgery. In fact I am awaiting hand surgery now so that was a good reminder. But when I take opioids for my back pain I cannot control my bowels and must wear pads. No fun at all!

I did see two people who specialize in pelvic floor issues but to no avail unfortunately.

Never heard of this, so assume it is rare. It sounds like an -itis, which reflects inflammation. Some things do not show up on tests and so chasing symptoms is all one can do. You might try the stretches for ischial bursitis to see if they help. Cool packs might help, as well. https://www.youtube.com/watch?v=e8LnMFVsJqM and https://www.webmd.com/pain-management/what-to-know-about-ischial-bursitis#:~:text=Pain%20in%20the%20sit%20bones,there%20are%20other%20causes%2C%20too.

I know you mentioned that you've seen two pelvic PTs before, but it might be worth seeking out another because I've seen several and they tended to have varying levels of experience and different expertise. I was recently diagnosed with coccydynia (which just means pain in the coccyx or tailbone) via internal rectal (this is the best way to assess it) by a pelvic PT. She found I have hypermobility of the coccyx that's causing very tight muscles and spasms--all the pelvic floor muscles connect to the coccyx. Treatment typically consists of internal muscle release (which you can eventually learn to do at home).

Again, every person's different, but I wanted to share that in case it helps. Also, if you haven't see a physiatrist (physical medicine & rehabilitation) physician, that's what I'd do if this happened to me. I have chronic pain, and I find physiatrists have been the most helpful in evaluating my whole picture.

Wishing you good luck, and I hope your find answers soon.

I have the same response. but mine is from the shingles (post-herpetic neuralgia). The hypersensitive skin runs from my waist down to the tops of my thighs, in my back and bum area. Clothes and sitting are torture. Always in pain but laying on my right side with nothing touching my skin is the best I can do.

I don't have an answer, but hope my experience is helpful. I started going to a stretch therapist. I had constant pain in my hips that caused uncomfortable sitting. He said my legs were tired which was causing the hip pain. He stretches my glutes once a week for an hour. This was painful at first, but only 4 sessions later, I feel hope. I rest my legs every chance I can which is hard because I live a sedentary existence now. Gradually this has been helping so I can sit with LESS discomfort. Hug 🙂

I had a similar feeling cause by tendinosis in my feet. What helped the most was doing the stretching program on PBS called Classical Stretch.